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Old 04-28-2008, 09:25 AM   #1
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Hashimoto's and Muscle Weakness

Hi, I've posted here before, but it's been a really, really long time ago and I have no idea what my user name/password was. Anyway, I am a Hashi's sufferer and do not take any meds. My labs have only veered from the normal range one time (low T4), but like they can do, came back to the mid-range all across the board. I had actually felt pretty decent the last several months until now at which time I have started to have noticeable weakness in my upper arms and upper legs. I just hate it because one minute I will be the energizer bunny and the next feel like my muscles are about to totally give up on me. It's a really odd feeling and almost puts my into a panic attack.

I'm becoming more and more convinced I need to find a new specialist. Actually, I know I do. But in the meantime, do any of you with Hashi's ever suffer from arm and leg weakness? Would or have meds helped you?

Note -Aside from my thyroid issue I am also post menopausal. I have also noticed a small weight gain, my skin looks like my it belongs on a 100 year old body, my face and lips are puffy and I am just plain sluggish at times.

Input is GREATLY appreciated. Thanks!

 
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Old 04-28-2008, 09:59 AM   #2
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Re: Hashimoto's and Muscle Weakness

Welcome back!

Have a look here. It has been the most productive thread of mine to date on general thyroid care and Hashimoto's quirks.
[url]http://www.healthboards.com/boards/showthread.php?t=597479[/url]

It is a rare occasion that I post a short message, but I can not hang about to write in depth. I can sympathesize about the energizer bunny to old crone and back again syndrome. I have Hashimoto's and Graves antibodies.. My Hashimoto's far exceed my Graves.. or the did almost a year ago I will be rechecking them this week... Hashimoto's is not a steady freddy type of disorder.. it attacks and relaxes and attacks again. you are subject to wide swings in symptoms and thyriod levels. having a competent MD is a must.

See you about.
MG
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Old 04-28-2008, 10:40 AM   #3
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Re: Hashimoto's and Muscle Weakness

Thank you MG. I've been reading up on the link you sent. LOTS of good info!

 
Old 04-28-2008, 01:08 PM   #4
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Re: Hashimoto's and Muscle Weakness

Quote:
Originally Posted by lja75 View Post
Hi, I've posted here before, but it's been a really, really long time ago and I have no idea what my user name/password was. Anyway, I am a Hashi's sufferer and do not take any meds. My labs have only veered from the normal range one time (low T4), but like they can do, came back to the mid-range all across the board. I had actually felt pretty decent the last several months until now at which time I have started to have noticeable weakness in my upper arms and upper legs. I just hate it because one minute I will be the energizer bunny and the next feel like my muscles are about to totally give up on me. It's a really odd feeling and almost puts my into a panic attack.

I'm becoming more and more convinced I need to find a new specialist. Actually, I know I do. But in the meantime, do any of you with Hashi's ever suffer from arm and leg weakness? Would or have meds helped you?

Note -Aside from my thyroid issue I am also post menopausal. I have also noticed a small weight gain, my skin looks like my it belongs on a 100 year old body, my face and lips are puffy and I am just plain sluggish at times.

Input is GREATLY appreciated. Thanks!

I think you are right it is time for you to look for a new DR and a new set of labs.. : )
Hypothyroidism causes all that you have mentioned above..
So perhaps the antibody attack is finally taking a toll on your gland and its not being able to keep up with your bodies needs any longer.. Maybe its Time for meds! : )


P.s I suffer from Hashis and muscle weakness was just one of my many signs that I needed medication..

Hope you feel better soon!


Oh one other thing if you are post meno , maybe you can ask your Dr about trying progesterone "sp?" cream natural kind .. Many women have benefited from this.. However Im not sure as to how it would work with someone that has very little to no estrogen.. Its worth discussing the safety and benefits though with your dr..

 
Old 04-29-2008, 08:19 AM   #5
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Re: Hashimoto's and Muscle Weakness

Lucky - Yep, it's time for a new doc. The search is on. I am also looking for a gynocologist to discuss hormone therapy. I have fibrocystic breasts, so have to keep that mind. I am still having occasional hot flashes though. The kind where you think your entire body is going to go up in flames. Sure would be nice to get some relief from that also.

Thanks for your info!

 
Old 04-29-2008, 02:15 PM   #6
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Re: Hashimoto's and Muscle Weakness

Hello,

O.k, I hope this helps. I had my thyroid removed feb 2007, I also had hashi's among many other things. I experienced the muscle weekness before the surgery, and unfortunatly I still have the muscle pain. I have even had a few falls. The menopause, well I had to have a complete hysterectomy four months after having my thyroid removed. I am 36, and this sent me right into menopause. I am on Hrt patch. Still I have the muscle thing. My Endocronologist is sending me to a Rheumatologist because she is convinced I have fibromialgia. She also wants to rule out lupus and MS. I take synthroid 112mcg every morning. I truly sympathise with you. I was told when my thyroid was removed, it also removed the hashi's. Im not sure one doctor says yes it does remove the hashi's the other says no. So now I get to get checked for somthing else. If you happen to get any answers, please keep us informed. Many prayers

cpht

 
Old 04-30-2008, 07:08 AM   #7
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Re: Hashimoto's and Muscle Weakness

I made a move yesterday and went out and visited with my regular GP (he's a great listener!). We talked about all of my concerns and he decided to go ahead and run all of my labs over again. When those come back we'll we will make deicisions on who, what and where. I was happy with that idea and am anxious to see what turns up. Wish I'd done this a long time ago.

I'll update this thread when I get more info.

 
Old 04-30-2008, 07:14 AM   #8
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Re: Hashimoto's and Muscle Weakness

Good deal! The key is getting an MD that can write the scripts and is willing to listen to you and your body. I will keep an eye out for your results. If Antibodies were run they need 7 days.. 10 if there are Graves antibodies in the mix. Standard TTs and Fts just take 2 to 4 days respectively. This will let you know you can call Tuesday of next week and get your copy.

Hip HIP HOORAY for your initiative. It felt good to be listened too didn't it?
MG
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Old 05-06-2008, 12:59 PM   #9
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Re: Hashimoto's and Muscle Weakness

A little update - I got results of my TSH. It was 2.26 with the end of the range at 3.00. My doctor didn't not do T3 or T4. Bummer. But, I have a feeling they were most likely okay. I am going to discuss this with him on my return visit. There were other tests run, which I can't remember now, but all were fine. However, I did have to go in this morning to have a sed rate test done. My thoughts are that I am having another wonderful flare of thyroiditis. Oh boy. Last one I had about 2 years ago lasted for several months.

I'm at a total loss about what to do. The worst thing is that my muscles are so messed up that it's miserable to drive or do much of anything away from home. And my throat has that funky unexplainable feeling. It really puts me into a panic at times. I'm in hopes that my doctor will have some ideas because this ugly stuff is just plain for the birds.

Any thoughts here are more than welcome.

Last edited by lja75; 05-06-2008 at 01:01 PM. Reason: spelling

 
Old 05-06-2008, 05:19 PM   #10
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Re: Hashimoto's and Muscle Weakness

cpht,

Removing the gland doesn't remove Hashimoto's, You have the antibodies even if the gland is gone. As long as the antibodies ar3e in your system you have Hashimoto's and they can effect you.

Do not settle for them blaming other sources unless they have first tried to optimize you on meds first.

lja,

That is a bummer. Make your MD run an FT3, Ft4, and TPOAb when you go back. These reoccuring thyroiditis flares may be Hashimoto's attacks at a low antibody level just slowly killing off your gland.

MG
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Old 05-06-2008, 10:10 PM   #11
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Re: Hashimoto's and Muscle Weakness

MG - I put in a call to the doctor this afternoon to discuss the other tests. My last antibody test was quite high, so I am guessing that is what is giving me fits again.

Thanks!

 
Old 05-07-2008, 12:26 AM   #12
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Re: Hashimoto's and Muscle Weakness

Quote:
Originally Posted by cpht32 View Post
Hello,

O.k, I hope this helps. I had my thyroid removed feb 2007, I also had hashi's among many other things. I experienced the muscle weekness before the surgery, and unfortunatly I still have the muscle pain. I have even had a few falls. The menopause, well I had to have a complete hysterectomy four months after having my thyroid removed. I am 36, and this sent me right into menopause. I am on Hrt patch. Still I have the muscle thing. My Endocronologist is sending me to a Rheumatologist because she is convinced I have fibromialgia. She also wants to rule out lupus and MS. I take synthroid 112mcg every morning. I truly sympathise with you. I was told when my thyroid was removed, it also removed the hashi's. Im not sure one doctor says yes it does remove the hashi's the other says no. So now I get to get checked for somthing else. If you happen to get any answers, please keep us informed. Many prayers
cpht
this is my humble opinion sounds like you are either undertreated , need a swap of different meds or perhaps you need some t3 added to your t4 to releive some of your symptoms.. Also about thyroid removal ; if someone does remove the thyroid gland and their results to begin with is in fact Hashimotos not sure about graves disease " though I would go as far as to say this type would fall into the category as well".. Removal of the thyroid gland would cease some of the antibody attacks because the foreign object "thyroid " once its gone the immune system settles down for awhile..
Its in an awe state like shew the job is done for awhile..
now this is not to say the antibodies wouldn't turn against another organ in time. Once the body has turned against one organ its safe to say the odds of it hitting another portion of the body are semi - high..
Im not very good at explaining things.. Sorry if this didnt make any sense .. Just trying to pass along information .. Take Care

Last edited by lucky charms; 05-07-2008 at 12:28 AM.

 
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