More information about Hyperparathyroidism in Young People
I am looking for more information about hyperparathyroidism, the diagnostic testing, and length of time dealing with the disease. If anyone has some information about this, I would be very grateful.
About me: I am female, 27 years old. I have been suffering with multiple kidney stones for the last 4-5 months, as well as exhaustion, and general pain (not just the severe pain from the kidney stones). I was finally diagnosed with hyperparathryoidism this past week. I already have a consult for surgery so I am not really worried about the future so much, but am more curious as to how long I might have been dealing with this without noticible symptoms.
My calcium levels have varied from 13-13.7 in the last week. My PTH level was 587ng. From what I understand, this is very high, with normal being in the range 10-65. I read on parathyroid.com that levels greater than 200 could signify a very old tumor - possible 10-12 years old. My PTH level is almost triple that value. Does this mean I could have had the disease for more than 10 years - possibly when I was a pre-teen? Or does it indicate that I might have more than one problem parathyroid? Or even more significant, it is possible that I have caught parathyroid cancer early on (I read that the calcium levels for cancer were 14-15, and PTH level in the thousands)?
Has anyone had levels this high before? If so, what is your age. I feel like I am somewhat on the young side to be dealing with this, especially at the levels I have. Any insight would be greatly appreciated. Thanks!