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Old 11-09-2008, 03:26 AM   #1
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Question Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Hi Everyone,

I have had chronic hives for the past six months (on a daily basis) & have recently been taking my temperature before waking each morning & have been averaging 35.7 degrees which is extremely low.

I have had Hashimoto Auto immune for the past six years & my doctors have advised that my levels are okay.

They are as follows:

Free T4 11.4 pmol/L
Free T3 2.7 pmol/L
TSH 3.3 mU/L

I am on a 100 microgram of oroxine per day.

Does anyone what could be causing the hives? Are there any other tests that could be taken to test my thyroid that have not been covered by my GP?

Any help would be greatly appreciated.

Many Thanks,
Kylie

 
Old 11-09-2008, 08:57 AM   #2
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

We need to know the reference ranges your lab uses for those tests before we can know if your levels are good. But I doubt they are, or your TSH would not be higher than about 1.

Otherwise, TPO antibodies - the ones that cause Hashi's - are a known common trigger for urticaria (hives). If your titer is fairly high, that might explain yours. The problem is that there isn't too much you can do about high TPOs. Selenium supplementation has been shown to sometimes reduce them up to a max of 40%. Take 200 mcgs of selenium per day for about a month; then reduce to 100 mcgs daily.

An allergy specialist might be able to help you get a handle on those hives. Make sure he knows about your Hashi's and have him test for the antibodies.

 
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Old 11-09-2008, 09:45 AM   #3
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Are you on Synthroid? If so, is there dye in your pill? I'm allergic to the dye. I got hives until I switched to the dye free pill which is the 50mcg one. I have to cut it into 4 pieces to get the proper dose for me. I wrap it in wax paper & crush it. Then scoop it up with applesauce to take it along with water to drink. The remaining parts of the pill are wrapped up & stored in a med bottle. Fam

 
Old 11-09-2008, 01:55 PM   #4
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Midwest1, the range on the results for my thyroid function tests are:

Free T4 9.0 to 19.0
Free T3 2.6 to 6.0
TSH 0.3 to 5.0

Each of the results are within the range stated although my Free T3 is just (by 0.1).

Famnd, no I am not on Synthroid.

Is testing for TPO antibodies different to the tests that I have mentioned above?

Thank you for your help!

 
Old 11-10-2008, 01:56 PM   #5
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Your levels indicate you are undermedicated. Your TSH should be around 1, not over 3. According to those lab ranges, an optimum level for FT4 would be around 17, and for FT3 would be around 5. (These are just estimates. Each person has their own set of "optimum" levels. But thyroid healthy people certainly have optimum levels much higher than yours.)

Yes, the antibody tests are separate tests from the thyroid hormone levels. Ask for an anti-TPO test to see whether the titer is high and could be responsible for the itching.

If you were to get your FT4/FT3 levels closer to optimum, it could help lower the antibodies, which should help your itching.

 
Old 11-10-2008, 11:16 PM   #6
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Okay. Thank you for this information. I did go to a different doctor yesterday who also indicated these tests where low & is sending me for more. I also have pernicious anaemia so she is testing me for other 'immune markers'? & if she does not find anything odd is going to send me to an immunologist whom she advised me would be so excited to see my symtoms.

Thanks again,
Kylie

 
Old 02-07-2009, 09:12 PM   #7
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Smile Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Hi All,
I am posting an update in case anyone else has this same issue & would like to know the outcome.

I went for further testing of my thyroid in November last year as my hives were getting a lot worse. My TSH had shot up to 12.5. My GP bumped up my oroxine from 100 to 150 & one month later I was hive free! It also happened to be new years day so a nice start to the new year. I have been tested again this week & my tsh is down to 0.8 & my T4 is up to 17, it may take a little while to get my levels balanced, however I am on the right track now.

Also, I went to an immunologist who advised this is common in those people who have vitiligo, pernicious anemia and under active thyroid & can be controlled by keeping the thyroid levels at optimal levels.

Thanks to those who responded, you were well on track with your advise which gave me confidence to persevere with the doctors who didnt want to test my thyroid again.

 
Old 02-07-2009, 10:00 PM   #8
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

Yayyyy!!! Good for you... Great news! Thank goodness for that very smart immunologist you have there. Wish there were more like him in Thyroidland.

 
Old 04-17-2010, 03:47 PM   #9
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Re: Chronic Hives/Low Basal Body Temperature/Hashimoto Auto Immune

I had severe hives for over a year (Feb 2009-Feb 2010) and am now completely hive-free.

I tested negative for allergies to anything and had extremely high levels of anti-thyroid antibodies, but normal thyroid output. Tested negative for celiac's disease, and am an otherwise extremely healthy 23 yo female.

I tried every anti-histamine on the market, prednisone, and zyflo. The hives kept getting worse and the immunologist, gp, endocrinologist and gastroenterologist all told me they could do nothing for me.

I found several medical journal articles through google searches and message boards that referenced two small studies that gave patients like me (severe hives, no medication had any effect, anti-thyroid antibodies) 100 mcg of Synthroid, and for those that didn't respond to this, 200 mcg of Synthoid.

For me, 100 mcg of Synthroid mildly affected the hives. I begged my gp to let me try to increase the dose to 200, just to see if it helped. We started by increasing the dose to 150mcg, and within two days my hives were completely gone.

None of the doctors and specialists I have been to (I live in Manhattan) have been able to explain this, but I've been hive-free for almost three months and I feel as if I have my life back. I weaned off the prednisone a few weeks ago and I feel infinitely better.

As a side note, I have become slightly hyperthyroid as as result of the over-replacement of thyroid hormone, but have not had any side effects. Obviously, this is better than suffering from hives, and in the long term my doctors hope to decrease the Synthroid dose slightly.

I hope this helps someone. I know how terrible and life-changing (for the worse) hives can be, especially how frustrating it is to be told that no one can help you. This is corny, but advocate for yourself- the doctors won't do it for you.

 
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