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Old 02-01-2010, 07:42 PM   #1
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Cool Dizziness and Muscle Weakness after Thyroidectomy

I had a total thyroidectomy about 9 years ago. The last year, I've had severe fatigue, muscle weakness (especially in my legs), and dizziness. I just had my TSH checked and it was 2.02. I've been on 88 mcg. of Levothyroxine for quite a while. I just saw a new Endo and when I told her about the fatigue, she just said, "Who isn't tired these days?" She also had my adrenal cortisol checked and it was 24. She said that was on the border and she wanted to see me in six months.

The muscle weakness is so bad that I can't stand for too long. I'm laid off and don't know if I'll be able to return to a full time job. My legs are so weak that if I have to stand in a grocery line too long, I have to leave. Is this normal to have such muscle weakness? Could it be some kind of vitamin deficiency? Also, I've been getting dizzy for the past few months. I have to lay down all the time. I get especially dizzy when walking around in the stores or driving.

I take 2,000 B12, Vitamin D, & magnesium. I'm not on any other meds.

Is anyone else who is hypothyroid having muscle weakness, fatigue, and or dizziness? If so, what did you do about it.

Thanks so much.

 
Old 02-02-2010, 06:23 AM   #2
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Re: Dizziness and Muscle Weakness after Thyroidectomy

Despite what your doc says you are probably quite hypo. Your TSH is far too high for good hormone replacement, most need it to be 1 or below. Too many docs look at TSH in normal range and blame our fatigue and pain on other things.

You need to try raising your meds and see if things improve. However, with that borderline cortisol level I would get a saliva cortisol test and check for adrenal fatigue. There are many who develop AF after being on synthetic T4 for long periods of time, it can stress the body for some. Also being undertreated will cause AF. If you have AF then you need to treat it first and then consider going over to hormone replacement that has both T3 and T4 in it such as desiccated thyroid.

You also need to monitor your free T3 and free T4 levels instead of TSH during treatment. TSH is largely a useless test that is used far too much. FT3 and FT4 levels need to be high in their ranges for most of us to feel well.

 
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Old 02-02-2010, 02:02 PM   #3
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Re: Dizziness and Muscle Weakness after Thyroidectomy

Have your Vit D levels checked. I was often experiencing those symptoms you describe when I was Vit D deficient - not every day but very often - no fun

 
Old 10-25-2010, 12:56 PM   #4
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Re: Dizziness and Muscle Weakness after Thyroidectomy

Hi, I had half my thyroid out and am also on the same medication you are on. My cK levels are abnormally high and I have had nerve function tests, mri, and muscle biopsy. All tests were non-conclusive. Ugh! For the last several years I am experiening muscle weakness. It started by having a hard time getting out of chairs. It has progressed to unable to walk without a walker, unable to go up stairs, unable to rise from a bent over position, almost impossible to get out of chairs unless they are high. Numerous doctors and my neuro-surgeon is baffled. He was sure I had myositis. It is getting worse. Cannot get in and out of bathtub and I cannot stand in shower for more than a couple minutes. I feel there has not been a great deal of research on this. No other medications because they don't want to give me steroids because that causes more problems.
Keep me posted on what is happening with you.

 
Old 03-02-2011, 06:12 AM   #5
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Re: Dizziness and Muscle Weakness after Thyroidectomy

I had a tt 2 years ago and all of a sudden i went hyper and was placed from 100mcg to 75mcg of levothyroxine. I am now fatigued and have muscle weaknes in my legs. I suspect to hypo again and calling the doctor soon. This muscle weakness reminds me of after the surgery weakness. Anyone have this same story?? i am sure there will be another increase maybe to 88mcgs this time.
thanks

Last edited by RUFUS100; 03-02-2011 at 06:13 AM.

 
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