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Thyroid Disorders Message Board

TSH flucuation


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Old 09-10-2008, 03:05 PM   #1
k2626
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TSH flucuation

Hi guys, I just ran over to my old dr for my past labs. I noticed my THS flucuated ( could be more but other labs are at home)
Ranges .350-5.5 from labcorp

TSH 3.263 nov 06
TSH 4.840 March 08
TSH 2.83 July 08
TSH 2.30 July 08

Could this perhaps be linked to my moving bone/joint pain, joint cracking and muscle twitches?



Is this normal?

Last edited by k2626; 09-11-2008 at 01:23 PM.

 
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Old 09-11-2008, 01:23 PM   #2
k2626
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Re: TSH flucuation

Anyone have feedback?

 
Old 09-11-2008, 01:33 PM   #3
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Re: TSH flucuation

Hi K. Boy, with TSH numbers that high, I would be completely hypo, on the couch, brain dead with weak muscles, extreme fatigue and completely unable to function. I don't seem to feel well until my TSH is less than 1- but it would be ineresting to see what your free t3 and free t4 levels were too. I think your symptioms certainly could be realated to being undertreated for low thyroid. What meds are you currently on. Others on this board are much more well informed than me, but at first glance to me you may have been undertreated for all these years. jrose

Last edited by jrose1358; 09-11-2008 at 01:34 PM.

 
Old 09-11-2008, 01:57 PM   #4
k2626
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Re: TSH flucuation

I do not have history of my T3 but know my last one was in normal range.

So it may be odd that my TSH has flucated so much?

I have been on aciphex for gerd that hit me out of the blue, and on birth control...

I hope this is the cause of my pains, joint cracking etc Thanks SO MUCH for any insight!

 
Old 09-11-2008, 02:55 PM   #5
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Re: TSH flucuation

Are you on any thyroid meds?

 
Old 09-11-2008, 02:58 PM   #6
k2626
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Re: TSH flucuation

None, never been dx with an issue. But THINK maybe I have one due to my symtpoms and TSH changes??

 
Old 09-11-2008, 03:20 PM   #7
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Re: TSH flucuation

I think I would go to my doctor and ask them to run a new TSH along with a free T3 and free T4. It's hard to tell you anything without ft3 and ft4. Then post the numbers on this website along with the reference ranges. There are many here who will be able to analyze those results and advise you what to do. If your doctor is willing, you could ask him/her for a trial thyroid med and see what happens to your symptoms. My suspicion is that many of your symptoms are thyroid related. A lot of doctors won't allow you trial meds without labs though so I would definitely get the labs done - jrose

 
Old 09-12-2008, 06:40 AM   #8
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Re: TSH flucuation

I too posted on this topic, but got no replies. I said, "Is it normal to have fluctuating TSH levels for many years? Both my mom and my sister have Hypothyroidism. I get tested every year and my levels have been 2.78, 4.96, 5.57. Whenever it is high, they have me come back in 3 months and test again and when I do it is in the normal range. This has been going on for 5 years. Two years ago they had me do the TPO Antibody test (26) and the Free Thyroxine test (.9) My last test a couple of months ago was 4.96 and my dr. said she would test me again next year. Should I be tested sooner than another year? Any thoughts would be greatly appreciated!"

 
Old 09-12-2008, 08:01 AM   #9
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Re: TSH flucuation

k2626... The fluctuation isn't as great as you believe. TSH can fluctuate that much within 24 hours, let alone across years. The important thing is that it is always higher than a healthy, euthyroid person's of around 1.0.

I would say that if joint pain is your only symptom, it's less likely - although not impossible - to be from low thyroid than some other cause. Low thyroid presents with a dozen or more symptoms, generally.

You need to push for the other tests, because TSH is not the definitive measure of thyroid health - even though MDs are taught that it is. TSH is a pituitary hormone, not a thyroid one. Since the actual thyroid hormones can now be accurately measured, there's no excuse not to measure those and to keep ignoring them.

LMF64... Find yourself a real doctor. You are definitely hypothyroid NOW, and have been for many years. Demand a script for thyroid hormone from that MD, or else find one who actually recognizes thyroid disease when he/she sees it.

Last edited by midwest1; 09-12-2008 at 08:02 AM.

 
Old 09-12-2008, 08:10 AM   #10
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Re: TSH flucuation

My TSH levels flucuate constantly. I go just about every month for blood work. I had a nodule removed almost 2 years ago from my Isthmus and have been on synthroid ever since. Im constanly changing the dosage. BUT now my ENT is taking out my tonsils. I get tonsillitis and infections constantly and every time I do he believes it messes up my levels. So they are coming out.

 
Old 09-12-2008, 09:30 AM   #11
k2626
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Re: TSH flucuation

What other thyroid tests shoukld I push for? I do have other symp-extreme full body muscle twitches, flucuating weight (by 7 pds up and down-not dieting etc), fatigue, feet buzzing, extreme joint cracking and traveleing bone/joint pain

All other labs have been fine...

 
Old 09-12-2008, 09:36 AM   #12
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Re: TSH flucuation

The best group of tests to diagnose low thyroid are:
TSH
Free T4 (not "total" T4)
Free T3 (not "total" T3)
TPO antibodies
Tg antibodies

Since you're on birth control pills, be sure to demand the "free" T tests. The total versions will appear falsely higher than they really are.

If the free Ts are within the bottom half of their ranges, they are not likely to be high enough for you. If there are antibodies present as well, that's a sure sign you're gland is failing to make enough hormone for your needs.

I hope you can find an MD who will do the right tests and who will know how to interpret them correctly.
Good luck!

Last edited by midwest1; 09-12-2008 at 09:37 AM.

 
Old 09-13-2008, 07:09 PM   #13
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Re: TSH flucuation

midwest1- Thanks for the update. I always thought I probably had hypo but they always tell me I don't. (I have been to 2 different doctors regarding this.) My symptoms seem to have gotten worse over the past year, but then they go along with other symptoms such as peri-menopause which I think I am starting as well. So, I wasn't sure if it was that or maybe that I had hypo. I am the youngest of 5 kids in my family and I have more gray hair than all 5 of my siblings put together! My mother grayed early also. I see that this is a symptom as well. I see my dr. on tues so I will see what she says then, or take your advice and check with another dr. Thanks!

 
Old 09-14-2008, 09:24 AM   #14
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Re: TSH flucuation

Yes, that gray hair deal is uncommonly known, but accurate predictor of thyroid disease.
You're welcome. Be sure to let it know what happens next!

 
Old 09-14-2008, 06:38 PM   #15
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Re: TSH flucuation

My only thing that doesn't match hypo is I am not overweight. I am 5'4" and weigh 115 lbs. It seems like all of the boards I read talk about being overweight and not able to lose weight. Can I be hypo and not have this part of it?

 
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