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Old 04-30-2008, 02:01 PM   #1
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Pamela909 HB User
Thyroid removel -

I have just been told I have a choice of total removal of the thyroid in July
or another biopsy and then if worrisome results, removal at that time.
I chose door #2 - no one has been able to say I have cancer, only that
it could not be rulled out. This will be my second biopsy, but two more
nodules have shown up on opposite side and they may want to start doing
a biopsy on them also. I think if I did not have some wonderful plans
to celebrate becoming a senior and our 30 year anniversary I may just go
with the surgery, but I am concerned for several reasons, one being I also
have MS, although that now seems to be under control.
They also said my thyroid was borderline low, and would also need to redo
blood test. Just want it all to go away and pretend it never happened.
Have you ever felt that way.
Pam

 
Old 04-30-2008, 05:57 PM   #2
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Smile Re: Thyroid removel -

Yes, I have felt that way...wishing I did not have a thyroid problem and trying to be in denial and hoping it would just go away! Even when I met with my endo and a surgeon yesterday...I was hoping they would just say...gee we were really wrong there is not a problem anymore!! (Didn't happen :-)

Hang in there...and know there are many people here on this board who are kind and able to offer support!
Rhonda

 
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Old 04-30-2008, 10:56 PM   #3
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Curious2013 HB User
Re: Thyroid removel -

Quote:
Originally Posted by Pamela909 View Post
I have just been told I have a choice of total removal of the thyroid in July
or another biopsy and then if worrisome results, removal at that time.
I chose door #2 - no one has been able to say I have cancer, only that
it could not be rulled out. This will be my second biopsy, but two more
nodules have shown up on opposite side and they may want to start doing
a biopsy on them also. I think if I did not have some wonderful plans
to celebrate becoming a senior and our 30 year anniversary I may just go
with the surgery, but I am concerned for several reasons, one being I also
have MS, although that now seems to be under control.
They also said my thyroid was borderline low, and would also need to redo
blood test. Just want it all to go away and pretend it never happened.
Have you ever felt that way.
Pam

I understand your picking door #2. I had an ENT tell me I needed a TT before the end of the year. A second doc said no just do FNA. Well I did, and he is now saying you are clear for a year. The second doctor has more thyroid experience than the first so I am listening to him. You can always take it out--you can't put it back! LOL

 
Old 05-01-2008, 02:36 AM   #4
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Pamela909 HB User
Re: Thyroid removel -

Thanks Rhonda,
Brought tears to my eyes, but actually feel better this morning, just feel
a bit down when I get tired. I am focusing on, I was going to say just happy
things, but in fact this morning I am going to get the rules of the road to study
for my drivers lecense renewal, becoming a senior has it's down side also, need
to learn all the new rules that were put in place since I first got my license.
And I will continue and maybe increase my exercise program to try and get into
the very best shape for any eventualities.
Keep us up to date on your progress.
Thanks again,
Pam

 
Old 05-01-2008, 02:43 AM   #5
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Pamela909 HB User
Re: Thyroid removel -

Quote:
Originally Posted by Curious2013 View Post
I understand your picking door #2. I had an ENT tell me I needed a TT before the end of the year. A second doc said no just do FNA. Well I did, and he is now saying you are clear for a year. The second doctor has more thyroid experience than the first so I am listening to him. You can always take it out--you can't put it back! LOL
Thanks Curious, I am starting at the top with the best doctors in Boston
so I will take their advice, also seem to have one of the best doing the
biopsy, I checked on line and he seems to be a VIP. That, in itself, gives
me confidence. Still scared of the thought of a TT, but hoping to get
the same results you did, waiting a year would work for me.
Pam

 
Old 05-01-2008, 04:44 AM   #6
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Re: Thyroid removel -

Pam,

There's not an urgent rush to surgery---even if it is cancer, it grows slowly, and is curable.

However, if you are concerned about the surgery itself, it's such a nothing in terms of pain/healing, difficulty to get through----mine was a breeze, so don't be scared of it, when you are ready.

 
Old 05-02-2008, 02:57 AM   #7
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Pamela909 HB User
Re: Thyroid removel -

Quote:
Originally Posted by Reece View Post
Pam,

There's not an urgent rush to surgery---even if it is cancer, it grows slowly, and is curable.

However, if you are concerned about the surgery itself, it's such a nothing in terms of pain/healing, difficulty to get through----mine was a breeze, so don't be scared of it, when you are ready.
I will try and repeat that over & over till it sinks in.
Thanks so much.
Pam

 
Old 05-02-2008, 03:05 PM   #8
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Curious2013 HB User
Re: Thyroid removel -

Quote:
Originally Posted by Pamela909 View Post
I will try and repeat that over & over till it sinks in.
Thanks so much.
Pam
These are my thoughts exactly. Right now I'm going to try and get myself in better shape physically in case I do need surgery.

 
Old 05-08-2008, 01:57 PM   #9
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cardshark HB Usercardshark HB User
Re: Thyroid removel -

I would definately recommend a total thyroidectomy. I had an abnormal growth or enlargement of my thyroid and the doctor only did a partial. It ended up being a tumor but biopsy said it was benign. Ten years later I have gone to my doc for a routine check up and I have another abnormal growth on my thyroid or enlargement and am going for ultrasound tomorrow. So instead of totally removing the entire thyroid the first time, more than likely I'm going to be going in for another surgery ten years later to remove the rest of it and this is much more likely to be malignant than the first one! Especially since I have already had cancer 3 times!

 
Old 05-09-2008, 05:02 PM   #10
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feathermaid HB User
Re: Thyroid removel -

Quote:
Originally Posted by cardshark View Post
I would definately recommend a total thyroidectomy. I had an abnormal growth or enlargement of my thyroid and the doctor only did a partial. It ended up being a tumor but biopsy said it was benign. Ten years later I have gone to my doc for a routine check up and I have another abnormal growth on my thyroid or enlargement and am going for ultrasound tomorrow. So instead of totally removing the entire thyroid the first time, more than likely I'm going to be going in for another surgery ten years later to remove the rest of it and this is much more likely to be malignant than the first one! Especially since I have already had cancer 3 times!
Excuse me-3 times? Would you mind if I asked where and what kind? Let me guess-female? I have had displasia moderate x2 and severe x1. No HPV. And may I ask about the MS patient please. Ironic I know but I feel like I have MS. But believe it is hyperparathyroid. How long and how were you diagnosed? Thanks

 
Old 05-09-2008, 07:40 PM   #11
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Re: Thyroid removel -

Quote:
Originally Posted by feathermaid View Post
Excuse me-3 times? Would you mind if I asked where and what kind? Let me guess-female? I have had displasia moderate x2 and severe x1. No HPV. And may I ask about the MS patient please. Ironic I know but I feel like I have MS. But believe it is hyperparathyroid. How long and how were you diagnosed? Thanks
I had Non-Hodgkin's Lymphoma in my left leg from mid tibia up to the knee and in my chest catching the edge of my heart at 4, Acute Lymphblastic Leukemia at 6, the benign thyroid tumor at 15, Renal Cell Carsinoma in left kidney at 21, and now dealing with the thyroid again. Yes I'm female and have other issues as well. At 15 my menstrual cycle also went crazy and I started having seizures. In the last 5 years I've devolped numerous allergies which are getting more and more severe including being allergic to estrogen which is triggering my seizures.

Last edited by cardshark; 05-09-2008 at 07:41 PM.

 
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