Hello everyone! What a relief to find this site, I've been so stressed and paranoid about the possibility of having hyperthyroidism and/or Graves! So starting at the beginning...about a month ago, I had a very busy week. I danced 4 times that week, had meetings, and work, then decided to relax by going out with friends. Sat night comes, I have fun, then the next morning, I feel TERRIBLE! I thought it was a simple hangover, but I had THE worst sore throat--so bad that I couldn't swallow without wanting to cry--and THE worst headache, so bad I couldn't even stand up without wanting to curl into a ball. Also I had somewhat cold symptoms and painful facial pain, so I took Advil and some sinus medicine (which I normally get is sinus problems). This lasts the rest of the week, I had to call in sick to work, and I go to the doctor who says I have hyperthyroidism but it may be caused by mono or a sinus infection. My tests results:
Free T4: 3.4
I had an appt with an endocrinologist last week. First I see a doctor completing his fellowship, I tell him my story and he even thinks its viral thyroiditis. (Yay!) Then the specialist comes in and looks at my eyes and does some measurement. "You have Graves. Yep, you definitely have it." What? First she lists some numbers, for African American, Asian, and Caucasian. I am half African American, half Mexican. My eyes are just very very slightly above the numbers she listed as "normal," but she takes no mind at the fact that I tell her my whole family has large eyes, and they do get bloodshot normally, ever since I was little. Now I'm on Beta Blockers, but after 1 week of those bad symptoms, they were gone and now I just have an enlarged thyroid. I've done research and I personally think I had a virus that one weekend. Plus I just moved to the Pacific NW 2 months ago, after being stressed out about getting a job after college. I go for the uptake test next week so hopefully its nothing.
But has anyone experienced this kind of thing? I've seen varying experiences with thyroiditis, but I'm still wondering if mine is worse than others? Thank you for anyone who replies and sorry about the novel I have written!!
I forgot to mention my symptoms now...I don't have trouble sleeping unless I'm stressed, I do get a little hot sometimes, but its normally when my apartment is 80 degrees! I have a slight tremble, but it's nothing crazy. Apparently, my aunt (out of 7 aunts and uncles) has Graves, but she got it after her brain tumor was removed. Other than that, no one knows if its hereditary, but probably not, since no one knows. And as for me, I have never had any health issues...except for allergies. And I didn't have an enlarged thyroid before I went out, I know this after looking at pictures taken a couple weeks before this all started. Thanks again!
Make them do a antibody test!!! And make sure IF you do indeed have Grave's they give u all the options. Not just tell u to nuke your thyroid and be done with it. Cuz u are never really done with it at that point!
Mine also came out of no where so I totally understand what you are feeling and going thru. I still to this day wonder if I even had or have Grave's... too late for me now though. I nuked mine!
Yes after reading more posts, I'm definitely going to have them take that test! Do you mind my asking, how did you nuke yours? Surgery? And also I've been reading that sometimes Graves/hyperthyroidism goes away for some people after treatment, is that true?
I had the radiation treatment done to mine. So now I will be taking thyroid replacement meds for the rest of my life. I still do not feel good and mine was done in 2007!! I would say please seek all options first before doing anything or letting anyone or any dr talk you into anything as well. Well I am not sure if it goes away, but what happens is when they nuke it or remove it you go HYPOthyroid which needs medication to regulate. But I am no expert I just know what I have gone thru. So please make sure you find out for sure what all options you have.
Now I have heard of people doing the treatment and then going on replacement and being just fine. But a lot that I have come across did not and still suffer. Find a good dr is the best option I think! One that deals with thyroid disease and not just a regular md or a endo that deals with mainly diabetic pts.
Thank you both so much! Yes, I thought it was so weird that they would measure my eyes like that, as if that would give them the "correct" answer and diagnosis. I will definitely ask for that test! And I'm scheduling an appt for a second opinion, and changing doctors. The doctor I saw was not sympathetic and too touchy-feeley...everytime I said something she would grab or hit my arm, like we were friends. :/ So hopefully I'll get the answers I need next week!