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Old 02-20-2009, 04:21 PM   #1
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Small thyroid gland? Ord's Thyroiditis?

My doctor told me my thyroid gland is too small. I am positive for thyroid antibodies, but normal TSH, T3 and T4. After coming here and reading posts and doing research on the internet, I kept coming across ENLARGED thyroid, nodules, goiters, that are associated with Hashimoto's.

I did finally come across something about a disease called Ord's Thyroiditis. Has anyone heard of this? From what I read, it sounds a lot like Hashimoto's, but is more common in Europe than the U.S. As a matter of fact, it said that more people have Ord's in Europe than Hashimoto's.

I'm wondering if this is what I have since I am positive for antibodies, but thyroid is small?

 
Old 02-22-2009, 03:49 AM   #2
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Re: Small thyroid gland? Ord's Thyroiditis?

Hi,

I've never heard of Ord's before, but I thought your post was interesting. I might check that out. I have Hashi's and I was diagnosed almost 6 years ago. About 15 years before that, when I was having my annual gyn exam, they always checked your thyroid, by getting behind me, telling me to swallow, while they felt your thyroid with both of their hands.

That particular check up, that Dr. said I had a "very small thyroid gland" and, "I could hardly feel it". I knew nothing about Hashi's or antibodies,...nothing back then, other than that my mom and aunt had it too. I've always wondered about why they said that. When I got dx'd, my new endo manually examined it and didn't say anything. Later I had it ultrasounded and other than nodules all over it, it didn't report anything unusual about the size. I have a copy of that report with the measurements and all, and I've never really compared it to anyone else's. I just always wondered why that Dr. said that, and you're the only person I've read of to say the same. I'm sure my condition is Hashi's tho, that's for certain.

 
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Old 02-22-2009, 04:16 AM   #3
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Re: Small thyroid gland? Ord's Thyroiditis?

What I've understood is that it's more common for the thyroid to finally shrink than to grow in these parts of the world at least I had an enlarged thyroid 17 years ago (my Hashi's was probably at it's early stages) - then it shrunk to it's normal (? - it wasn't examened) size and it probably stayed that way (in an ultrasound nearly 4 years ago it was declared to be "normal") until I went to see an endo just over 3 years ago he couldn't find the darned thing anymore (and he's a top notch doc as far as these parts of the country are concerned) - so it has become non existant.

BTW, in Finland (and I believe in northern Europe at least) Hashimoto's thyroiditis stands for this type of autoimmune thyroiditis that makes one's thyroid grow - this "regular autoimmune thyroiditis" is referred to as "chronic thyroiditis" or "autoimmune thyroiditis".

Last edited by FinnMaid; 02-22-2009 at 08:08 AM.

 
Old 02-22-2009, 09:22 AM   #4
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Re: Small thyroid gland? Ord's Thyroiditis?

My diagnosis is Hashi's, yet my own gland has never been enlarged. No one ever mentioned it was small, and no one ever mentioned Ord's to me.

Recently, I looked into the differences and similarities between Hashi's and Ord's because of someone else's question about it. In a nutshell, both are caused by the same antibodies, but the cellular changes within the gland are different. Both diseases cause hypothyroidism, which is treated exactly the same no matter the cause; so to my mind, it doesn't matter which diagnosis is made, or even whether the wrong diagnosis is made - a possibility in my own case.

 
Old 02-22-2009, 10:41 AM   #5
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Re: Small thyroid gland? Ord's Thyroiditis?

Quote:
Originally Posted by midwest1 View Post
Recently, I looked into the differences and similarities between Hashi's and Ord's because of someone else's question about it. In a nutshell, both are caused by the same antibodies, but the cellular changes within the gland are different. Both diseases cause hypothyroidism, which is treated exactly the same no matter the cause; so to my mind, it doesn't matter which diagnosis is made, or even whether the wrong diagnosis is made - a possibility in my own case.
Yes, from what I read, it is your body attacking your thyroid in both diseases, but for some it causes enlargement (Hashimoto's) and in some it causes shrinkage (Ord's) and the thyroid gland can completely disappear.

I was confused by my doctor saying mine was too small when everything I read said Hashimoto's causes enlargement and goiters. And I guess it really doesn't matter what they call it if they treat it the same.

 
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Old 02-28-2009, 08:23 PM   #6
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Re: Small thyroid gland? Ord's Thyroiditis?

Hi- My Hypothyroidism was accidently diagnosed, although I had been having very clear symptoms, and I was I was complaining about it. The Dr never told me it could be caused from hypothyroidism It seems he knew I was subclinical, he says he mentioned it to me, but there was no discusiion about it. I had been seeing a endo regularly for diabetes for over ten yrs, and I also have heart problems having had a MI and CAD and valve problems. He finally put me on meds when My TSH went to 40 and my T3 and T4 were low. He does not test free T3 at all, I am postive for thyroid antibodies and he has never told me if it is Hashis, thyroiditis, or what. He did do a ultrasound due to me complaining of a sore throat which I get off and on all the time. The ultrasound showed a undersized thyroid, I asked what that meant and he said its shrinking, that the thryoid is making the hormones I need and the antibodies were attacking the thyroid and shrinking it. End of story. He isnt interested in increasing the meds more or being aggressive about it due to my heart problems as he said he is afraid of causing an arrythmia. He also said if I wasnt 50 and was younger and looking to have a baby then he would be more inclined to be aggressive about treatment. I had looked online and only came across articles on goiters and nodules and enlarged thryoids. I think I have learned more coming here. when I mentioned symptoms in the past before I knew what was wrong and now, he acts as if he doesnt know what am talking about, I find this difficult as if I cant really speak to him about this cause it almost seems like he thinks Im making it up. Ive seen for over a decade for my diabetes and always trusted him. When I have mention this to 2 other doctors I see regularly they tell me he is one of the best endos, I appreciate his concern for my safety but feel a little in the dark. I ask for copies of my tests and I guess I should ask for a copy of the ultrasound too. Im glad someone finally mentioned a undersized thyroid.

 
Old 03-01-2009, 07:27 AM   #7
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Re: Small thyroid gland? Ord's Thyroiditis?

It is so annoying and disheartening when you feel that your doctor doesn't hear you. I'm wondering if you could find another doctor that not only specializes in diabetes, but thyroid as well. Or maybe go to this doctor for diabetes and another for thyroid?

It seems most people's thyroids enlarge. I guess I've always got to be different

I hope you get the help you deserve!

 
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