It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 12-09-2008, 03:25 PM   #1
Senior Member
(female)
 
Join Date: Oct 2008
Location: NY
Posts: 106
REE77 HB User
Questions for anyone who has had treatment for thyroid CA following thyroidectomy

Of course the more you think the more questions you come up with which is driving me nuts. For anyone who has ever had thyroid CA. how did you know if your cancer spread? I see the ENDO next week to discuss treatment & will ask questions but its so weird thinking if it is somewhere else, just scares me.
I know they say its the best kind ( if there is such a thing) but its so scary just thinking you have cancer. I am sure others who have heard those words know where I am coming from. I know the surgeon said they usually do body scans with treatment. For anyone who has gone through this any info welcomed. Thanks

 
Old 12-09-2008, 03:44 PM   #2
Senior Veteran
(female)
 
Join Date: May 2005
Location: NY
Posts: 3,693
Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
Re: Questions for anyone who has had treatment for thyroid CA following thyroidectomy

Yes, they do scans with the rai treatments, and then they can see if there was any spread.

If you have pappillary, it rarely spreads beyond the neck, if at all. Follicular rarely spreads too, and if it does, sometimes to the bones. Either way, the same RAI treatment you have, takes care of it.

Here's how mine went---every nuclear medicine place takes care of this differently/timing, follow up, etc.:
1. I never took meds. until after treatment, but you can take cytomel up until 2 weeks before (make sure to ask the endo for this, makes a big difference)
2. I went on a low iodine diet 2 weeks prior to RAI to make sure it will destroy all tissue.
3. Went to nuclear med place, took a tracer dose, next day they did a scan to determine my dose of RAI.
4. Went back to nuclear med place, took my treatment dose of radioiodine 131, secluded myself for 3 days.
5. Went on thyroid medication, 3 days after treatment dose, had a scan to see if it was working, and if there was any trace of cancer/thyroid tissue anywhere in my body.
6. 1 year later went for thyroglobulin blood work, and took another scanning dose of rai, had another whole body scan to make sure all cancer/thyroid tissue is gone.
7. Stay on high dose of synthroid to make sure my tsh is suppressed and I don't get a recurrence.

You don't have to worry much about a spread, it usually doesn't spread, and if it does, it usually responds to the same RAI treatment you are getting anyway, that's why thyroid cancer is "good" because it responds to the radioiodine so well, and it destroys all thyroid tissue.

 
Sponsors Lightbulb
   
Old 12-10-2008, 10:35 PM   #3
Veteran
(female)
 
Join Date: Jun 2008
Location: Utah, USA
Posts: 313
DR37 HB User
Re: Questions for anyone who has had treatment for thyroid CA following thyroidectomy

Thanks for the info, Reece. I have been wondering that same thing. I've been a little worried about how they can detect it if it HAS spread somewhere else and metasticized (I think that's what you call it). Is it possible for it to turn into a different kind of cancer? If so, the body scan doesn't pick it up because it only picks up the radioactive iodine, right?

Ree, I feel your pain! Just knowing you have cancer is scary, though I am grateful it's the "good" kind. Be sure to write down questions for your endo, I NEVER remember all of mine unless I write them in my planner.

 
Old 12-11-2008, 07:18 AM   #4
Senior Veteran
(female)
 
Join Date: Sep 2006
Location: Ozarks in Arkansas
Posts: 1,828
Oleander53 HB UserOleander53 HB UserOleander53 HB User
Re: Questions for anyone who has had treatment for thyroid CA following thyroidectomy

Ree,

Wishing you the best.....let us know how everything goes..

Sincerely, Oleander

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
CONFUSED with THYROID readings?? I need help? meds do nto seem to be working? bluetou Thyroid Disorders 17 05-12-2011 07:18 PM
Those that have had a Total Thyroidectomy, Questions! deirdre8256 Thyroid Disorders 4 04-04-2009 08:22 PM
Questions about Thyroid Cancer sadie33 Cancer: Thyroid 15 11-12-2007 02:44 PM
Upcoming TT surgery - papillary cancer - questions scoobagirl Thyroid Disorders 6 09-26-2007 05:30 AM
Can anyone please help? I am scared to death... Claire 525 Thyroid Disorders 23 06-12-2007 11:07 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Armour
Cytomel
Levothroid
Levoxyl
Potassium
  Synthroid
Tapazole
Unithroid
Xanax
Zoloft




TOP THANKED CONTRIBUTORS



sammy64 (668), midwest1 (631), FinnMaid (313), Reece (227), lisa789 (196), Tree Frog (80), mkgbrook (72), cd37 (56), ladybud (47), Bran'sNana (44)

Site Wide Totals

teteri66 (1182), MSJayhawk (1015), Apollo123 (913), Titchou (862), janewhite1 (823), Gabriel (763), ladybud (760), midwest1 (671), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 05:41 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!