I have lost all ability to function, thinking it was my stage 4 kidney disease was behind it. I have been down for weeks, unable to stay awake, no appetite, so very fatigued I have lost my voice, and only today I found out I am hypothyroid.
I have been under the care of a nephrologist for years, and have had bloodwork done every four weeks, never a thyroid test until Monday. I am thrilled to know this condition can be made better with medication, but I am crushed, thinking I have had to go this far without my doctor ever ordering a thyroid test.
I have been unable to do anything, and now my back has gone out too. My hair has fallen out, and my strength is gone. My hubby is taking care of me...I cannot drive, or think straight. I am seeking support from those who have been there...
thanks in advance
Gosh I'm so sorry for what you are going through. I think that proper thyroid testing should be right up there with cholesterol and blood pressure checks, as literally millions of people suffer from thyroid disease. You have every reason to be upset for not being discovered sooner. I've read that hypothyroidism is very common with chronic kidney disease (almost 10% of CKD pts have subclinical hypothyroidism) so I am surprised your nephrologist didn't catch on sooner.
I hope your treatment brings you some relief soon. If you find you aren't getting resolved as well as you think you should there are several reasons this could be happening. One of the most common is adrenal fatigue, which can happen with long-undiagnosed hypothyroidism. Have you also had your vitamin D, B12 and ferritin levels checked. These are very often low with thyroid disease and can cause symptoms.
Maybe you can share your testing and treatment plan here so others can comment and offer you some support.
I just called for the actual values of my thyroid panel, and am feeling quite angry that the levels are so very low, and my nephrologist never had this checked. After all, I have had blood work done every 4 weeks for the last 5 YEARS, and just a simple check mark on my lab orders would have done the trick. I have credited my neph. for many things, including saving my life, following four strokes (due to hypertension)...but this is simply in-excusable in my eyes. It's not like I haven't been complaining of every single symptom of hypothyroid, but that it is such a common combination with kidney disease. I will surely post this on the kidney boards!
Yes, very hypo. Is that last one a free T3 or free T4? The free T tests are the most sensitive and you should request them in the future to keep tabs on how you are doing.
How fast you get these numbers up depends in part on what treatment choice you follow. If you go with synthetic T4-only it can take a little longer as you have to build up the T4 and then it needs to convert to T3, something that happens in the kidneys in part so I think you might want to consider asking about a T3 and T4 preparation, either synthetic or natural desiccated thyroid hormones. T3 is assimilated very quickly and you might feel a difference fairly soon, provided you haven't developed adrenal fatigue, which will interfere with thryoid hormones going into the cells. But you do need to start at a low dose and work your way up slowly either way, it will be a bit of a shock for your system after being hypo for so long and you need to let it adjust slowly.
I see I have a whole new illness to learn about, as I have for all the others. Tomorrow I go see a new doctor a back specialist to diagnose my three weeks of severe back pain, which I would catagorize as back fatigue, as it began following this spell of extreme fatigue, lack of appetite, and being down. I think it might be directly connected to this thyroid issue...could that be? Just to fatigued to hold myself up? I will know more tomorrow. The idea of that is frightening. Combined with the renal failure, I see a bigger fight ahead than I already have bargained for. I thank you, and appreciate your knowledge and support. I will also see my cardiologist tomorrow, as my heart is affected by each of these issues. I refuse to give in though, as I still have a teenage son at home, and a lot of living to do yet. I find that a positive attitude is the best defense against all things...but this constant test does wear on a person! Thanks again for listening...