i'm here in seek of any help i could possibly receive..i'll try to keep this short and to the point. i am 26 years old, male, and am living at home right now with my parents basically in search of finding the right doctor that will help me. i have not had much success with doctors for reason being either that they are not interested, do not take me seriously, or simply have no clue what to do.
my main concerns are:
-i am always hungry..i eat at least every 3 hours otherwise i get incredibly weak and fatigued. my dad used to tease me about always eating but i think he's slowly starting to understand my issue. sometimes he goes like 16 hours without eating anything and he doesn't appear to lose weight or get weak. if i went this long without eating i would be shaking and would probably be at least 3 lbs lighter the next day. i am 6 feet tall and weight 188 lbs..i have pretty skinny arms and chicken legs. i have a bit of a gut so my body looks a little unproportional. when all this began 6 years ago i was very muscular and in shape. i eat so much i don't understand how i'm not a fat person by now. i'm usually experimenting with food. during april and may i went on a diet where i would consume 6 cups of brown rice, 4 cups of veggies, 7 cups of kidney beans, 2 cups of whole grains and the additional fruits in between. and this was all just in one day. during this time i lost 8 lbs
- i have a malabsoption to most food. nothing seems to fill me up unless its brown rice pasta or something very fattening and not healthy like burgers. typical sandwiches like tuna or turkey breats do nothing. sweets like donuts, cakes, cookies don't work. nuts of all sorts do nothing for me either and i know for a fact they are a high source of calories. i recently discovered potatoes do nothing for me either. i like to use the water analogy, that when i eat these foods its as if i just drank a glass of water..i feel full for a few moments and then i'm still hungry.
- i have a terrible short term memory..i'll watch an episode of the simpsons or something and a few hours later i'll have a hard time describing what the episode was about
-i have chronic fatigue..i changed my diet this year. in previous years i've been eating lots of junk, sweets, fried foods..this year i 100% cut out all sweets, i'm eating a ton of fruits and vegetables now. no smoking or drinking or fast food. i'd say over 70% i have little to no energy. my energy level with this healthy diet compared to the previous lousy diets has not changed
-probably the biggest one is i have a condition which is uncontrollable gas..this may seem easy to understand at first but its actually the passing of gas without knowing or feeling anything. still when i describe this to doctors they have trouble understanding it.
-i have a rash on my upper body that i began noticing the very same time when these symptons general began. around the same time i began noticing the wierd gas problems and fatigue i have i began seeing the rashes
i've seen many GP's over the years that didn't help. i've had a gastroscopy done before and they found nothing huge just some inflammation (my main concern at the time was celiac disease). i've had a couple of blood test performed from 2 family doctors which showed that there is absolutely nothing wrong with my thyroid. based on my research, this is a common thing people hear from their doctors, reasons being that thyroid analysis needs to be thorough and a quick dinky tests from the family doc won't show much.
i recently asked my doctor for a referral to a gastrologist because i felt i needed to see another one. now i realized that i chose the wrong specialist and it is a endocronologist which i think i need to see.
do these problems sound thyroid related? i don't think anyone here will understand the frustration i'm going through..i'm not working and my social life has hit the crapper..i never in a million years would have thought with this many doctor visits that i am completely healthy. i've had a few doctors claim i'm depressed and my problems are psychosematic. i've heard schitzophrenia a few times. i've also felt the urge to sock these doctors in the teeth on multiple occaisions but have withheld that desire.
i keep telling my family that one day there will be a test that will reveal it all.
the thing that bugs me most is i tend to wait a couple months for an appointment that usually results in the same old same old. i'm seeing a pattern..doctors don't take me serious and i'm realizing i'm seeing the wrong ones..i live in toronto btw in case anyone can recomment someone
It does sound like you might have Graves disease. The weakness and muscle wasting, always hungry, shaky,fatigued, malabsorbtion issues ,(we don't utilize vitamins and supplements very well when we're hyper). The memory problems, gas, these are ALL symptoms of Graves. Also insomnia and rapid heart rate are big ones.Find a doc who will order a Free T-4 test, Free T-3 test and tsh. Also a TPO, an antithyroglobulin test and a TSI (the antibody for Graves) test. You could have only had a tsh done and not the free hormone levels. These can change quickly. You should be getting tested every couple of months (FT4,FT3 and TSH) if you feel like this. See if your doc will refer you to an endo or internist. Someone who deals with thyroid disease.P.S. most people with Graves can be diagnosed bi-polar(mistakenly) or having anxiety disorder,or depression, it screws our brains up too while hormones are high.
Last edited by GravesGirl73; 08-18-2009 at 04:24 PM.
Hey...sounds like you need a Doc. who is well versed in Functional Medicine. Yes, it could be your Thyroid Gland, however, it could be numerous other problems such as viruses,bacteria,parasites, and yeast overgrowth. You need specific testing to assess all these areas.
thanks for the response guys..
gravesgirl its interesting you mentioned muscle wasting and rapid heart rate..i have been lifting weight for multiple years now. i know how to achieve the body of a swimmer..eat right, lots of protein, cardio and lift weight fairly heavy and make it a routine. i have been doing exactly this for a while now and always wondered why my muscles are not growing. i've talked to a few friends on this issue and they said its not hard at all to get ripped..so this is telling me that my body is not functioning properly.
regarding the rapid heart rate, i've actually been to the emergency room for this reason. last year at one point my chest felt very tight and my heart didn't exactly feel like it was beating fast just really hard. needless to say i waited about 4 hours before i got treated which was very convenient and was told to lay off the spicy foods which i don't eat much of anyway. now my heart rate i feel is still a bit fast not as bad as before but definately a concern.
alexk, at one point i took vermox to kill off some parasites that i had. i was told by an environmentalist that i had parasites. when i saw a gastrointeroligist i told him about this and he subsequently wrote in a note to my family doctor that all this parasite and vermox business was rather bizarre.
the same doctor who put me on vermox, i had undergone antibiotic IV treatment with him for 5 months. as well i had ozone IV performed..all of which didn't do squat.
in the beginning i had a barium enema performed, a sigmodoscopy..stool, blood and urine samples..nothing out of the ordinary was proved. (please keep in mind that i never voiced the concern about malabsorption or thyroid problems...this is a new thing..before it was that i had some gas and my "tummy" hurt..and of coarse a concern for celiac disease)
alex i believe i was tested for h pylori although i'm only 80% sure.
regarding the gas, i have to elaborate on that. this isn't like oh milk gives me gas or sometimes i have flatulence where i' m in an elevator and i need to pass gas but shouldn't. no. this problem is very inconsistent. basically the gas passes without a contraction, i feel nothing, hear nothing. this is a medical forum so i will talk about it sorry if it sounds gross but everyone here is mature i'm sure and willing to help. the smell is usually of what i ate. as an example, i'll have corn flakes for breakast today and tomorrow my room smells like corn flakes. i'll have some souvlaki for dinner and the next day on the subway it will smell like souvlaki. i'll have scrambled eggs for breakfast and the next day on the bus..well you get the point. a few times at work i was asked if i passed gas which put me in an extremely awkward position. i had no idea i did but it was me. this is killing me..my life is so unorthodox at the moment. i just wanna work, have a gf, go out with friends but it won't happen until i get helped.
the t3, t4...tests i've read about and are the exact reasons i want to see an endo. based on what i've read i have no doubt these problems have to be thyroid related...i'm wondering the gas problem which i believe stems from the malabsoption in my intestines, would that be all connected to the thyroid also?
i just don't know what i'd do if i ended up seeing an endo,i did these tests and the results came back fairly normal. i am on the brink of losin it. i'm just very lucky i have understanding parents who put up with me always being home and pay for the things i need.
i'm going to read about graves disease now..who knows i might have it.
I know exactly what ur talking about the wanting your life back, and gf, and all that stuff. Im 27 yrs old....got sick when I was 23 and have been missing out on that for around 4 years....yea it F**KN sucks but you gotta go on.
omg i just wrote a page full about graves and this computer crashed..F89#@)# i'm so mad
i wrote that certain things i've read i don't have...protruding eyes, trouble sleeping..i didn't read anything about gastrointestinal troubles or excessive hunger
its interesting how they talked about patients with g.d can have their thryroids blown up..that sounds like something i'm all over..i resort to anything at this point. last night i had a burger before i went to bed..this morning i already ate 2 bowls of pasta, a bowl of yougurt with blueberries and strawberries, a cup of almonds, one apple one banana..glass of milk and i'm sitting here hungry as if i didn't eat anything yet..its rediuculous
also, i made the mistake of asking for a appointment with a gastro instead of a endo..i have it in october, should i keep it just in case? i'm just not sure a gastrointerologist will help me at this point
yea alex i' m glad you understand..but if i'm stuck with what i have now i can't go on..this isn't like a pain in my ankle, or a permament allergy to wheat, or remembering to pop some pills every morning for the rest of my life..at this point to me that sounds like nothing...the gas, the hunger..its preventing me from living a normal life..i can't even stand waiting rooms at the doctors office because i never know if i might make parts of the room smell like pizza or a fruit cocktail (which by the way happened once..i heard ppl sitting next to me making comments) its just so rare..i've never heard anyone in real life or on tv have a problem like this..same with the diet...the way i see it is my thyroid is terrorising my body..so when the doctors kill it off or whatever it is they do..that will make the world of difference..that is where my hope lies
For some reason my comp crashed as well and I could not finish my last post.
Listen, for the past 4 years I have been chasing symptoms. Going from diff. doc to diff. doc in every specialty known.
What I have learned is, this is not the right way to attack a chronic problem of an "unknown" origin. Lets say that even it is your Thyroid that is causing these problems. Why did it malfunction all the sudden? What is causing this Hyper or Hypo reaction to your thyroid?
What I am trying to tell you is that you need to look at your body as one system. You have to find a doctor that is well versed in Functional Medicine....go and google this.
You have to get comprehensively tested, that means, comprehensive testing for your GI tracts, such as a CDSA (comprehensive digestive stool analysis), get a test that looks at your Gut Immunolgy. Test for mycoplasma as well as any toxins like heavy metals that could be affecting your system. And yes it would be great to get your thyroid checked out. Just remember, ask your doc for this comprehensive panel for the thyroid:
Free T3 (note the word “free”–important.)
Thyroid Antibodies (anti-TPO and TgAb. YOU NEED BOTH.)
Ferritin (and do stress FERRITIN, not just RBC)
* Adrenal Cortisol levels (but we strongly recommend saliva tests, not the one time blood test your doctor will do. See below, because you don’t need a prescription)
* Reverse T3 (to be tested when your Free T4 is in the upper part of the range with continuing symptoms. You need to do it at the same time you do free T3 to measure the ratio)
However, I still cant stress enough that you find a Doctor well versed in Functional Medicine who will be able to comprehensively test you and piece all the info together.
haha thanks a lot bud...what you mentioned is what i've been stressing..all the tests you mentioned..i have those printed out..my intention was/is that for the next doctor visit, i'm planning on cleaning the doctors face with that printout until he/she understands i need a thorough analysis ie: t3,t4, cortisol levels..i'm even aware of a breath hyd test...i'm not sure about the GI tract i think i've already had that checked...
my source of illness for years to my assumption was the intestines/GI tract region but i'm just saying that based on how i feel, my sysmptoms and what i've read its gotta be the tyroid
i'll take your word for it..i'm going to reserach functional medicine right now..
When you get your thyroid checked out I'd also look into Celiac disease and see if you can get tested. Have you tried going gluten free? Sometimes the best way to rule it out is go without gluten for a couple of months and see if it helps with the GI issues.
The gas is common in Graves. I'm on other boards and people have stated it. I was ALWAYS gassy before I got on meds. I didn't really think of it till someone else mentioned it and i was like"oh yeah, I don't pass gas HALF as much as I used to." If you're hyper everything is in overdrive everything is passed quickly usually. The hunger part...I was 104 ponds and standing at a buffet table eating like a horse at the worst of it. I would eat and an hour later my stomach would be growling! I mean I could eat like whatever I wanted but after eating I'd feel weird too like my heart would race faster like it was working harder, it was strange to say the least. Everyone with Graves usually has an insatiable appetite before diagnosis. You need to find other boards with just Graves people on there and ask questions. This one is mostly made up of people with hypothyroidism, although me and a few others have Graves.
Chucky, I have graves (in remission), I had no eye involvement and no trouble sleeping. I could happily eat all day, I NEVER felt full...ever. I lost heaps of weight. I can't remember having wind but every time I ate I had a BM so I spent a lot of time on the loo. I know others with graves and we all had some symptoms in common and many we didn't. I've read the list of symptoms they give on Graves sites, I had most but not all of them and I had plenty that weren't mentioned. I have a friend with graves who was diagnosed after seeing her Doctor for putting on weight and having a rash. Do you have heat intolerance? Sweating a lot?
i just want to state that the gas is involuntary..something i never heard anyone have ever! if i was to make a comparison, its kind of like having your mouth closed everything seems normal..and then without any noise or sensation, you belch
but regardless it could be graves indeed..i'm on no grounds to say that i don't have it, i'm totally in the dark i know nothing.
with my weight, i think its easier for me to solve complex trigonometric equations than to gain weight..i can't do it which is why its even important for me to keep eating and never miss a meal..i'm borderling skinny i lose any more pounds and i will not look good
with the heat tolerance, i definately noticed that i'm here and there on that subject..when my family is cold in the house i'll be in shorts...when my family has the air conditioner on i'll be in my eskimo suit...
and i have noticed before that i do sweat more than the average person..when i jog i sweat buckets..in high school after gym class, i'd be sitting at my desk in english class totally pouring half way through class it just wouldn't stop..but just in general when others sweat slightly i'm drenched..
so all these are other big issues..
well heres the situation for now , i have an appointment at a clinic with a doc i've seen before..i do remember adressing to him my concern over the thyroid..he did some blood work and they never called me back so i guess everything seemed normal..this could hurt me..how do i get him to refer me to an endo? i might have to put on an act and look ill otherwise this guy might tell me to take a walk
how long does it take to see an endocronologist
someone wrote that they waited 8 months..tell me you don't usually wait that long that is an absolute joke
i don't have time to waste..i would wait an entire year if it was an operation to heal me but for a visit especially when you don't know if the doc is some jerk who's having a bad day..your appointment can pass in the blink of an eye with no positive result..i often wonder if doctors ever realize how long patients wait for these visits