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Old 06-05-2002, 11:28 AM   #1
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memory HB User
picking a doctor

Im asking for advise about what doctor to use for hashimotos. I had mentioned before I am newly diagnosed with very high antibodies. I am hypothyroid now. I am taking 100 mcg of synthroid. I started with a lower dose and now at 100 mcg. I have been taking it for about 2 months now and I am still very tired all the time and my hair is still falling out. I go back to the doctors at the end of june and being retested. But I am seeing my family physisian for this. I have been reading so much all of you have put on here. A bit overwhelming. Im wondering if I should be seeing a endo instead. I baught this really great book on this and my doctor barrowed it to read more. I was impressed he was willing to research further but allso worried he needed to read. I was asking him about adding t3 since I was so tired still. He has never checked my t3 levels. I will say he does listen though and appears interested in anything I learn about this. Up until this point he had ran all the right test and checked my antibodies without me asking. This all probably sounds insaine but sometimes I think half the battle if not more is finding a doctor that listen's. I worry that he isnt montoring things he should and does a endo automatically check you for other autoimune problems? Im sorry for going on this long. Im just want to feel confident in my treatment and its all new to me

Thanks for reading, memory

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Old 06-05-2002, 12:12 PM   #2
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Re: picking a doctor

Endos tend to be rigiid in their treatment and not listen as well as family practitioners. You are right that or many, finding a doctor that listens is half the battle (or more...). The fact that your doctor is listening, reading, and willing to learn is a wonderful thing, so I would hang in there and let him help you.

Since you have only been on Synthroid or 2 months, that is not enough time to feel better. Sometimes it takes months or even years for all symptoms to go away, though there should be ongoing improvement as you get your levels closer to what is best for you.

Old 06-05-2002, 09:57 PM   #3
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Re: picking a doctor

Thanks for replying. Thats the way I allso been feeling about my doctor. My family keeps telling me to go to a endo. I told them what I have read on here and some of the problems people have said they have had comunicating with there endos so I felt until he isnt why not.
About waiting years for my levels to be right well not me. I am told I probably have had this that long and went undiagnosed. I finally know whats wrong and Im not stopping until I feel right. All I have done is read since I was diagnosed. My antibodies were 6,740. Normal being 0-34. I am on a mission. I have felt bad really bad for to long. I have kids and a job. If it were'nt for my awsome husband who helps alot I dont think I could have kept up my life in a some what normal exsistance. Its just so hard between being tired all the time and the stress and the memory problems let alone the physical things. I thought I had adult a.d.d. because I couldnt concentrate on anything I cant remember a name of anything. My conversations with my husband are like, "you know that one place we went with what's her name"....etc.. It's embarrising. But so is my spelling <IMG SRC=""> Okay Im venting Im sorry. Its just so awsome to find this chat board. People like me. <IMG SRC=""> The only improvment I have noticed so far is my nails are finally growing and not breaking as quick and my skin isnt as dry. My hand joints are'nt locking up anymore and I allso was haveing alot of digestion problems. The digestion problems and swollen eyes is why he tested me. The memory is still shot and I had energy for about a week then it was gone. my hair is still falling out like crazy and Im a hair dresser I know what the norm is. My neck swells up and throbs like a dull ache. It takes everything I have to keep my job. I need energy along with having a teenager and a preteen I need a loonngggg nap. <IMG SRC=""> I was under the understanding that the t3 helps with memory and energy am I wrong? again sorry for going on so long. Im sure my messages will get shorter. I guess Im just whinning.
Thanks again for responding

Old 06-06-2002, 09:09 AM   #4
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Re: picking a doctor

<BLOCKQUOTE><font size="1" face="Verdana, Arial">quote:</font><HR>My antibodies were 6,740. Normal being 0-34.<HR></BLOCKQUOTE>

Something you can look into is Selenium. Selenium supplementation has been shown to lower antibodies in some people. Start with up to 200mcg a day of it and after a month or two, lower to a maintenance dose of about 100mcg a day and see if that helps.

T3 can help with energy, brain fog, and in some cases, helps people lose weight. Selenium is also VITAL for helping your body convert T4 to T3 and may help in that respect with the brain fog and energy levels--another reason you should make sure you have enough.

Old 06-06-2002, 10:24 AM   #5
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memory HB User
Re: picking a doctor

Should I have my doctor check my t3 levels? I had never heard of the selenium before helping until I found this board. I have a number of books I have baught and they dont say anything about it. But they do talk about the t3. Im not trying to doubt the information because I think the best advise is from people with the same condition. I just get nervous about the effects of treatment. I am going to talk to my doctor about the seleium. I am worried about the high antibodies. I read in the british medical journal the it makes you 3 folds higher risk to breast cancer which runs in my family. <IMG SRC=""> Right now I am reading everything and printing info to take with me to my doctors at the end of the month. I want to be aggressive in my treatment. Im worried I have had some of the symptoms to long to totally go away. So I dont want to take months and years to wait for things to level out. So believe me Im taking all of this in. So When I go back I will be well informed and loaded with suggestions for treatment. again thanks for responding <IMG SRC="">

Old 06-06-2002, 11:34 AM   #6
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Re: picking a doctor

Testing for T3 may or may not be helpful at this point. It can't hurt, can it?

Here's a link to some initial info on the Selenium and antibodies. <A HREF="" TARGET=_blank></A>

and a link to a search that has more information: <A HREF="http://www.***********/search?hl=en&lr=&q=selenium+thyroid+anti bodies" TARGET=_blank>http://www.***********/search?hl=en&lr=&q=selenium+thyroid+anti bodies</A>

Hopefully that will get you started on the right track. It is great that you have a doc that is listening and that you are taking charge of your health!<p>[This message has been edited by Meep (edited 06-06-2002).]

Old 06-06-2002, 11:51 AM   #7
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Re: picking a doctor

Just my two cents...

memory, if your doctor is giving you good treatment and listens well, you won't be doing yourself any harm by sticking with him. And it's great that he wanted to read your reference books. ALL doctors are supposed to take courses on a regular basis to update their skills with current knowledge, but it is so hard to find the time. How lucky you are to have found a practitioner who is open-minded and interested in learning. Even "experts" always have more to learn... An Endo may help, but it sounds like you can guide this doc to treat your symptoms until you are well.

That said, you should ask him to test your TSH, Free T3, Free T4, and Antibodies every 2-3 months. (Total T4 and Total T3 can also help to give a big picture.)

I strongly recommend Selenium for the antibodies, and you may also want to read up about Maca (an herb that supports the adrenals and hormones).

And, for the indigestion, Digestive Enzymes (something that at least contains protease, lipase, lactase, amylase, cellulase and, perhaps, bromelain and papin) plus Betaine Hydrochloride taken with meals can help extremely well with digestive difficulties, bloating, gas, etc. Many of us thyroid folks develop acid reflux or "slow" digestion as a result of our disease. I find these supplements to be vital for me.

Good luck, and keep us informed.<p>[This message has been edited by ArtfulD (edited 06-06-2002).]

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