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Old 06-23-2010, 10:59 AM   #1
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Hyperthyroid but have always had hypo symptoms

I got diagnosed with Hyperthyroidism in 2005. I went through hell for a year before that, sick constantly, no energy, boils flaring up on skin, weight gain (slight maybe 20 lbs in 2 or 3 years) and emotional issues I still have.
I just saw an endo for the first time 2 weeks ago, I'm not sure she listened as well as I had hoped. My symptoms included cold intolerence, poor immune system, tired all the time, weak, lost site of who I was, morals left, strange bout of depression and moods, and so many other things.
I told my endo that I had opposite symptoms all along and wondered if there may be something else out of balance that effected my thyroid. She didn't believe it was the pituitary because I was hyper so I wouldn't have a TSH secreting tumor or else my TSH levels would be high. They are currently low and have been fluctuating between normal and low.
My biggest concern right now and why I started seeing a specialist is because I don't feel like myself anymore, I feel similar to how I was before diagnosis but this time I'm aware that I have depression that comes and goes every few days, irritability, an inablility to really show or feel real strong emotions, the fact that I can't make up my mind about things, and I always feel just kind of ho hum even when I'm out having fun. My releationship troubles are partially based on the fact that I can't seem to show him or really tell him how I feel. I have a poor libido, the whole foreplay thing doesn't really do for me what it used to. He isn't very understanding. I feel like I show him I love him but I'm bad with words. He feels unwanted and unloved by me. I'm not even sure how much I love him...but some of that may be with issues I have with him.
My short term memory is terrible, worse than it always has been and can't concentrate well on things.
I'm still tired alot, not as bad as I used to be, never find motivation to do things I really want....I have to force myself to do them, intolerant to cold and heat now, I still get the boils on occasion only they are very small and go away sooner.
What else could be going on inside that may cause these issues and such. I'm desperate to get my old self back. I'm calling a therapist or pychiatrist like the endo suggested but I don't want to just mask an underlying problem if there is one.
Can anyone relate?

Last edited by Irisheyez82; 06-23-2010 at 11:02 AM.

 
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Old 06-23-2010, 05:59 PM   #2
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Re: Hyperthyroid but have always had hypo symptoms

I would say it's more hypo than hyper, you might have had a hyper flare of Hashi's. If it's hyper (Graves) your tsh would be like 000.5, or below range, not in range at all. Hashi's people's tsh fluctuates a lot. Graves usually stays low for quite a while due to the tsi influence. Do you have any labs? You need copies of any labs since diagnosis and then you could post them. hard to tell without them. Also antibodies testing, TSI for Graves and anti tpo and anti tg for Hashi's.

Last edited by Bran'sNana; 06-23-2010 at 05:59 PM.

 
Old 06-23-2010, 09:50 PM   #3
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Re: Hyperthyroid but have always had hypo symptoms

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Originally Posted by Bran'sNana View Post
I would say it's more hypo than hyper, you might have had a hyper flare of Hashi's. If it's hyper (Graves) your tsh would be like 000.5, or below range, not in range at all. Hashi's people's tsh fluctuates a lot. Graves usually stays low for quite a while due to the tsi influence. Do you have any labs? You need copies of any labs since diagnosis and then you could post them. hard to tell without them. Also antibodies testing, TSI for Graves and anti tpo and anti tg for Hashi's.


Wow, you guys are quick to respond here! Seems like a good forum.
I just got the numbers of my blood test that was taken a couple weeks ago.
My T4 and T3 they said are normal, I can't remember the numbers, they are at work. My TSH level though is 0.21. Also my vitamin D was down at 24 and I'm taking supplements.
But my TSH shows that I'm back to being in the hyper zone again but I have had the same symptoms of hypo. I don't get it.
THey haven't even done a thyroid antibody test that I know of. What ever they do to test the TSI, TD?, and a couple others I can't remember. I"m going back for another blood test in a couple of months so I may ask them to run a full thyroid check that I have seen people suggest on here.
My ultrasound shows my thyroid is still enlarged but no nodules.
Endo suggested the best path for me would be to eventually get it removed surgically before I decided to start a family.

 
Old 06-24-2010, 04:25 AM   #4
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Re: Hyperthyroid but have always had hypo symptoms

If you live in the US the law is you can get copies of your labs. Some docs think that if your numbers are all in range, then you are well. This is not the truth and keeps us thyroid patients undertreated.

As for as the TSH, it is not a good indicator of how the thyroid is working, because it is just a pituitary response.

The Ft4 and Ft3, these are called the frees and show the actual circulating thyroid hormones.

The TSH can be effected by stress, dieting, and illness.
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Old 06-24-2010, 11:42 AM   #5
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Re: Hyperthyroid but have always had hypo symptoms

Right, you must get the free numbers (if they were run) and see where they are in your lab range. Only the frees are useful and the antibodies tests. Make sure you got or get these. a tsh of .21 isn't all that low, hypers run much lower Hashi's goes up and down. It could be 4 by next month! You sound hypo to me, not hyper, by your symptoms.With Hashi's as your thyroid gland dies out it puts out bursts of thyroid hormone and can give you highs and lows, and the tsh will change.

Last edited by Bran'sNana; 06-24-2010 at 02:01 PM.

 
Old 06-29-2010, 12:53 PM   #6
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Smile Re: Hyperthyroid but have always had hypo symptoms

Yeah for the first year my doc drew labs every 3 months or so and then the next year or 2 were every six months and then I switched primaries b/c my doctor moved further away and this doc said once a year would be fine. It had been since Sept that I got my last blood test that I went to the Endo and she was upset that they weren't drawing blood more often. So now she wants me to every 2 months.
My labs are usually "normal" by the time they draw for tests but I am usually not feeling that bad then. This last time I had been having the anxiety and such but I had also had a lot of stress in the last month before. And depression had been very bad and my emotions were much like a roller coaster and that was with the the 0.21 TSH result.
I met a girl last weekend that told me about Hashimotos toxicosis and I hear alot of doctors refuse to believe it's real. Surgery is not an option right now because unfortunatly insurance at my company is terrible. $2500 deductible and 20% co-insurance there after. After being alittle weary of getting my thyroid removed because I was afraid of going hypo mainly because of the infertility risks, I got told by my Endo that Hypo is easier to manage and medications would not harm a fetus for when I do start a family as were my methomazole would.
The girl I met said she wasn't even on Medication anymore, she was going to a nutritionist to balance her diet and I think taking supplements. Sounds awesome if it would work for me too seeing as how I wonder how may side effects I have from the methamizole! I get headaches real easy lately and have had a couple bad migraines in the last year.
What is that book called I have seen posted on this forum? I can't find it again and I want to get the book.
Thanks for all your input!

 
Old 06-29-2010, 04:23 PM   #7
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Re: Hyperthyroid but have always had hypo symptoms

Thyroid for dummies?

 
Old 06-29-2010, 08:31 PM   #8
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Re: Hyperthyroid but have always had hypo symptoms

Nope "The Thyroid Solution" I just bought it. =-)

 
Old 07-12-2010, 08:03 PM   #9
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Re: Hyperthyroid but have always had hypo symptoms

[QUOTE=Irisheyez82;4275950]
This post caught my eye. I have a lot of your same symptoms, feel real crappy, exhausted,depressed, cannot think or make decisions, cannot focus, no energy-i have been on a thyroid compound for over a year with t4/t3 and trying to get the right dosage...at times i have shown hyper too but primarily hypo symptoms-i have autoimmune things in my family and many thyroid problems with siblings..i think i may have hashimotos' but i was tested for thyroid antibodies-not sure which test and it was negatvie-keep in mind i am on the thyroid hormone...i am sick and tired of beign sick and tired...oh and i get chronic daily migraines too...my triggers are the weather, low blood sugar, too hot, etc. So my 3 main disabling symptoms are chronic exhaustion, migraines and lack of motivation-state of apathy almost...but i also have endometriosis, and bad back pain spells and chronic dry eyes and constipation...the weight gain hasn't come off either...if anyone has any suggestions i am all ears-so excited to find this forum!

 
Old 07-13-2010, 10:58 AM   #10
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Re: Hyperthyroid but have always had hypo symptoms

Hi! What you need is a copy of your latest labs and post them on here, that way we can get a better picture of what your thyroid's doing. It's odd how some people with low antibodies have worse disease, it's not only this auto immune problem but others it seems too.(celiac for one) My antibodies were sky high at one time and I never felt worse, just maybe cause I was overdosed on anti thyroid meds and this can cause an increase in antibodies.I have both Graves and Hashi antibodies. I have had a very mild disease and am in remission now from Graves. My daughter has celiac and has high antibodies but the endoscopy/biopsy showed a very mild disease.

 
Old 07-19-2010, 11:07 AM   #11
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Re: Hyperthyroid but have always had hypo symptoms

[QUOTE=peachy041;4284932]
Quote:
Originally Posted by Irisheyez82 View Post
This post caught my eye. I have a lot of your same symptoms, feel real crappy, exhausted,depressed, cannot think or make decisions, cannot focus, no energy-i have been on a thyroid compound for over a year with t4/t3 and trying to get the right dosage...at times i have shown hyper too but primarily hypo symptoms-i have autoimmune things in my family and many thyroid problems with siblings..i think i may have hashimotos' but i was tested for thyroid antibodies-not sure which test and it was negatvie-keep in mind i am on the thyroid hormone...i am sick and tired of beign sick and tired...oh and i get chronic daily migraines too...my triggers are the weather, low blood sugar, too hot, etc. So my 3 main disabling symptoms are chronic exhaustion, migraines and lack of motivation-state of apathy almost...but i also have endometriosis, and bad back pain spells and chronic dry eyes and constipation...the weight gain hasn't come off either...if anyone has any suggestions i am all ears-so excited to find this forum!
Oh I relate with the migraines though I get constant headaches that if I am not careful can turn into borderline to severe migraines. That can be a symptom of either thyroid issues not relieved by meds or the meds themselves. I also have the back aches, and every doctor I went to acts like it's just normal pain from a desk job. The more I researched the more I realize all this crap such as depressive episodes, irritability, headaches, back aches, muscle weakness, chest pains, etc are all probably related to my thyroid issues. I have never been an irritable impatient person but recently I just don't even realize when I get that way I get alittle mean I guess. I'm in search of a "good" doctor or specialist who will not rely strictlly on lab results. For the backaches, though expensive sometimes, find a good chiropractor that also does some massage and acupuncture. I haven't gone to mine in months and I am about to give in and spend the $ to go back. He was awesome.

 
Old 07-19-2010, 11:13 AM   #12
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Re: Hyperthyroid but have always had hypo symptoms

Quote:
Originally Posted by Bran'sNana View Post
Hi! What you need is a copy of your latest labs and post them on here, that way we can get a better picture of what your thyroid's doing. It's odd how some people with low antibodies have worse disease, it's not only this auto immune problem but others it seems too.(celiac for one) My antibodies were sky high at one time and I never felt worse, just maybe cause I was overdosed on anti thyroid meds and this can cause an increase in antibodies.I have both Graves and Hashi antibodies. I have had a very mild disease and am in remission now from Graves. My daughter has celiac and has high antibodies but the endoscopy/biopsy showed a very mild disease.
What does it do to your body when you have both Graves and Hashi antibodies? Do you know if they normally test for both? What ever doc I go to next I want to make sure I ask for the right tests. I want tested for TPO, TSI, and I also want them to check my adrenals and make sure my cortisol levels are ok. I have many symptoms of at least adrenal insufficiancy but possibly addisons. I'm very fair skinned so I am not sure if dark/tanned areas would show up or not and the only other thing is that I have been low in pottassium in the past instead of high.
Anyways, is there anything else I should ask for? They normally just make sure my TSH, T3, and T4 is regulated.
Thanks!

 
Old 07-19-2010, 12:11 PM   #13
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Re: Hyperthyroid but have always had hypo symptoms

In terms of irritability,i get irritable when i am about to get a migraine...i can be quite fun to deal with-not! There is a clear connection. I got laid off from my great paying job a year ago(so cannot afford chiro right now) due to being off sick for severe migraines. I have been looking for work in when i can and when i am well the last year but my insurance is running out soon and i need to get well to get back to work.
I have lost a lot of confidence in my ability to work since i never know how i am going to feel. My doc is an alternative anti-aging specialist-he put me on the thyroid-i am not even seeing an endo...my bloodwork intially was fine...i also did saliva testing and found out i have adrenal fatigue...my cortisol levels are low all day except in evening....thus that explains why i am so exhausted and need to sleep all day-i have tried pregnenolone for this but had some side effects-i may try again...i have tried testosterone,progesterone and estrogen-bio-identical...i like the progesterone and estrogen but gone off as i find i get constant yeast infections even more now when i use since i got my tubes tied 6wks ago...i am also thinking i now have post tubal ligation syndrome...it is like i am an aids patient-people look at me like i am screwed in the head cause i look normal yet i have all these health issues...i really feel misunderstood and like i have no empathy or sympathy and i can get really depressed about the illness and probably depressed is just part of it all...i am thinking of trying anti-depressant and add meds-i am so scared because i get side effects severely and easily and so a lot of meds i cannot take...
My neurologist got mad because i couldnt' take topirmate for the migraines cuz of side effects so basically said he couldnt help me-he only tried that and botox....i have also tried propanolol-beta blocker and also neurontin which made me sleep all the time...i have tried paxil in the past and had major side efffects and when went off i was like a cocaine addict goign thru withdrwaal...
i also have stomach and digestive issues...i have gerd,gastritis, heartburn, ibs and bowel endometriosis which i need to have surgery again to take that endo out...i am scared that another surgery will do me in...but in the mean time...i am having so many digestive problems with constipation, with diarrhea and straining and it is really all so ridiculous.....i take magnesium for digestion and migraines-i take this daily...it helps a bit with both...i am very low on magnesium and their is a connection between the migraines...
I was on t4/t3 80/100 mg thyroid med for almost 4 wks but i was so tired and then having little spells of being out of breath so i thought maybe try a higher t4 and lower t3...i just went on 100/80 t4/t3 a few days ago...we will see if that improves things with the fatigue...since that happened a few days ago i have been having some bad constipaiton and diarrhea at the same time issues...but i did try the testosterone cream again on thursday last week to see if it would help with energy-and i got so many side effects that i will not take this....i got extreme water retention in my stomach-looked 4mos prego, i got severely constipated and couldn't go for 3 days,i got severe headaches, dizziness, nausea and indigestion...i am reluctant that i will even be able to take cortisol for low adrenal levels if i get these kind of side effects...it sucks!! I have been reading up on CFS and think i may have this...i think this is some bad autoimmune or viral condition and we have it on top of our thyroid situation...there is new research on this XMRV and it says that CFS people may have a viral condition ...well enough of my rant...i wish us all good health, good mental health, good mood, good focus, good memory and weight loss!

 
Old 07-19-2010, 01:23 PM   #14
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Re: Hyperthyroid but have always had hypo symptoms

Peachy....oh hun that sounds so miserable. Believe me you have sympathy here. I'm glad I finally found a forem people actually post on! Defenatly look into antidepressants. It may take some tries but some should help your headaches, not make them worse. You could get certification in yoga! That way you have a relaxing career! I have actually thought about that.

 
Old 07-19-2010, 02:20 PM   #15
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Re: Hyperthyroid but have always had hypo symptoms

Quote:
Originally Posted by Irisheyez82 View Post
Peachy....oh hun that sounds so miserable. Believe me you have sympathy here. I'm glad I finally found a forem people actually post on! Defenatly look into antidepressants. It may take some tries but some should help your headaches, not make them worse. You could get certification in yoga! That way you have a relaxing career! I have actually thought about that.
Thanks Irish Eyes! i appreciate it-yes so happy to find this forum-at least we can rant to each other if we are all sick and we can all understand Irish eyes have you tried any antidepressant? and/or on any? I try vitamins...i take salmon oil, vit b12, b50 complex, and 5htp and these all help with one's mood....Yes i have been looking into antidepressants and may try effexor....i tried zoloft years ago and not too bad then in terms of side effects but tried this a few months ago when i was also trying birth control pill and had extreme back pain...think it was the estrogen from the pill...my brother is on zoloft and ran out and couldnt get in his doc so i gave him mine-i was gonna try it again but now they are gone...am also thinking of trying adderall for add-i read that you can get more add symptoms when you hit peri-menopause....that explains it!!

I am trying to decide if i should get my surgery for the endo on my bowel soon to extend my employment insurance and get the surgery over with...maybe when i heal i will be a lot better....i am also thinking of maybe getting a hysterectomy-just uterus-and see if he will take the metal clips off my tubes to free up the flow of blood to my ovaries...this may help the new ovarian pain...just trying to decide if now is the time for the surgery and or whether to get the hysterctomy-i just dont want to keep having to go back in for surgery for the endometriosis so would like to get whaterver surgery over and done with....not sure if a hysterectomy or even just a laparascopy again will make me worse...i really need to get working soon!

I love your yoga idea...something not too stressful that will pay me enough for my bills and to take a vacatiion once in awhile would be perfect...i am thinking bank teller...i did that when i was in university-it isn't too bad...thanks again for your support! My doggy keeps me on my toes-i have to get out and walk her and enjoy nature so she gives me a lot of happiness

I will keep you posted on health and job let you know if i try somehting and things get better

 
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