Hey Liz - I posted this on the aching arms and legs but will post here too. Sounds to me like you are still not optimized with your meds. For me, the lack of energy, brain fog, and muscle pain/weakness happen when I am not adequately supplemented. Synthroid doesn't cause these symptoms for me but I do know that others on this board have a hard time with synthroid so maybe they will chime in. Synthroid seems to be working really well for me. As you recall, I had to drop the Armour completely and it has taken a bit of patience to get to the right level of synthroid. I am now on 125 mcg synthroid and have been feeling better than I have felt in a long, long time. I have been on this dose for 5 weeks now and, during weeks 3 and 4, I actually felt NORMAL! I had forgotten what it feels like to not be a walking zombie from too little meds or wired and jittery from too much. It was like WOW! I'm NORMAL! Now this week, I think I am feeling a little hyper - don't know but my appointment is next week and he may make a few minor adjustments, but I really think I am getting there! Hang in there Liz - you will get there too! Blessings - jrose
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Hey Liz - I posted this on the aching arms and legs but will post here too. Sounds to me like you are still not optimized with your meds. For me, the lack of energy, brain fog, and muscle pain/weakness happen when I am not adequately supplemented. Synthroid doesn't cause these symptoms for me but I do know that others on this board have a hard time with synthroid so maybe they will chime in. Synthroid seems to be working really well for me. As you recall, I had to drop the Armour completely and it has taken a bit of patience to get to the right level of synthroid. I am now on 125 mcg synthroid and have been feeling better than I have felt in a long, long time. I have been on this dose for 5 weeks now and, during weeks 3 and 4, I actually felt NORMAL! I had forgotten what it feels like to not be a walking zombie from too little meds or wired and jittery from too much. It was like WOW! I'm NORMAL! Now this week, I think I am feeling a little hyper - don't know but my appointment is next week and he may make a few minor adjustments, but I really think I am getting there! Hang in there Liz - you will get there too! Blessings - jrose
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Thanks Jrose - that is encouraging - but the waiting is maddening and feeling bad all day every day. I actually have no life at all - and I am not kidding. How long have you been on the other doses - when did you start all of this? I think you remember from previous posts that I was on Armour for 40 years -with no problems and in Dec 2007 I started the heart palpitations and had to drop it. March 19th was when I was changed to Synthroid - so I guess in "thryoid land" - that isn't long at all. I was changed to .88 on April 15th which also isn't long - but the whole thing from Dec 2007 of feeling sick and being at home all the time makes you want to jump off a bridge.
I am glad you are feeling better - update me on your timeline.
100% from being hypo we are not optimized on our meds those pains will go away when our levels are right.
I also still feel the pains in my hips and legs so I know it is not from the meds I hope this will go away soon. Are you having sharp pains in your wrists ?
I also keep reading the different posts it is amazing how we all have those terrible symptoms.
Hang in there Liz things will get better
Pia
Thanks for the info - so it is from being hypo and not optimized - not from the meds? Hmmm....yes, I read them too - it is awful. Read Jrose's post to me on this thread.
Yes he got home this afternoon I am so glad he is home.
I am feeling tired again I guess it is almost time for my second dose of Armour.
When you were taking it did you also split it up and when did you take your last pill in the day, after dinner ?
I think you probably ending up taking over 100mcg of Synthroid you were on a lot of Armour 90mg is around 112-150mcg of Synthroid. I think he will increase your Synthroid to 100mcg.
Are you feeling a little better tonight ?
Yes he got home this afternoon I am so glad he is home.
I am feeling tired again I guess it is almost time for my second dose of Armour.
When you were taking it did you also split it up and when did you take your last pill in the day, after dinner ?
I think you probably ending up taking over 100mcg of Synthroid you were on a lot of Armour 90mg is around 112-150mcg of Synthroid. I think he will increase your Synthroid to 100mcg.
Are you feeling a little better tonight ?
Pia
Hi,
When I was on Armour and normal without problems I never split my Armour - I took a 120 and a 15 mg together in the A. M. and never gave it a thought again. When I had problems I was trying everything - cutting it in half - doing anything to be able to not have heart palpitations. I think if you take it too close to bedtime it might bother you - but don't know really.
Glad your hubby is home. I guess the next dosage for Synthroid is 100 mcg. I wouldn't mind a slow increase if I could function at all - but the thought of 30 more days staying in the house and lying on the couch make me want to jump off a bridge. Better not think ahead right now. I am on day 17 of the .88 mcg.
Talk later or tomorrow. I always feel a little better at night as we have discussed - not good - but not so lightheaded or whatever that feeling is.
Almost hate to get out of bed in the morning and start all over again. Will see what tomorrow brings - still would like to get my hair done - but can't count on it.
Hey Liz - I started feeling hyper on the Armour/Synthroid in December but probably was hyper well before that and just didn't do anything about it right away. Anyway I waited till after Christmas to go to the Doc. He confirmed by labs that I was over-supplemented and we cut the Armour down from 60 to 30 and then finally just dropped it. I then started the Synthroid back at 50 mcg at the end of January. After about 2 weeks it was clear it wasn't enough and I upped myself to 75 and then to 100 after another couple of weeks. That put me at the beginning of February. I was feeling a little bit better but not by much - pretty much still a zombie and forcing myself to function. By March we had sping break coming up and had a trip planned to New York City. I decided I couldn't survive a vacation not feeling well so I went into my doctor, explained the situation and got his approval to up my dose to 125 mcg. I started feeling better within 48 hours and have been well for the past 5 weeks. As I explained in my earlier post, I may be getting a bit hyper and may back my dose off a little but will wait to see what the labs show. If the labs ae in range, I may stay at this dose and see if things settle in for the long haul. I would love to just be stable for awhile. I will keep you posted after my appointment on Ma 6th. Liz - I wouldn't hesitate to go back to the doc and ask for an increase if it is clear your current dose is doing nothing. I can usually tell after 2 weeks, sometimes sooner if a particular dose is going to help. Blessings and loving thoughts flowing to you - jrose
Hey Liz - I started feeling hyper on the Armour/Synthroid in December but probably was hyper well before that and just didn't do anything about it right away. Anyway I waited till after Christmas to go to the Doc. He confirmed by labs that I was over-supplemented and we cut the Armour down from 60 to 30 and then finally just dropped it. I then started the Synthroid back at 50 mcg at the end of January. After about 2 weeks it was clear it wasn't enough and I upped myself to 75 and then to 100 after another couple of weeks. That put me at the beginning of February. I was feeling a little bit better but not by much - pretty much still a zombie and forcing myself to function. By March we had sping break coming up and had a trip planned to New York City. I decided I couldn't survive a vacation not feeling well so I went into my doctor, explained the situation and got his approval to up my dose to 125 mcg. I started feeling better within 48 hours and have been well for the past 5 weeks. As I explained in my earlier post, I may be getting a bit hyper and may back my dose off a little but will wait to see what the labs show. If the labs ae in range, I may stay at this dose and see if things settle in for the long haul. I would love to just be stable for awhile. I will keep you posted after my appointment on Ma 6th. Liz - I wouldn't hesitate to go back to the doc and ask for an increase if it is clear your current dose is doing nothing. I can usually tell after 2 weeks, sometimes sooner if a particular dose is going to help. Blessings and loving thoughts flowing to you - jrose
Jrose,
Thanks for the update on your situation. I am due for bloodwork in two more weeks and a doctor's appointment on May 21st. Seems a long time to wait and I will see how bad it gets - can't get too much worse for sure. The waiting once they change the dose - 30 days is torture and I am tired of having no life. I will see what happens next. Yes, keep me updated for sure. I am so glad you are feeling normal - at this point, I haven't felt normal since first of December between heart palpitations Dec-Mar and then zombie land since then. I have basically cancelled life and do nothing - I wouldn't know what to do if I even felt a little normal.
I will let you know what happens and please do the same.
Yes he got home this afternoon I am so glad he is home.
I am feeling tired again I guess it is almost time for my second dose of Armour.
When you were taking it did you also split it up and when did you take your last pill in the day, after dinner ?
I think you probably ending up taking over 100mcg of Synthroid you were on a lot of Armour 90mg is around 112-150mcg of Synthroid. I think he will increase your Synthroid to 100mcg.
Are you feeling a little better tonight ?
Pia
Hi Pia,
How are you feeling? How did the second dose work out? Any problems? I hope not. I had to drag myself out of bed again - but trying today. I forced myself to make a hair appointment as my hairdresser is having knee surgery next week and I am not sure when she will be back. I figure I will be sitting down all the time - so perhaps it won't be too bad. Need color and highlight and trim.....Not that I am going anywhere - but not knowing when she will be back - I am trying to be optimistic and sometime I will want to do something and my hair will look awful - that is depressing too.
My appointment is at noon - will let you know how I do.
I didn't get any palpitations from the Armour but I am a little shaky this morning, just don't feel good.
I guess still to early to expect a big change. I wish the day would come when I wake up and feel normal again.
Have fun at the hairdresser !!
I didn't get any palpitations from the Armour but I am a little shaky this morning, just don't feel good.
I guess still to early to expect a big change. I wish the day would come when I wake up and feel normal again.
Have fun at the hairdresser !!
talk later
Pia
Hi Pia,
Glad you didn't get any palpitations. Guess it takes a while for the body to get used to a new dosage - as we know. I don't think mine is getting used to anything - or it is not enough or whatever. It is taking every ounce of whatever I have to go out of the house today. I thought I might feel a little better but after being up for a while - don't think it is much, if any.
I just hate that waiting game I am so fed up with waiting and hoping to feel better but what can I do, I have no choice.
I just want my life back I want to go shopping and have lunch with my friends I just want to feel NOT TIRED AND WEIRD anymore.
I also have to go to the hairdresser I used to like going now it is work for me to get my hair done.
Oh well enough crying , nothing I can do but WAIT AND SEE,
hope you are feeling a little better after your hair appointment at least you will look nice.
I just hate that waiting game I am so fed up with waiting and hoping to feel better but what can I do, I have no choice.
I just want my life back I want to go shopping and have lunch with my friends I just want to feel NOT TIRED AND WEIRD anymore.
I also have to go to the hairdresser I used to like going now it is work for me to get my hair done.
Oh well enough crying , nothing I can do but WAIT AND SEE,
hope you are feeling a little better after your hair appointment at least you will look nice.
take care
Hi,
Oh, boy you couldn't have said it all better than what is going on in my mind all the time. I did get my hair done and felt really awful when I went, but just being there, by the time I left I felt a bit better mentally anyway. Then I went into the grocery store for one item and to mail bills. I almost didn't want to come home just because I felt semi-normal - but not really. I want to do all those things you mentioned and can't - just like you. I am tired of waiting and waiting too - and then you go and it is more waiting. I am so glad I have you to talk to or I would think I was ready to be locked up!!!
I have that crazy burning in my abdomen and stomach at times and back - and sometimes feel like that uti thing - burning - but not having to go all the time - that is weird too - and has to be from this - because I never had it before. I try to ignore it and say it is from this......good grief!!!!!
Anyway, today is the 6th anniversary of my Mom's death and that is another reason I wanted to go out - just to keep my mind on something else - don't need to go any lower.......
Anyway- we will hang in there together. Do you still feel weird? How do you feel exactly?
I also have that weird burning in my stomach and I feel like I am getting a UTI.
I feel like I have thousands of ants crawling around in my inside.
I am very tired and my legs and arms feel weak. My eyes are also very dry and red, my legs tingle.
I don't want to go out feeling like this so another boaring day at home.
I am sooo tired of this , will it ever get better ?
Wow - we have so many of the same things. I just read a post about itching and rashes - seems that is common with Hashi's hypo too. Remember, I had that rash for about a week a while back? Sometimes I get itchy here and there too and this burning and uti feeling is weird. I don't have to go a lot - just have burning. I figure it has to all be related. Several people talked about the itching and rashes on the latest post.
Hey - I wondered if it was on this board or the other - but someone recommended a book called The Thyroid Solution by Ridha Arem, M. D. and I ordered it the other day - it arrived today and seems pretty interesting for sure. I just started reading it....but so much rings true already. Anyway, I don't know if you have it -but might be worth it - I think it was only about $11.00 or such - I love them because I order on-line and it arrives like in two days. Talks about so many symptoms we seem to have that people are sent to other doctors for and they are all hypo or hyper related. I think it is worth reading.
Today wasn't the worst day I have had although it started out bad. I have taken the zinc and selenium for three days now - don't know if that would do anything??? The latest post says selenium for rashes and itching - interesting. But I still have itching - maybe that will kick in.
That's about it for tonight I guess.....have to pray for a better day tomorrow.
Talk tomorrow,
Liz
Last edited by moderator2; 05-02-2008 at 06:33 PM.
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Yes so many people have the same symptoms.
How are you feeling this morning ?
I am ok not great again Wait and see
talk later
Pia
Hi,
Yesterday afternoon, as I told you, and last evening - not too bad - when you are comparing anything to awful - anything feels better - right? This morning - kinda yucky - but maybe a tad better. Trying to fight it as much as possible and not let myself get so down - although that is hard. I am trying to do a few little things to keep my mind occupied. I am continuing the selenium and zinc and see what happens with that - supposed to help with conversion of T4 to T3 - I have read that in more than one place now. The mornings are always worse as we have discussed many times. I guess we are both still playing the waiting game. As I look at the calendar I see that I have about two weeks to blood work and a little longer for doctor's appointment. I am going to work on my log of symptoms and how I have felt since I saw him and not just say awful.......I like to take notes with me. Also going to call before I go for blood and have that woman I talk to ask the doctor about the free T3/T4 tests....so, trying to keep upbeat. Usually afternoons and evenings a bit better. Let's keep praying.
Yes so many people have the same symptoms.
How are you feeling this morning ?
I am ok not great again Wait and see
talk later
Pia
Hi,
I was going to add that my mind is so far ahead of my body. If I feel even one hair better - I am thinking - oh, maybe I will do this or that or maybe next week I will do such and such. Then I walk around for a few minutes and I am trying to fight the feelings - and then I really don't know what I will do or if I will be able to.
When this all started - I said to my husband "I wonder what lesson God wants me to learn from this experience".......patience, I guess that is it. My husband always said I didn't have any - well, this forces you to have it because you have no choice....at all.
I know that nothing else matters, if you don't feel well. I thought I knew that but I really KNOW that now - perhaps that is the lesson??? Hmmmmm....
and patience. Think you and I have both GOT IT by now. Time for this to end.
I am so happy you are feeling better maybe you are right from now on things will get better.
Have a great weekend.
Pia
Pia,
Let's hope and pray. I don't feel good, like you, and this morning I was kinda lightheaded but kept trying to fight it - went for a walk. Trying to wrap a Mother's day gift for my Mother-in-law so we can mail it this week. Listening to some CD's that I love - crying while doing it - but still enjoying it.
Maybe thinking more positive is the better way if we can. Only if we don't feel awful is that possible, I think.....we will see. I was afraid to go to bed last night as I didn't feel too awful - the mornings are always kinda bad or really bad - I can't figure that out. I am still splitting my pill - I don't know what that does - but don't care....it doesn't hurt as long as I get .88 in the 24 hours and on an empty stomach.
Let me know how you are as the day goes by. What are you doing today?
It is really warm here today - 80's - I am sure it is that warm there most of the time???
Liz yes it is warm here and I am also not doing to great.
Feel tired and weird just another day at home.
I will lay out on the pool for a while at least that is healthy.
