Sorry you are not feeling well. I have several cysts. The one on the left side got so large my endo doc aspirated it. It did relieve some of my symptoms but not all. The cyst on the right side is small. At times my body shakes and there is burning in my neck/throat. I'm on 137mcg synthroid and now have to take anti anxiety meds to help with the other symptoms.
Whether the symptoms are caused from the cysts or the synthroid the doc did not say. Do know the anti anxiety meds help and can't be without them.
I am trying to avoid surgery. Makes me think the body knows there is a cyst there and is fighting it. Other than that, I have been given no explaination for the odd symptoms with no positive test results.
Maybe someone else will reply and shed more light for us both.
My thyroid levals are/were normal/. But the ultra sound shows the cysts/goiter so I take synthroid to supress the thyroid. Going back for check up in Feb. But, my nerves are terrible. Wish I could comfirm it was from the thyroid. Nonetheless I have to be medicated to overcome the side effects of the synthroid.
Hope this helps and more come to the rescue.
I have a 2.5 by 2 cm nodule on my right side and a small cyst on the left side of my thyroid. And yes, my tests were "normal."
if my thyroid is normal what in heck caused such a growth? Hmmm? My surgeon says it needs to be removed. I have thyroid cancer in my family but my FNB was benign. But he doesn't want to 100% trust that.
Most endos want to put you on meds and watch and see what happens to the growth. Would they do that for themselves?
I'll tell you what happens. They screw you up hormonally. And the growth does not shrink much or it continues to grow and choke you like tree roots.
This is stupid. Do you really want a big growth on your thyroid that someday
*will show and make you look grotesque?
*may become cancerous?
*choke you everytime you try to eat or drink?
*create problems with breathing and coughing, night sweats?
*make you crazy because it creates problems with all sorts of functions in the body?
*makes your eyes bug out?
*makes you lose too much weight?
*makes you gain too much weight?
Of course no surgery is without risk. that is the dilemma. what to do, what to do? All you can do is decide how it is making you feel. My growth makes it so hard to eat. And drink most times.
I am reading a lot about anxiety, pounding heart, heavines in chest and other symptoms. I though my thyroid was under control with levothyroxine, but looking back over the last six months I am beginning to wonder. Before I was 40 I was found to be hyperthyroid; it was left untreated. Later after an early menopause at age 42 I began having symtoms of hypothryroidism which was confirm by blood test. I have been taking med. for since. I have had TSH blood work done throughout the years which always comes back normal. I just recently had a TSH do to other problems ie shortness of breath, fatigue... but it and the other blood work came back normal. There was a point that I really felt so terrible that I thought I might even die. I know that sounds strange but thats how tired I was. I had a stress echocardiogram and it came back with "Noted increase pulmonary hypertension and triscupid regurgitation." Since then I have been on a journey trying to find out what that was and trying to get answers to how I was feeling. I was sent on to a Pulmonary Spec. who has ordered a variety tests. The only one I have an answer on so far is the right heart cath. which turned out be be on abnormal pressures. This is a relief of course, but still do not understand why I am so uncomfortable and fatigued. One explanation for some of it is drug interaction. My primary doc. had me on Tramadol for my spine pain and Lexapro for anxiety. Together they can cause the shortness of breath, but I have not taken Lexarpo in awhile now and although I do not feel as bad as I did I still feel short of breath especially when I eat, feel anxious, tightnes in chest...... I am reading about FT4 amd FT5. I am not sure about anything outside of TSH. How do you get the docs to even consider this poss.? It seems like they only want to consider one having a panic or anxiety disorder, not what could be causing these symptoms. If anyone has any insight let me know. I just did a sleep study and am waiting for results of. I have an upcoming CT scan and Pulmonary function test. I am looking for other poss. answers. I am 56 and have been in otherwise good health except for degenerative disc disease. I have had issues with anxiety throughout my life, but have been able to function well with it.
These stories are sure depressing and scary. It makes me feel like i should do nothing.
My problems started more than 7 years ago when I started choking on food.
I just thought I wasn't chewing enough. then 6 years ago I had 6 weeks of fever, chills, muscle aches, and they never could figure out why i was experiencing that. I couldn't eat or sleep most days or nights. It was horrible. No one ever said a word about my thyroid being out of wack. And it probably was.
that went away and then 3 years ago my right eye bugged out. My doc did blood work and of course my thyroid tests were "normal". And yet I had one of the classic symptoms, the bulging eye!!!! Huh?
since then I have had anxiety, weight gain, racing heart, hormone issues, unexplained rashes, and a swollen left leg from the knee down. all these things resolved themselves over time.
But, 8 months ago, lymph nodes in my neck swelled and they have not gone down. I cannot get anyone to take this seriously. However, from the scan on my nodes they saw the thyroid nodule.
Now THIS they are taking seriously.
But what about my neck??? I have papillary thyroid cancer in my family which is why the ENT is keying in on the thyroid. what if there is cancer in my lymph nodes? how will they know if they don't do a needle biopsy? I am ready to bop somebody on the head...and say get a clue!!
I believe that my thyroid has been working overtime and not well for 7 years. And now it has affected every thing.
I know surgery is risky, but something is not right when they cannot explain what causes the thyroid to grow a nodule or swell up. If your thyroid is normal why are you feeling so lousy and WHY WHY is there a growth? If you had a growth in your colon or lung they would not just "give you meds."
I think the answer is they don't know why the thyroid does this. And the way they try to combat it with drugs messes you up elsewhere.
I will know more when I go to the ENT next week. but this time I am taking my blood work from the Endo and also my husband. I need another set of ears besides mine.
Wow, I am really seeing a lot of anxiety and uncertainty with thyroid related issues. You have had some serious symptoms. Its good that you have a endo spec. looking into it. Sometimes I think it is just that - They are Uncertain. I think the think things but do not want to concern the patient so they chose to keep you in the dark thinking they are doing you a kindness but not scaring you. I am with you; it is much more difficult to be in the dark. I would rather deal with something scary that is known than to feel like they dont know or that I am just being kept in the dark.
Keep pursueing it though. One has to be their own advocate and push on even when the docs seem to be letting it ride. The squeezy wheel gets the grease. If they found a nodual on my thyroid I would definitely push answers of some kind. I have had the gland on the right side of my neck swell off and on for years. I have mentioned it to the doc. but they act like its normal or no big deal. I have always wondered though. I reallly thought my thyroid was in good control with the normal TSH but just recently am beginnning to wonder when all other tests for a variety of symptoms come back normal. I am not sure what an ENT is. Let me know. Good luck with it. Knowledge is Power.
Thank you for all of your input! I am happy this thread has alot of feedback since i need to have a few real people's experiences under my armor when I have my neck checked again by the thyroid specialist...
I wanted to note that recently Oprah, the famous TV Host in the USA came out openly about her weight struggles and turned out to be a thyroid condition.
Oprah went to see 4 DOCTORS until they found out it was a thyroid condition, and you would think that someone as worldly-connected as her, would have known a doctor who would have found out first-handedly...
Anxiety, jitters, gross fatigue, and insomnia or sleep disorders are the main general symptoms associated with a thyroid condition...
As another poster illustrated we really need to be our own advocate!
I heard about Oprah. You would think she would be able to access the best in health care yet even so it sounds like she went through uncertainty, most likely feelings of anxiety. I have not brought up my wondering about a out of wack thyroid yet. I had a stress echo cardiogram after complaining of what I thought to be shortness of breath and heaviness in my chest and the results from the dr. was noted Pulmonary Hypertension and Triscupid Regurgitation. I have been on this rollerkoster ever since trying to find out if I have PH or what, but a recent right heart cath. says no. I am relieved. This is what makes me think maybe my thyroid is not as controlled as I have thought. I never knew about the other blood workups before, thinking if the TSH was normal than it was normal. I have to go through a CT scan and Pulmonary function test yet but I am quite confident that they will also come out normal since my oxygen levels are normal. I think I will bring up thyroid to the Pulmonary Specialist when I see him for the results of all of this even though it is really not his field. Good luck with the neck check.
The fact that Oprah had trouble getting someone to believe her tells me everything.
docs make fun of you if you say I am gaining because of my thyroid. Don't you know Oprah's docs looked at her weight gain and said "You eat the wrong foods, it's not the thyroid or menopause..."
I have gained 3 lbs a year on average for ten years. That is two jean sizes. I used to be skinny and thought i would never have to worry. Oh brother.
And yet unexplained weight gain could be due to a wacky thyroid. But usually by the time this happens to you, you are 55, in menopause, a grandmother and they look at us so sadly like we are off our rockers.
My ENT did a quick situp in his chair when i said "OH by the way, my brother had papillary cancer." After that news and the ultrasound, I can't get rid of him.
he thinks he was about to send me on my way with the cancerous neck nodules....saying oh, it's nothing. But news about the thyroid cancer was different.
No doc wants to miss cancer in a patient.
Honestly between the Endo, my internist, and the ENT, they've got me talking to myself...
i would just like to get the SAME answer from the three of them.
It is totally frustrating. I had an early menopause finished by age 42. I was quite thin before that. I was told I had hyperthyroid but it was left untreated. Then after menopause the weight came on. I felt so sluggish totally not like the self I was use to. I felt like I was going nuts too because I was treated the same until finally a doc. did do the blood work and found my hyperthyroid turned into hypothyroid. How wierd. It seems like that darn thyoid causes all kinds of havic when out of balance. Since this spring I have lost quite a bit of weight again and have had problems with nervousness, heart palputations, heaviness in chest and on. The lack of explantion from the docs drive us all crazy. I am just trying to get the heart doc. to explain to me what moderate trycuspid regurgitation means to me. Like should I exercise, not exercise or does it matter at all? It does drive on crazy
Have a good one. Keep smiling; you've got company out here. We all need to keep supporting each other in all of this.
I have a male friend who has gone through much of what you mentioned with symptoms. He was finally diagnosed with Graves disease after he had a thyroid stimulating immunoglobulins test (another name for TSH receptor antibody test). This test shows if your autoimmune system is attacking your thyroid. Hope this info helps.
Thank you for all those who contributed to this thread.
Now, I will be seeing a doctor who I found on the American Thyroid Association and have an appointment in about 10 days.
So the only thing I had show up was a cyst and all of my previous, TSH, T3, T4, antibodies test for hashimoto all came out clean.
What should I ask or need to know when I make this appointment, since I am really afraid that I will just get passed by as some freak for having really bad symptoms of Hypothyroid yet all the tests are normal?