Hello everyone! Thought I would be a little selfish and post my progress.
Well after years trying to find out the source of allergy, skin, eye, weight, energy, memory, heart, and migraine issues... I had my mom share that she had Graves and Hashimoto's and a light went off.
So I fought to get my normal/slightly off thyroid tested for antibodies.. and DING! The adventure really started rolling.
Dominant Hashimoto's was determiend first.. with active Graves antibodies.. The MDs ignored Graves and stamped my file Hashimoto's Thyroiditis.. NORMAL.
Well in the last year I fought and found I had Hashimoto's and Graves. My thyroid antibodies were attacking my brain, heart, thyroid.. and my adrenal's kicked it too.
Well I got in with a good thyroid MD, FINALLY, this January. Now my Hashimoto's, Graves, primary adrenal insufficiency are being treated.
The low adrenal and thyroid function caused me to have low Ferritin, B12, and vit D. I also had high triglycerides, high AST/ALT and a few other issues with mineral balance. SO the supplement flood began.
1) Fish oil 1200 mg with DHA and EPA once a day. (My triglycerides decreased by 35%)
2) A super B complex once daily. (Up to 45% in range now)
3) 400 mg Magnesium once daily for migraines and muscle issues. This and the B12 did help with my migraines.
4) Selenium and potassium iodide multivitamin
5) Ferrous Fumorate - iron supplement with vit C.
A summary of treating my thyroid and adrenal issues:
I started out on 50 mcgs of synthroid in January. This allowed my FT3 and FT4 levels to reach 72% and 30% respectively. At these levels I still felt hypoT.. but I was warm again. So given my T4 levels were still suboptimal, I was bumped to 75 mcgs of T4.
The discrepancy in T4 and T3 balance pointed my MFM and me to my adrenal issue. My MFM was concerned that this was going to make medicating my thyroid very difficult. So a new round of testing commenced after 6 weeks at 75 mcgs. This testing confirmed primary adrenal insufficiency. I was taken off the DHEA Sulfate and put on 20 mg hydrocortisone spread out through out the day. Meanwhile my 75 mcg blood work came back with me HYPERT. I had swung to 270% in T3 and 190% in T4. HyperT's.. I feel for you. So I was dropped back to 37.5 mcgs for 2 weeks and then returned to 50 mcgs of T4 and told to come back in 8 weeks. We were waiting to see if my cortisol supplementation would correct the T4/T3 imbalance and help with my thyroid supplementation issues.
After 8 weeks on 20 mg of cortisol and 50 mcgs of T4, my tests showed no significant improvement in thyroid hormone levels.. BUT I wasn't hyperT anymore. My T4 levels were at 10% and my T3 levels were at 50%. The good thing was my cortisol levels were all low normal in limit and my adrenal hormones all began to improve.
So once again it was another 8 week wait period. Last friday I had my lastest round of blood work. I was hoping for good things and I think things are beginning to turn about. I AM TRUELY HYPOTHYROID! YEAH! My TSH is still 0.4, but my FT4 is at 20% and my Ft3 is at.. DRUM ROLL.. 30% of normal range. *DANCES IN A CIRCLE* YES my FT3 and FT4 are with in 10% of each other.. balanced, but low. My Cortisol is now up from 30% of normal to 77.8% of normal. Near perfection. My ACTH is still high and TSH low.. but my pituitary gland is a dud. My cholesterol is down and Normal. My BP is down. My heart rate is staying down. My triglycerides have halved in value and are NORMAL! Sorry I have never had normal triglycerides! My calcium and all thos minerals are 40-80% of range so.. all is looking good. Now that the supplementation of cortisone has my T4 to T3 conversion in check and my antibodies have demolished another chunk of my thyroid heres to hoping I can successfully supplement my thyroid hormones since I am at the wait and hold on a TT.
So to make a long story short: I still have Hashimoto's and Graves running hard and steady, but Hashimoto's has hammered my thyroid into a very low yield state and is winning out over my Graves. My B12, DHEA, Ferritin are all in the 40-60% range of normal. My thyroid hormone levels are low but balanced, and I just got an go on another T4 increase. My nodule is an 8 mm sphere and holding. My adrenal supplementation is working and my neuropathy and hashimoto's encephalopathy are in check.
Next in line.. I go to see a thyroid/pituitary specialist at Vanderbilt August 7th. I go back for my thyroid eye disease check up next friday.. and I have to wait another 6 weeks at 75 mcgs to see if I am going to spike hyperT again.
So any bets? Your guess is as good as mine. My body just loves to go against the grain and give me issues.
All in all I am moving forward and think I am slowly making progress forward. You can not give up on yourself. You have to keep moving forward and sometimes the only way to go forward is to go backward. Fixing a thyroid problem is not easy. It takes persistance and a good thyroid team.. YOU and your MD.
Well I am wishing you all the best and am greatful that you all are here to share with and listen.