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Old 08-24-2008, 07:57 PM   #1
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I knew it was too good to be true.......

I hope all is well? Well here not so well lately! Since the decrease in the meds after time i have started to have increased sweating, irritability , restlessness, increased appetite, little (weight) slight gain since the decrease oh and i can't leave out the heart racing stuff! I only went down from 112mcg to 100 and they checked my last levels at the 112 and said they were good but just before that did the 100mcg. Could this have made that much of a difference? I am getting so frustuarted with all this. Thanks for all your support and help!
Monkey

 
Old 08-25-2008, 04:47 AM   #2
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Cool Re: I knew it was too good to be true.......

I'm sorry I didn't understand the reason for the reduction?

But since your getting symptoms on 100, why not take 112 one day & 100 the next??

It's such a delicate balance.

 
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Old 08-25-2008, 08:08 AM   #3
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Re: I knew it was too good to be true.......

What were your pre medication change Ft3 and Ft4 values? It sounds like a shift in medication has made you hyperT? But it could be adrenals or something else. However a 12 mcg shift is VERY small normally such doesn't have such a dramatic effect? Are there certain times a day that your symptoms are worse than others. At what time a day do you take your meds and what time a day do your symtpoms peak.. or are they constant. Something is up, but I can not tell what from the information you have given. Some lab work and associated ranges would be very helpful in addition to a little more information on your symptoms.

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Old 08-25-2008, 08:20 AM   #4
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Re: I knew it was too good to be true.......

why did they lower your meds if your levels were fine on 112??? sheesh.

yes, incredibly, 12mcg makes a big difference. i was on 62.5mcg, went to 75mcg, and started getting symptoms in a few weeks. i'm back down to 62.5mcg.

 
Old 08-25-2008, 01:03 PM   #5
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Re: I knew it was too good to be true.......

hey there, what a reponse here and very greatful for that! Okay first and foremost, they decreased my meds down to the 100mcg like the week before i got my labs back and thats when they said they were fine, and then rececheck again in three months. I cannot wait three months for this change lol. I have always taken my meds in the am from the get so i never forget because i have kids to get to school then and the sweating i'm having is mid morning and almost all day ,insomina at nightime, like i haven't went to sleep the last few days till almost morning. What i don't get is i have been on this dose for at least two months, why now? I always forget with so much going on that i didn't get my lab sheet again ugh. I am so tired throughout the day that i don't even have the stenghth to make my kids do thier chores and do tham most myself to save the peace! So should i take this to the dr.?
Love, Monkey

 
Old 08-26-2008, 02:24 AM   #6
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Re: I knew it was too good to be true.......

Ah monkey, what a bummer. Maybe it's still a little too much? Since you've passed the 6 week mark on the new dose, it is not too early for a new set of labs to see how things settled and where you're sitting now. Try and make sure they throw a FT3 into the mix too to make sure that isn't causing the symptoms.

So yes, you should take it to the doc's. There's no reason you don't deserve to feel well. And here I was thinking you were sitting up there feeling finer than frog's fur now.

Hang in there. It'll come.

hugs,
helen

 
Old 08-26-2008, 01:27 PM   #7
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Re: I knew it was too good to be true.......

helen, thanks a will give a call in tommorrow to the good ol doc!
Take care, mel

 
Old 08-27-2008, 05:10 AM   #8
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Re: I knew it was too good to be true.......

Good idea. Let me know how it goes. You need to stay on them until they get it right. If you need to, throw up in their face that protocol calls for lab work to be done within 6 to 8 weeks of an adjustment in dose. As you've found out, 3 mos can often be too long. That's ok once you're stabalized, but not while they're still adjusting.

Oh, I started school on monday. I won't be having a whole bunch of time to check the board so if you wanna make sure to get my attention, holler at me here. I don't like missing your posts but this board goes by so fast, it's easy to miss stuff. You're kinda special to me and I wanna know how things are going with you.

 
Old 08-30-2008, 08:09 PM   #9
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Re: I knew it was too good to be true.......

Helen, thanks for the kind word Sorry it took so long to reply, it's been a rollercoaster around here with trying to get meds straight seeing dr.s, getting kids ready for school and the back pain! And to add to it i got this cold a few weeks ago and everytime i feel better i over do it and i'm sick again ugh. Anyways i think it all reality i need to stop trying to be some kind of freak and worry about everyone and everything around me and put me last so i can get better argh Yeah i'll say i seem to do this ugh. Some people would think i'm crazy for this causes now i am taking care of a neighbor kid who has no home really(not the kind for him anyway) So i am stepping up for him! But anyways back to the meds, i called my dr. and let the nurse know what was going on and she is going to get back with me i'm sure on Tuesday(holiday ugh) So in the meantime i just deal! I am glad to see you started school and wish you the best! I am thinking i might when i get my head on straight Take care, and i will keep you informed!
P.S. I wish we could meet people on here on the boards it would be awesome! It would be as if we knew eachother forever! And we could give everyone hugs!
Love, monkey


God doesn't give you more than you can handle........

 
Old 08-31-2008, 03:30 AM   #10
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Re: I knew it was too good to be true.......

Better late than never. This week sure did fly by.

Not a cold??? You poor thing. I'm trying so hard to avoid anyone who's sick so what do I do? I eat something that doesn't agree with me and ended up with a horrible case of the trots. Life's going to get you somewhere.

You do need to put a little more time into yourself. I know it's hard. Trying to overcome that nurture instinct. Have you ever noticed that when everyone in the house gets sick with the same thing, no matter how sick you are, you're the one who ends up taking care of everyone else? You need to put your foot down once in a while and let them take care of things a little when they're ok and you aren't.

We've taken on a neighborhood waif too. He's a good kid. Just needs someone to let him know that he's somebody. I think some people should be sterilized at birth. No business at all having kids if they aren't going to treat em proper.

Holiday weekends are impossible when it comes to doctors. I made the mistake of going into thyroid storm on labor day weekend years ago. Got to the er and they informed me my doc was out of town for the weekend and I'd have to call him on tuesday. I told em if they didn't mind, I'd just sit right there and wait for him. They called him when they realized I was serious.

I don't have my head on straight and I still went. Aced my first exam too!

I think even if we don't ever get the chance to meet, we'll still all be in each other's hearts forever.

 
Old 08-31-2008, 04:04 AM   #11
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Sweating?

Someone else in another thread had a question about sweating and if high blood glucose could be causing it, so I did a search and the answer is yes. Try it yourself?

FWIW, might you need to get tested for diabetes?

 
Old 08-31-2008, 10:25 AM   #12
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Re: I knew it was too good to be true.......

Helen"Yeah" you did good girl! I am feeling a little better today although i stayed up way to late last night oh well it was worth it Time to me when kids were asleep! I am thinking if my labs come back okay then i will bet it's the Lyrica, i felt okay yesterday and then started them again a few days ago and today i feel hot ugh! OMG, we had a bat in the house last night after the kids were in bed, they had to come help though, first one ever! It was a hoot let me tell you and not an owl lol!
Take care, Mel

 
Old 09-01-2008, 04:27 AM   #13
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Re: I knew it was too good to be true.......

Hey eagle, Interesting point. I went full blown diabetes around a year or so ago. It was around May a year ago that the sugar levels finally got attention and we've been watching em climb ever since. This is the first summer I've really sweated. I've always been terribly cold blooded but three times this year I've dropped due to the heat. Sometimes only like 30 minutes outside in the heat and I'm soaked and suddenly dehydrated. And to top it off, it's been a fairly mild summer. Perfect outdoor weather. It sucks.

Monkey - So you had a good one? Sometimes those late nights are really worth it. Did you tell me you were on Lyrica? I don't remember that. You do know that when you stop them, you're supposed to taper em off and no cold turkey? It can produce some nasty symptoms if you just suddenly stop taking them. I take Lyrica. Been taking em for almost a year now. I've read some interesting research on it. They don't know if it affects thyroid levels or not. Some say yes, some say no. However, thru it's mechanism of action, there is a good possibility that it can slighly lower TSH levels. I don't know if it would make you hot though. I actually like the Lyrica and really haven't had any side effects from it. I don't know what I'd do without it.

Oh gosh! That musta been something. We've had bats but the worse had to have been the raccoon. He was even worse than the possums. He climbed up everything with the dogs chasing him all over the house. I do hope your bat was one of those small ones. We used to have some neighbors up the mountain. They were kinda strange. They used to have bats that were 3 feet tall walk into the living room and talk to them at night. That was a crew. Talk about goosebumps of Deliverance. I'm glad they moved.

 
Old 09-01-2008, 04:39 AM   #14
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Re: I knew it was too good to be true.......

Bats 3' tall that talked to them? Lol....

Seriously, guys, what's Lyrica? Could that also be a cause of your sweating?

Years ago I think I read somewhere an opinion that undertreated thyroid can allow diabetes to develop. Also Hashi's and a lot of other debilitating changes. Don't know if the jury's still out on all that. You did do an online search for possible causes of profuse sweating, right?

 
Old 09-01-2008, 08:44 PM   #15
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Re: I knew it was too good to be true.......

Helen, not sure if i did post i was taking the Lyrica it hasn't been that long.
Eagle i wondered this myself as they had my thyoid meds to high for like a year. I have thought about getting tested for the diabetes as it runs down the line as well! I will let you know whats up when i see the Dr. or chat!
Mel

 
Old 09-01-2008, 08:44 PM   #16
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Re: I knew it was too good to be true.......

Helen, not sure if i did post i was taking the Lyrica it hasn't been that long.
Eagle i wondered this myself as they had my thyoid meds to high for like a year. I have thought about getting tested for the diabetes as it runs down the line as well! I will let you know whats up when i see the Dr. or chat!
Mel

 
Old 09-02-2008, 03:37 AM   #17
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Re: I knew it was too good to be true.......

Yep. They talked. That was a little more amusing than the men in 3 piece suits that used to land their spaceship in the pasture and put blue stuff in the creeks. OMG! Them thar cricks run down by the house. You don't think that's what's wrong with me, do ya???

Lyrica's an anticonvulsant. Didn't do too good at stopping seizures but they found it's fantastic for masking neuropathic pain. It's approved for treatment of diabetic neuropathy, post-herpatic neuralgia and recently, fibromyalgia. I don't recall seeing sweating as a side effect but that wasn't exactly what I was looking up.

You're correct. Untreated thyroid disorders can lead to diabetes. Lot's of research to back it up. If you don't believe it, look at me. No risk factors whatsoever. Just long term untreated hyperthyroidism. Untreated hypothyroidism can lead to insulin resistance too.

I'm not exactly sure whether my sweating would be called profuse. When I look at other people, it appears that it might be considered normal??? I have a weird thermostat. Some people accuse me of being part reptile. Prior to this summer, you could put me in an oven and I'd be quite comfortable. Hardly shed a drop of sweat. If you chill me, my hands, feet and crotch pour water. Who knows? All I know is this is different for me.

Monkey, if the diabetes runs down the line, it's important to keep an eye on it. Do let us know what the doc has to say. I'll be rooting for ya.

 
Old 09-02-2008, 06:27 AM   #18
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Re: I knew it was too good to be true.......

Just thought I would share the FDA's documented Lyrica treatment group adverse reaction findings:
dizziness, somnolence, ataxia, confusion, asthenia, abnormal thinking, blurred vision, incoordination, weight gain, dry mouth, and peripheral edema.

Now these findings were over a small clinical trial set of 5000.. so if it is a rarer subset or a side effect as a result of thyroid/blood sugar issues then it may not have been caught. Extreme body chemistry cases.. like thyroid dysfunctional patients are not included in many of the base clinical trial groups.

MG
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Old 09-03-2008, 03:11 AM   #19
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Re: I knew it was too good to be true.......

I had mostly been interested in the ataxia part. Keep wondering if after having not suffered a single listed side effect since the get go for almost a year, when they say side effects usually subside with continued use, whether the opposite could be true and the same side effects could occur with continued use. So I look it up to see if I can find anything to back that up. What do I find? They're starting to find that Lyrica can be used to treat ataxia.

I tried to get off the stuff in march. I thought I was ready and I wanted to be rid of it. With the gp's approval, the gradual withdrawal started. Within a week of cutting back by one a day, I was back on his doorstep begging for a refill. I'm just not sure where to go with this one. There's a very slight chance the drug might be a problem but there's no comfortable way to test the theory.

 
Old 09-03-2008, 05:54 AM   #20
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Re: I knew it was too good to be true.......

Any new drug is difficult to test and get data on. Pity we aren't more like mice, then we would know for sure.. but if we were more like mice and only lived 3 years.. would we care? Hummm? I could get into running in the old hamster wheel and ball. I always thought they looked fun. Oops! Tangent. *pauses to chase my tail briefly* Okay, almost awake. MORE CAFFEINE! NEED MORE! I need a caffeine IV this morning. UGH!

Side effects can develope and increase or decrease in severity at any time. There is no set rule on side effects. When dealing with your body it is an ever changing chemical factory. Like an allergy to antibiotics or food it could take one or two dosings or years to develop an intolerance or allergic response. The degree and speed that such happens directly stems from our own immune system and tolerance for the foriegn substance. In the case of trying to determine if the symptoms are a result of the drug you need to know how/if your were suffering before and how/if it changed after the fact. It can take as long as a six month break from a medication to allow your immune system to reset and your body to loose any built up tolerances. Biochemistry and how each human reacts is highly experimental . You can not get a solid basis set because each human.. barring identical twins have significant differences in their body chemistry. Heck just males versus females.. and the age at which they are evaluated can cause dramatic fluxes in the body's demands and needs. Let us know what you figure out. I am off to see the wizard...

MG
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