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Old 09-10-2009, 02:28 AM   #1
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Thyroid Problems and Hives

Hi,

I have been suffering with hives for 4 months now. They generally appear on by body (arms, thighs, lip, stomach) in the morning and disappear by the afternoon. Every night, the soles of my feet, palms of my hands and rest of my body swells up, with pain, itchiness etc. One dermatolgist prescribed a high dosage of cordizone which i was on for a month, it didnt help, and gave me other side effects.

Last week after a body wax, my whole body flared up to such an extent that i had to be admitted to ER for a cordizone injection.

After countless dermatoloigical tests, and 4 different dermatoligists telling me there is nothing i can do and it will just go away when it is ready to, i seeked advice from an allergiologist. He too went through lots of details regarding allergies but also recommended some blood tests. The interesting results are:

TSH 0.96
Thyroglobulin Antibodies 257 (normal less than 40)
TPO antibodies 1230 (normal less than 35)

I then visited an endocrinologist, who checked/ultrasound my thyroid, but stated that it was ok and not damaged in any way. I mentioned my other side effects: weight gain despite not eating, depression, migraines, the hives, joint pains, skin dryness, puffy face etc., and she stated that these could be side effects of cordizone. I have had all these side effects for years (apart from hives which is a recent addition).

My endocrinologist has come to the conclusion that there is nothing i can do and has tongue in cheek replied that all these symptoms could or could not be related to the high TPO/TG levels.

I asked if i had Hashimoto and she said possibly, but as long as it is not affecting the thyroid these high levels are not a problem and i should not worry about them, just check my thyrpoid once a year.

I have researched a link between hives and hashimoto, and it seems it is quite common, yet i am being prescribed antihistamine drugs, and keep getting told the hives will go away eventually, maybe now or in a year.

Any advice/comments will be greatly appreciated, as i feel as if i am going round in circles, and am gradually getting more and more depressed as a result.

Thank you

 
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Old 09-10-2009, 08:57 AM   #2
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Re: Thyroid Problems and Hives

The TPO antibodies are causing your hives. They attach to skin mast cells and cause the allergic reaction.

There's no doubt in my mind you have Hashimoto's. It hasn't affected your TSH - yet - but there's no doubt it will. It appears your most important levels have not been tested yet. Those are free T4 and free T3. I'll bet yours are low or low-normal, which defines hypothyroidism. Don't allow your doctors to ignore them.

My former endo treats when antibodies and symptoms are present, even when TSH is in range. It isn't the standard endocrinological method of treatment, but it's the most sensible one. Treating before TSH becomes abnormal will save you a lot of suffering and irreparable body damage, can prevent goiter and nodules, and can help calm the antibodies that are causing your hives. Find an MD who will treat you now, or push your current one(s) to.

Also, start taking a selenium supplement daily. It can reduce the TPO antibodies up to 40%. Start with 200 mcgs per day; after a month, reduce to 100 per day.

 
Old 09-11-2009, 10:22 AM   #3
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Re: Thyroid Problems and Hives

midwest1,
Thank you very much for all your info, advice and help.
I will go tomorrow am and take the free t3/t4 tests.
i will also have some difficult conversations with my endo, and will also get her advice on selenium, as i have not read anything about it.

I guess its just something else i'll have to learn to live with, but it probably explains quite a lot that has gone wrong with my life (including fertility problems for a decade).

Once again thanks for everything, and i'll post my results once i get them.

 
Old 09-14-2009, 07:15 PM   #4
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Re: Thyroid Problems and Hives

Quote:
Originally Posted by tonypax View Post
midwest1,
Thank you very much for all your info, advice and help.
I will go tomorrow am and take the free t3/t4 tests.
i will also have some difficult conversations with my endo, and will also get her advice on selenium, as i have not read anything about it.

I guess its just something else i'll have to learn to live with, but it probably explains quite a lot that has gone wrong with my life (including fertility problems for a decade).

Once again thanks for everything, and i'll post my results once i get them.
had the same thing, the allergist finally ran thyroid studies , and was positive for hashi. they ONLY thing that worked for my Hives was Zyrtec 10 mg..good luck

 
Old 09-15-2009, 08:53 AM   #5
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Re: Thyroid Problems and Hives

I suggest a 2nd opinion for sure. Not all Endo's or Doctors are good at Thyroid issues or know much about Hashi's.

I had fatigue, weight gain, depression, anxiety, rashes and no one would listen to me. Then a few nodules showed up in my thryoid and everyone finally took notice . I had a multinodular goiter!!!

I went to a total of 7 yes 7 Doctors before I found one that I felt really listened to me or knew much about Thyroid disorders.

Good luck and keep asking questions. Stay away from Cortisones unless you are having a severe allergic reaction... they are hard on your body.

Sincerely, Oleander

 
Old 09-16-2009, 01:55 PM   #6
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Re: Thyroid Problems and Hives

I would say see another endocrinologist.

Yes, it is most likely you have Hashimoto's. It is PROBABLY unrelated to the thyroid. I stress the word probably since I do not know your specific medical background.

Your was right in that you don't really do anything for Hashimoto's but monitor it if you thyroid levels are within normal range. However, I'm not impressed with the fact she wouldn't commit to whether or not you have Hashimoto's. I'm also not super impressed that she didn't want to check back sooner than a year. A of 0.9 is not bad but, given your symptoms, I would have thought it would be prudent to check your thyroid levels again sooner in case you had a early case of Graves' disease or even autoimmune thyroiditis. (It is possible to have both Graves' and Hashimoto's)

Did she do a T4 free level?

I think you should definitely get a second opinion.

Last edited by tigger78; 09-16-2009 at 01:55 PM. Reason: Took off name

 
Old 09-17-2009, 07:57 AM   #7
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Re: Thyroid Problems and Hives

I believe that the method of waiting and watching Hashi's sufferers is wrong. I've heard it described this way: watching, instead of treating, someone with Hashimoto's is akin to watching someone get their leg chewed off. Your doctor should be treating you despite your "normal" labs.

The most current thinking is to suppliment your thyroid hormones, preferably with natural hormone replacement, until you actually shut down the thyroid with complete replacement. Only then will the antibodies cease their attack on it and this will relieve the symptoms.

If I were you I'd keep looking for a doctor who understands this and is more progressive in his/her treatment ideas. Otherwise you will continue to suffer and the health effects are not good.

 
Old 10-02-2009, 12:34 PM   #8
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Re: Thyroid Problems and Hives

i have been breaking out in hives now for baout 8 mont's.The first ime i was sitting at my desk and all of a sudden my lip started swelling then, my arms. I went to the hospital and they gave me a cortizone shot, which didn't help that much. i havent had the insurance to do a follow up, and their getting worse. I finally went to a doctor yeterday. I have an appoinment with a allergie specialist, my doctor is also going to do a full blood work up on me,Thank God i have insurance now!!! i want to thank all of you for your writings, they will hopefully be helpfull. I do know if they dont figure this out real soon I too feel like Im going to loose it.

 
Old 11-28-2009, 10:34 AM   #9
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Re: Thyroid Problems and Hives

I'm having the same issues as tonypax, for about a month now, hives all over my body, swollen face that show up in the morning and disappear in the afternoon. My allergist did blood work for my thyroid and said that although all was in normal ranges, he felt that I had beginning stages of Hashimotos. I have not consulted any endocrinologist but was wondering if taking medication to increase thyroid levels help with this. I have also been taking selenium for other reasons but not the levels that you have been taking but will try that as well.

Thanks!

 
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