Thank you to everyone who shares information on here. I found this site a couple of weeks ago and have been soaking up information since then. So this is going to be long. The questions are at the bottom.
I'm a 22 year old female. In May of 2007 I had some health issues and went to see a dr, thyroid levels came back abnormal. I saw an Endo in July 2007. They told me I am hyperthyroid and have Grave's. They started treating me in Sept. 2007. I don't have my medical records from back then, but I do know that my levels were WAY out of wack and they put me on such a high dose of meds to start with that the pharmacist called the doctor's office to confirm before she would give it to me... fast forward a bit I was seen by this Endo (who I found out was actually a fellow) until April 08. My levels were never stabalized and they changed my medication every time I saw her. Long story short it was a nightmare that I'm not even going to get into.
In late March 08 I started feeling horrible. I lost 9lbs in a week and a half. My thyroid enlarged so much I couldn't button the top of a collared shirt. I found an enlarged lymph node on the left side of my neck, under the ear. Felt absolutely horrible. Went to see my Endo. My TSH was 36, but she told me none of my symptoms - extreme fatigue, weight loss, thyroid swell, etc - were due to my thyroid and I should go see my primary care dr. I went to see my primary care dr who of course told me my thyroid was causing everything and I needed to get a second opinion.
Saw Endo at clinic #2 in June 08. He did bloodwork and an ultrasound, and stabalized me on medication. I started feeling a lot better. Thought I had finally found a gem of a doctor because he listened to me and actually explained things... and then I started feeling horrible again.
Between my appointment in mid Sept and 2 weeks ago, I started feeling extremely fatigued again, my appetite decreased to the point that I was eating about half of what I normally would in a day but I was gaining weight, memory problems again, clicking jaw, bruising easily, joint pain in knee, diagnosed with bronchitis 2x. He told me that my thyroid levels are normal, and therefore none of the symptoms I'm experiencing could be related to my thyroid and I should see my primary care doctor. I requested my medical records from him, and found out that he has only been testing my TSH History of thyroid labs that I have access to:
T4, Free (Direct) .87 (0.61-1.76)
Triiodothyronine (T3) 138 (85-205)
TSH 3.168 (0.350-5.500)
Thyroid Stimulating Immunoglo 138 H (0-129)
right lobe measures 2.3 x 1.8 x 3.7 cm. There is diffuse heterogeneity and the gland is markedly hypervascular. There are no thyroid nodules.
left lobe measures 1.9 x 1.9 x 3.5 cm and again is quite hypervascular. No ultrasound nodules.
TSH 5.208 (0.350-5.500)
TSH 2.126 (0.450-4.500)
TSH 1.609 (0.450-4.500) Current symptoms:
Horrible cough that I've had for about a year, it's gotten worse in the last 2 months. It's been accompanied by mucus since that time.
No appetite/feeling full - I've lost about 5lbs in the last week
Bruising easily, sometimes I have no idea I how I got them and they don't go away for a long time
Popping in jaw
Right knee pain
Bones in legs hurt
extreme intolerance to cold, except at night when I'm so uncomfortably hot it wakes me up (no heater, no blankets, 20 degrees outside)
hoarse voice that sometimes cracks - like a pubescent boy
occasional stabbing pain in left side of abdomen
Lymph node in my neck is still swollen, and has been since I first noticed it in March. It's about .5in and rolls like a marble.
I look old lol.. I'm not even sure how to descibe it. One of the kids I work with told me I look like I'm high on drugs. My undereyes are really puffy and dark, despite getting plenty of sleep and keeping my head propped up. Everyone says I look sick.
I do no smoke. I do not drink alcohol or caffeine. I am physically active, but have not injured my knee or any other part of my body. I have very good eating habits.
I saw a new primary care doctor last week. I brought my medical records from the Endo and explained how I'm feeling. I can tell I won't be seeing her long term. She said that I have cough variant asthma (didn't do any testing) and prescribed me a daily inhaler. She also put me on antibiotics (this is the 3rd time in the last month and a half I've been on antibiotics for the cough/mucus). She said that my fatigue is probably from depression due to me being sick for so long. I am a social worker. I know the signs of depression, and am a strong believer in getting mental health assistance when you need it. I am not depressed. My co-workers (who are also social workers) laughed when I told them she said that I'm probably depressed.
I told her that I was concerned that my Endo has only been testing my TSH, and she said that the Endo is a specialist and knows what he's doing
. She also told me that once I'm on medication you don't have to test anything but TSH. She said that she was going to do blood tests to make sure nothing else is going on with me besides the asthma. I asked her what she was going to test and she told me that she's a doctor and that's what she gets to decide
Fast forward to now. I feel even worse. I have zero energy. I'm loosing weight like crazy. I feel like I'm going to hack up one of my lungs. I found a couple more swollen lymph nodes in neck and abdomen, but are much smaller than the one in neck. My blood tests all came back normal except for slightly elevated hemoglobin and RBC - which dr isn't concerned about. Blood Test Results:
Leukocyte count 5.1 (4.0-10.7)
RBC 5.36 flagged high (3.6-5.0 10*6)
Hemoglobin 15.9 flagged high (11.4-15.5)
Hematocrit 44 (36-46%)
MCV 83 (80-98)
MCH 30 (27-34)
MCHC 36 (33-37%)
RDW 12.1 (8.0-18.5)
Platelet Count 238 (140-450 10*3)
Sodium 138 (135-145)
Potassium 4.0 (3.5-5.2)
Chloride 102 (97-108)
Carbon Dioxide 27 (22-32)
Glucose 89 (65-140)
BUN 9 (6-24)
Creatinine .63 (.50-1.40)
Calcium 9.3 (8.4-10.2)
Total Protein 7.8 (5.8-8.0)
Albumin 4.7 (3.7-5.1)
Bilirubin, Total 1.0 (0.2-1.1)
AST 21 (6-35)
ALK Phos 67 (30-125)
ALT 16 (8-40)
GFR above 60 (60-100)
SED Rate 4 (0-20)
Rheumatoid Factor Negative
ANA Screen Negative, Less than 1:40
I told my doctor I'm not taking the inhaler until she tests me for asthma. I'm seeing her on 1/2/09 for the pulmonary function tests. I'm just really lost about where to go from here. My questions:
Have any of you experienced these symptoms in relation to your thyroid? If so, have you been able to get relief from them after getting your thyroid under control?
I didn't realize mucus could be related to thyroid until I read about it on this board... I know this is kind of gross, but could any of you who have experienced it describe your cough/mucus? (TMI, I know!)
Should I keep pushing to have my other thyroid functions tested?
Are there other tests I should be asking my doctor about? I really feel like no matter how much I read about the thyroid I don't have the knowledge to not just get jerked around by the doctor.
Any other thoughts or comments you all have would be greatly appreciated! I just want to get this worked out. My thyroid has wrecked havoc on my life. I dropped out of college last year because I couldn't remember simple things like where my classes where, what days/times I had class, when I had assignments due even though it was always on the same day for a year. I really want to feel well again, and I want to go back to school.
Thank you sooo much!