Maybe have your daughter's antibodies tested as well? I ran hyper for years until it just gave out and then went to hypo. Hyper and hypo are just the effects of the main problem of the thyroiditis. At least she can keep an eye on it, I had my daughter checked and she is very young, without symptoms as well. Most immunologists will suggest cyclosporine. After much research, I discovered that that can give you cancer, and you really shouldn't be on it unless you are about to die. That is why I went the surgery route. What the immunologists don't see is the DIRECT connection between the chronic urticaria antibody and the TPO antibodies. Thus the thyroid disease actually causes the hives, if they are the autoimmune structure- I don't remember if it is IgG or IgE receptors, but one is autoimmune and one is allergic. The autoimmune receptor (you can google it) means your body is responding to dead thyroid tissue. In your case, synthroid suppression may take care of it or you might have to go in and remove the rest of it and then do suppression. If you have a normal TSH you will have problems. Most immunologists do not recognize this connection and you should know that before you see them. I saw 4 that could not (or rather, were not willing) to help my situation, i.e. actually correcting the source of the problem, and not just putting band-aids on it. You have to fix the problem at the source, not just get rid of swelling and hives. Good luck and believe in gut feelings, what others (not doctors) are telling you. Ultimately, they want to make money and can only do so if you stay sick.
My doc says that thyroid problems can be hereditary. Interestingly, it looks like my Dad's side of the family probably had it- you can see the big dark circles under all their eyes, which I always thought was just a hereditary physical trait that I inherited. Except when I began my thyroid treatment, the big puffy dark circles under my eyes went away. Once I got to thinking about it, I wonder how many people in my family suffered from thyroid problems without ever even knowing what was wrong?
I am sorry about your sister's cancer. I worry too but doing a lot of praying. I don't know if you pray but it sure is a big comfort to me. I always keep in mind that God is always with me and He never for sakes me. I don't want you to think of great here is a Bible thumper but God may not be able to keep stuff from happening to us but He is there for us more so through our most difficult times. I have to go in for blood work today and appointment to marrow because for some reason I have limp nodes popping up and some are hard and lots of swelling a long with head aches too. I ask my doctor if it is related to my thyroid and he said no. I am confused and don't know what to think. I hope you don't mind but I would like to pray for you and your family and hope you get the best care you can get.
Hope you are having a better day. I just wanted to let you know about what happened to me Tuesday when I visited the Immunologist in St. Louis at Barnes West Jewish Hospital. After having seen four different doctors here in Springfield, all of them telling me that my hives and angioedema were NOT thyroid related, the wonderful doctor at Barnes confirmed my self-diagnosis. This is all related to my Graves (thyroid) Disease. He spoke to me for over 30 minutes then told me what he will do so that I will NEVER have hives again. He said it could take up to six months of treatment, but then I would never be troubled again with this. He sent me to the lab for extensive blood work so he can charge the progress of the medications.
Basically, I am on six different medications and am required to see him once a month and to get blood work everytime I visit so he can check my progress and make sure the medications are not affecting anything else negatively. After only two days of taking the medications, I woke up hive free this morning. It's like a miracle.
The only advice I can give anyone with thyroid disease is this. If you have hives and allergies and everything else has been ruled out as to their cause, it could quite possibility be caused by your thyroid problem. You have to be persistent with your doctors. The four doctors I saw here in town could have, at any point, said, "I don't know what's causing this, so I'm going to refer you to an Immunologist." They were so arrogant, they couldn't admit to not knowing the cause, told me it was emotional and sent me home. I felt totally validated and vindicated and victorious when my suspicions were confirmed by the Immunologist. I asked him to please send a letter to each of the doctors here in our town telling them of his findings. Yesterday, I called my Primary Care Doctor's office, spoke to his nurse and told her how angry I was because of the way I was treated by him and the other doctors. They caused me a money, time, and 18 months of misery and stress.
So, Hopeful, please never take NO for an answer. Keep searching for a cure for your problem. Do some research online about your symptoms, ask to see a specialist. Your prayers are certainly thoughtful and appreciated. But I look at things differently. I think the Almighty gave us brains and intelligence to figure out some problems on our own, and gave doctors the knowledge and skills to help us solve them. I'm concerned about the things that are happening to you and want you to NEVER give up, NOT EVER! There are so many thyroid variables, everyone is different, so no individual experiencing these problems can give you the answer. You are a unique individual and just need to find the right doctor, who will give you the right answers and the correct treatment.
Please keep me up to date on how you are doing. I would like to know how you are progressing in your search for a cure. And sometimes, it just helps to chat with someone else about what's going on. You are in my heart and in my thoughts that you will find the answer you need to make you healthy and well.