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Old 05-14-2009, 02:57 PM   #1
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Angry I'm so scared ~ Pain in right-front of neck for 12 months...

Hi there,
I found this site after searching the internet for hours re my symptoms.
For a little background ~ I've been suffering with constant pain and severe tenderness to the touch down the central-right area of my neck for almost a year now... especially around the right side of my adams apple and below, and under my jaw.
(Unfortunately for me, when it 1st started i had just moved house and had to change my doctors to what i can now term a totally negligent doctors surgery, who basically told me i was a hypochondriac and that it would go away on its own. Eventually, after out-of-hours emergency visits and countless doctors appointments i was treated for a possible viral throat infection (treatment did not stop my symptoms, and i was later instructed that no, i did not have a viral infection) and still treated like i was basically lying).
After around 8 months of suffering with these awful external pains in my neck, under my chin, around the right side of my adams apple and at the right-front base of my neck (plus difficulty/pain when swallowing, hoarse voice, a feeling of a lump in my throat, and for a while even difficulty in breathing) i had such a bad turn that i ended up in A&E at hospital twice, totally terrified and in agony.
The A&E doctors sent me for blood-tests (i wish i kew which ones) and a chest x-ray, plus a physical examination of my throat with her torch and could find nothing wrong ~ but told me i needed to get myself referred to an ENT specialist.
Eventually my mum had to complain to the practice manager at my doctors surgery to get a doctor to refer me to ENT.
At last i saw the ENT specialist who ordered more blood-tests, and on 2 seperate occasions stuck a lighted camera up my nose to look at part of my throat. She prescribed me Omeprazole PPI and Peptic liquid for possible GERD/LPR, which i've now been taking for 2-3 months ~ with no relief.
I had an Endoscopy yesterday with a Gastroscope which showed all of my gullet and stomach to be completely normal, so the ENT was wrong ~ it is not GERD or LPR.

Now i'm absolutely *terrified* that it could be thyroid cancer or some other cancer.... im also terrified that it is being left for so long (12months+) and i desperately dont want it to spread if it is cancer.

The pain in my neck/under my chin/around my adams apple is just horrible ~ whenever i swallow, talk, eat, drink or move my neck, im constantly reminded of it ~ i would describe it as *extremely* tender to the touch (i cant even very gently rub moisturiser into or cleanse my neck properly anymore b/c it hurts me too much), plus theres a constant ache and sense of pressure/strangling sensation and stabbing/sharp pains also from time to time. ... along with a feeling of a lump in my throat and difficulty/pain in swallowing, and on-and-off pain in my right-chest and back of neck/ear. I also occasionally get awful pain in the back of head/base of my skull.

Im sorry for such a long message ~ im just so very scared about this and iv been suffering so long with it i feel drained and desperate as the doctors arent working quickly enough to help me.

Do my symptoms sound like anything you have heard of or personally experienced?.. my web searches keep sending me back to potential thyroid cancer

Please help ~ im terrified. xxxxxxx

 
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Old 05-14-2009, 03:05 PM   #2
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

CONDENSED LIST OF SYMPTOMS:


*Constant moderate to severe pain and severe tenderness to the touch: all down central-right side of neck (down side of adams apple, under my chin and base of neck etc)
*Intermittent mild to moderate pain and tenderness: in right-side of upper chest (around the tip of the bone), back of neck and base of skull.
*Tightness/strangling feeling around neck
*Feeling of lump in my throat
*Pain and difficulty swallowing saliva, food, drink etc
*Hoarse voice
*Extra sharp pains if i shout, stretch my neck in certain angles and sometimes just the movement of my neck when i talk.

I had lots of blood-tests a month or two ago (thyroid function, thyroglubulin, calcitonin etc) which all came back negative, but i've heard you can still have thyroid cancer, thyroiditis, nodules etc with negative blood-test results, which again has terrified me.

I'm still fighting to be referred for a scan to my neck area/thyroid, but i did have a chest x-ray which also came back normal.

Can anyone help me with any advice or confirmation, as im going out of my mind.

Thanks so much. xx

Last edited by Xiancub; 05-14-2009 at 03:24 PM.

 
Old 05-14-2009, 03:54 PM   #3
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Hi,

You need to get the results of your thyroid blood tests and post the results on here together with the reference ranges.
Sorry I can't help you more, hon.
__________________
Good luck, Devonbayx

 
Old 05-14-2009, 04:02 PM   #4
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

I have had symptoms similar to yours for over 6 years now. I had swallowing tests, ear/nose/throat tests and so forth. No cancer; so maybe you can rule this out, as something would have surely shown a mass of some sort. I'm sure the thyroid posters will fill you in on symptoms related to that. I know, it feels like something huge is in there.

I have severe osteo posterior and anterior in addition to reverse lordosis in cervical spine, as well as arthritis in my jaw. This is what is causing my symptoms and on a day to day basis for this long, I understand how you feel as every swallow reminds you of the problem. It slowly worsens but I can still swallow except vitamins or pills need help to go down.

I am posting this not to cause you further anxiety, but to give you another avenue to explore. If you should decide to look at this, approach it as calmly and reasonably as you can with your doctor.

choc

 
Old 05-14-2009, 04:16 PM   #5
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by trychocolate View Post
I have had symptoms similar to yours for over 6 years now. I had swallowing tests, ear/nose/throat tests and so forth. No cancer; so maybe you can rule this out, as something would have surely shown a mass of some sort. I'm sure the thyroid posters will fill you in on symptoms related to that. I know, it feels like something huge is in there.

I have severe osteo posterior and anterior in addition to reverse lordosis in cervical spine, as well as arthritis in my jaw. This is what is causing my symptoms and on a day to day basis for this long, I understand how you feel as every swallow reminds you of the problem. It slowly worsens but I can still swallow except vitamins or pills need help to go down.

I am posting this not to cause you further anxiety, but to give you another avenue to explore. If you should decide to look at this, approach it as calmly and reasonably as you can with your doctor.

choc
Thanks so much for your reply ~ i feel so alone and desperate b/c since i moved to a new doctors surgery i'm not getting taken seriously or getting any help at all really ~ i was only referred to ENT after 10 months of suffering because my mother (who has very little to do with me, and i dont have any other friends or family locally, hence feeling so alone) threatened the practice manager with taking it to the GMC for negligence.

Could you tell me a little more about what you're suffering with, please?.. (what the symptoms are, how it's diagnosed (what tests etc show you have this) and how its treated/managed?) ~ it would give me something else to research and focus on rather than constantly reading the worst about possible Cancer.... i cant lie here in pain doing nothing any longer, its literally driving me crazy... id be so grateful
Thanks so much for your response
Love, marie xxxxxxxxxxxxxxxxx

Last edited by Xiancub; 05-14-2009 at 04:28 PM.

 
Old 05-14-2009, 04:20 PM   #6
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by devonbay View Post
Hi,

You need to get the results of your thyroid blood tests and post the results on here together with the reference ranges.
Sorry I can't help you more, hon.
Thanks for your reply ~ it means so much to me.
Can you tell me the proper names of the thyroid tests i need to find out about please?..

I rang my doctors surgery today to find out whether id had thyroglobulin and calcitonin tests and the receptionist didnt have a clue which tests they were (theyr called something different she said) and it was only b/c she had a nurse sitting beside her that i managed to get out of her that both were 'normal'.

If you could give me the medical/scientific terms for all of the relevant thyroid tests that would be wonderful... at least then i can tell the clueless receptionist what she's looking for!

Thanks so much
Marie xxxxxxxx

 
Old 05-14-2009, 05:02 PM   #7
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

You would have a level of pain/discomfort in your neck like pinched nerves. I was in a car accident a year previous so the whiplash made it worse. I had xray and MRI done and it showed multiple problems in spine.

If you have no problems at all back there, no problems with hands or fingers, then it would be difficult for a dr. to want to investigate further.

If you are under alot of stress and anxiety, this could really tighten up the muscles in your throat. Try putting some heat on it (yes your throat) like a microwavable bag while laying down to see if it loosens up those muscles.

choc

 
Old 05-14-2009, 07:05 PM   #8
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Most thyroid nodules can be palpable or visible on the neck during swallowing. Thyroid can be painful during the inflammatory process that is evident by increased ESR rate or elevated levels of TPO antibodies in the blood. RAI uptake scan shows low 24 hours uptake and patchy distribution of tracer.

 
Old 05-14-2009, 11:48 PM   #9
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by trychocolate View Post
You would have a level of pain/discomfort in your neck like pinched nerves. I was in a car accident a year previous so the whiplash made it worse. I had xray and MRI done and it showed multiple problems in spine.

If you have no problems at all back there, no problems with hands or fingers, then it would be difficult for a dr. to want to investigate further.

If you are under alot of stress and anxiety, this could really tighten up the muscles in your throat. Try putting some heat on it (yes your throat) like a microwavable bag while laying down to see if it loosens up those muscles.

choc
nope its not my muscles ~ like i explained below iv been in constant pain for a year now.. all down the centre and centre-right of my neck, and its literally too painful to touch.
It hurts when i swallow (externally) and hurts when i talk ~ i barely get any relief from it... its not something that will just go away on its own now after a year of gradually getting worse.
I dont think your illness sounds like what i have.. but thanks anyway. xxx

 
Old 05-14-2009, 11:51 PM   #10
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by 898 View Post
Most thyroid nodules can be palpable or visible on the neck during swallowing. Thyroid can be painful during the inflammatory process that is evident by increased ESR rate or elevated levels of TPO antibodies in the blood. RAI uptake scan shows low 24 hours uptake and patchy distribution of tracer.
sorry, could you say all that in laymans terms please b/c i really didnt understand much of it (sorry, im not up on medical jargon...

What inflammatory process?
What is increased ESR rate?
What is an RAI uptake scan? (a thyroid scan?)

thanks

 
Old 05-14-2009, 11:57 PM   #11
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by 898 View Post
Most thyroid nodules can be palpable or visible on the neck during swallowing. Thyroid can be painful during the inflammatory process that is evident by increased ESR rate or elevated levels of TPO antibodies in the blood. RAI uptake scan shows low 24 hours uptake and patchy distribution of tracer.
PS im literally too scared to feel for lumps ~ i know this sounds ridiculous, but it hurts so much just to lightly touch the area of my neck thats hurting, and im terrified of what i might find there... i know this has been sticking my head in the sand, but i have yet another doctors appointment tonight and i will ask him/her to feel for me *thoroughly* this time (last time they felt mainly along the sides of my neck and my lymph glands rather than the front and very front-right, b/c at the start i couldnt distinguish exactly where the pain originated from and as it was shooting up to my ear and down to my collarbone it seemed to be coming from further over the right than it is ~ after having this pain for so long now, it seems to have homed-in to the exact right circumference of my adams apple and below (and under my jaw directly above this).

Can anyone suggest a list of ailments that could cause this, so i can make suggestions to my doctor? ~ i dont seem to be getting as many clear possibilities here as id hoped

Has *anyone* been through this same pain? ~ is be so grateful if you could write here, nomatter what the cause...

thanks again.xxxxxxxxx

 
Old 05-15-2009, 04:36 AM   #12
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

You have never had a scan or ultrasound, or even an xray of your neck area---just the chest? I know, you use NHS, but if you can afford it, maybe you can go private to get an ultrasound with a private ENT? I think it's the only way to put your mind at ease. This may not even have anything at all to do with your thyroid, as there is pain under your chin, which is a long way from the thyroid.

In the meantime, while you are searching for a diagnosis, it sounds like you are very uncomfortable, with swelling, and no matter what it's from, you may benefit from advil/motrin to reduce the swelling (take it with something to coat your stomach like tums).

I had thyroid cancer, and I found it through pain, but it was right in the spot of the nodule, which was on the left side of my neck---it was very specific, and it wasn't from the cancer but from the swelling and the compression of the nodule on my muscle. That's why I don't think, unless you find a nodule (mine was obvious I just hadn't noticed it, but it was in all my photos), you should put your mind at ease for thyroid cancer for now.

Also, remember, everything on the internet leads to cancer, it's designed to tell you the worst case scenario, and this way you see a doctor (usually in a panic!), also, if it were thyroid cancer, that wouldn't be as frightening as other cancers, it's much more easily treated, and it's curable!

Last edited by Reece; 05-15-2009 at 04:56 AM.

 
Old 05-15-2009, 09:26 AM   #13
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

I really appreciate Reece's post; very informative and helpful!

Xiancub, I don't mean to bug you here, but I just read your last post and am wondering if you still can have an issue in that neck without it affecting arms or hands yet. If by some remote chance you have any jaw problem combined with neck problem on the same side, it can be very painful in those nerves. I'm sorry that it's so painful you don't even want to touch it. I remember when my symptoms first became evident, other than the tumor theory, it felt like I had swallowed a sharp chicken bone and it was lodged in the neck! But then there were different types of pain, discomfort and sensations over time and with arthritic flare-ups. Talking, singing, even eating are painful and alot of work, at times as it has weakened the muscles a bit.

Anyway, I'm sorry to carry on here again, am just hoping that you get some satisfaction at your appointment today!

choc

 
Old 05-15-2009, 06:22 PM   #14
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by trychocolate View Post
I really appreciate Reece's post; very informative and helpful!

Xiancub, I don't mean to bug you here, but I just read your last post and am wondering if you still can have an issue in that neck without it affecting arms or hands yet. If by some remote chance you have any jaw problem combined with neck problem on the same side, it can be very painful in those nerves. I'm sorry that it's so painful you don't even want to touch it. I remember when my symptoms first became evident, other than the tumor theory, it felt like I had swallowed a sharp chicken bone and it was lodged in the neck! But then there were different types of pain, discomfort and sensations over time and with arthritic flare-ups. Talking, singing, even eating are painful and alot of work, at times as it has weakened the muscles a bit.

Anyway, I'm sorry to carry on here again, am just hoping that you get some satisfaction at your appointment today!

choc
Thanks so much for your reply ~ i guess its a possibility, but i've never heard of your conditions before, so im really not sure

I went to the docs tonight and at last i managed to get myself referred for a thyroid scan ~ it was a different doctor and i told him what i felt i needed rather than vice-versa and i was very strong about it, as i was advised to do on another support forum... thank goodness this doctor listened and agreed that my symptoms *were* indicative of a number of thyroid conditions, eg Thyroiditis/Goitre, Hypo/Hyper-Thyroidism, Papillary Cancer etc.. He also agreed that all of the above conditions can be present despite apparently 'normal' blood results.
Of course nobody knows what is causing my neck/thyroid-area pain, occasional lymph-node pain on the same side, feeling of lump in my throat, feeling of strangling/pressure/swelling of the neck, tiredness but inability to sleep properly, hot and cold flashes, loss of weight for no reason, brain-fog/constant confusion etc etc.... but i'm confident that a scan is obviously what i need to be either diagnosed or cleared of any thyroid diseases.

I'm still scared and hurting but positive action and a feeling that something is being done to diagnose then treat me is helping me to deal with this a little bit better in my own head ~ the unknown is so terrifying.

Thanks so much for your response,
love marie xxxxxx

 
Old 05-15-2009, 06:40 PM   #15
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Re: I'm so scared ~ Pain in right-front of neck for 12 months...

Quote:
Originally Posted by Reece View Post
You have never had a scan or ultrasound, or even an xray of your neck area---just the chest? I know, you use NHS, but if you can afford it, maybe you can go private to get an ultrasound with a private ENT? I think it's the only way to put your mind at ease. This may not even have anything at all to do with your thyroid, as there is pain under your chin, which is a long way from the thyroid.

In the meantime, while you are searching for a diagnosis, it sounds like you are very uncomfortable, with swelling, and no matter what it's from, you may benefit from advil/motrin to reduce the swelling (take it with something to coat your stomach like tums).

I had thyroid cancer, and I found it through pain, but it was right in the spot of the nodule, which was on the left side of my neck---it was very specific, and it wasn't from the cancer but from the swelling and the compression of the nodule on my muscle. That's why I don't think, unless you find a nodule (mine was obvious I just hadn't noticed it, but it was in all my photos), you should put your mind at ease for thyroid cancer for now.

Also, remember, everything on the internet leads to cancer, it's designed to tell you the worst case scenario, and this way you see a doctor (usually in a panic!), also, if it were thyroid cancer, that wouldn't be as frightening as other cancers, it's much more easily treated, and it's curable!
THanks Reece ~ I guess i just like to prepare myself for the worst so that i can avoid any shock and deal with things better if i need to.. and any other diagnosis would be a relief! (can you tell im a pessimist? lol

But you're right that nobody knows yet whether its cancer or not ~ like i say, it could be number of things, but im hopeful that the Scan that iv finally managed to get referred for tonight will shed some light at last as to what it is, or isnt ~ (i basically said i wasnt leaving the docs until i got it.. not my usual style, but enough was enough, i couldnt be left to suffer w/o proper medical attention any longer.. thank goodness this new doctor was so much better than any iv previously seen.)

Regards the pain under my chin, on the same side as im getting pain around my thyroid, i presume it's my lymph-node which is acheing due to me being so poorly & in pain for so long ~ even a common cold makes your lymphs ache... so this could be an explanation..
The 'main' pain is around the right side of the thryoid & is fairly constant.. my right lymphnode is probably acheing more as time goes on... I also get a pain radiating up my neck into my ear & behind my ear/base of skull.. all on the right side only (which i have read can also happen with thyroid pains)..

I dont know, im not a doctor, i can only go by the info iv researched from the net unfortunately, but if anyone has any other potential non-thyroid (or thyroid-specific) causes for these pains and my other symptoms then id love to hear about them, as it seems i need to personally make diagnosis suggestions to my Doctors to get their brains working on the right path for me.

P.S> Reece, what is Advil? I'm English (in England lol) and its not a name i've ever heard of here ~ is it a painkiller? Ibuprofen?, or...?
Thanks so much
Marie xxxxxxxxxxxxxxxxxxxxxxxxxxxx

 
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