Hello everyone, not sure if the little emoticon above will work.
My name is Jillian, and I have been diagnosed with hashimotos. It was diagnosed a little over a year ago, after finally demanding an antibody test. For years, doctors have run thyroid scans, and all results came back normal. After going through about 4 docs that told me that I was depressed (not sick) I had almost given up hope and started to actually believe them.
Now my doc, after finding the hashis and putting me on two different meds (synthroid and then levoxyl) only to realise that neither of them are helping, is sending me to an endo in Seattle. Even on the thyroid meds I gained weight, forty pounds since i started them. I stopped smoking about 3 years ago too so that probably didn't help, as I have read that some thyroid problems escalate upon quitting smoking. What a trade, I quit smoking to avoid smoking related ailments and now I have to worry about obesity related ones....what a deal. (I catch myself thinking "man if i was still smoking i would feel better!! how logical is that??)
Even this referral took me taking my jeans from 2 years and 75 pounds ago, along with pictures of myself two years ago with me to the doctor and actually getting angry.
Now that I have been referred to the endo, please help me with a list of things to remember to ask him? I have been to so many docs and tried so many things that my frustration level is just over the top and I don't want to go in there and just blow the whole appointment. He is going to be rather hard to get into and i want to make the most of the appointment.
Also, anyone else with Hashis:
found a way to lose weight,
know of any successful treatments,
found a way to curb cravings for sweets,
i know these are things a specialist will probably know but i guess i am tired of having to "educate" my docs, as they weren't specialists.
Welcome, Jillian. Good for you for being persistent! I know it's a long and frustrating process, but you will get better (and being off cigarettes will help). Hashi's is particularly frustrating, as our symptoms usually present themselves long before our thyroid blood levels reach "abnormal" levels.
I found it easiest to compile a written list of questions for my docs before walking in there. That way, I can present my symptoms, my reactions to medications & diet, etc. without letting my Hypo state make me forget anything.
Talk to your doctor about your antibody levels, lack of response to Synthroid and Levoxyl, symptoms, and history. Ask if he/she would be willing to change your medicines (such as combining Synthroid or Levoxyl with some T3 like Cytomel, or changing you to a "natural" thyroid med like Armour or Naturethroid). Discuss his/her approach to treating you, what you should expect, when you should see some results, and what course of treatment may be suggested if the initial efforts don't work.
If you've not already had a chance, you might want to review both pages of our Information Archive thread. It includes a Symptoms Checklist that you can print out and present to your doctor (1/5/01 for the Hypo symptoms), links about Hashimoto's and other forms of thyroiditis (7/28/01), a link about smoking and thyroid (8/1/01), a Q&A to use to interview potential new doctors (11/2/01), 2 posts about antithyroid antibodies and selenium (2/12/02), etc.
I had thyroid cancer along with my Hashi's, so my thyroid gland has been removed. But I try to reduce my antibodies using a Selenium-containing herb called Maca (details also available on page 2 of the Info Archive, or via a web search).
Many folks on this Board have addressed the weight issue. The consensus is that it is easier to work toward weight loss once our thyroid blood levels have been balanced. Here are a couple of links to past discussions:
<A HREF="http://www.healthboards.com/ubb/Forum118/HTML/000982.html" TARGET=_blank>http://www.healthboards.com/ubb/Forum118/HTML/000982.html</A>
<A HREF="http://www.healthboards.com/ubb/Forum118/HTML/001020.html" TARGET=_blank>http://www.healthboards.com/ubb/Forum118/HTML/001020.html</A>
Popular diets include the Goddess Diet, Atkins (and other low carb/high protein options), God's Diet, and Volumetrics.
As far as the sweets cravings go, I try to drink a lot of water and eat high-protein snacks (a handful of nuts, some fish or meat jerky, etc.) when the urge presents itself. A small juice box is also helpful when I've just gotta have sugar.
Hang in there, and let us know what happens.<p>[This message has been edited by ArtfulD (edited 05-13-2002).]