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Old 12-07-2001, 07:38 PM   #1
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Need some advice about tsh levels

Hi again all !
i just got my lab results back yesterday and saw my endo.
I was sure he was going to increase my medication (i'm on 79mcgs of t4) because i am not feeling ANY better BUT he said my TSH had dropped too much and he wanted to decrease my medication !
I burst into tears and i refused, the reason he increased it last time was because my levels were low.
i dont understand and i am sure alot of people have a TSH below the referenece range.

I thought i would post my results here for u to look at:
TSH 0.1 (0.2 - 4) 6 weeks ago: 0.7
T3 3.1 (2.5 - 5.5) " " " : 2.3
T4 18.5 ( 10 - 25) " " " : 12 .7

i dont have any hyper symptoms......should i change Doctors and ask for and increase? should i wait a few weeks and see if this last dose takes some more time to kick in ?

I told him i didnt want to decrease my dose and that i'd like to b re-tested in a few weeks - his response:

" and what if u feel better but your TSH is still low? u will want to stay on it and i wont allow it, due to the risks!!!!!!!!"

GRRRRR...is he right ? am i wrong ?
My T3 and T4 levels are within normal range ...so i dont think i am at a high risk of osteoperosis etc........but i will begin having regular bone density scans to make sure....

I was hoping i could get out of bed by xmas...i would like to have begun the higher dose now....but maybe its not safe ??
i'm confused !
any insight ?

 
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Old 12-07-2001, 09:29 PM   #2
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Re: Need some advice about tsh levels

Hi little. I'm so sorry your symptoms don't match your blood tests. But I do have a suggestion. I'm not a doctor, but it looks to me like you're body isn't doing a complete job in converting T4 to T3. Hence your T4 level is in the high normals and TSH is low, yet your T3 on the low side.

Have you tried an herb called Maca? It's made a tremendous difference in how I feel. My meds are a little too high (on purpose right now before the doc does a scan), but I had a mixture of hypo and hyper symptoms. The Maca helped with my body ache, gave me more energy, fixed my internal thermostat, and my libido returned for the first time in years.

Maca is a Peruvian root, similar to a turnip, that is used in traditional medicine to promote hormone balance and a healthy immune system.

Oh. I just looked back at our Maca thread and I see I already gave you this shpeil. [EDIT: It's Yiddish. That sort of means "lecture."]

Anyway, I really think that Maca might be helpful to you in converting your T4 more completely. You can order it online or buy it in a natural food store (Royal Organic Maca, Imperial Gold Maca, etc.), and it can be taken as powder (I drink it as a tea -- 1/2 teaspoon a day; Treefrog sprinkles it on food) or as capsules. If you get hot flashes from it, decrease the dose for a couple of days and then you can increase it slowly until you find your comfort level.

It may not mix well with birth control pills, however, but I don't know if it lessens their effectiveness or if there are side effects (none are mentioned in my circular). Best to use a backup method of b.c. if necessary.

Once you're processing your medication better, your doc can take more blood tests and re-evaluate. You may need to lower your dose slightly, but it may just be that once you metabolize your current dose properly you'll be just fine.

Keep us informed.

 
Old 12-08-2001, 01:03 AM   #3
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Re: Need some advice about tsh levels

I very much appreciate your reply artful, thanx.
First thing monday morning i will get myself some maca!!....i just find it odd that the dr would want me to lower the dose considering the intensisty of the HYPO symptoms i am still having, i dont understand.
Anyways thanx again
little

 
Old 12-08-2001, 11:04 AM   #4
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Re: Need some advice about tsh levels

Hi again, little,
I have been taking the Maca, it MAY give me a little energy, but that's it. It helps others, though.

One thing that made a drastic difference for me is taking magnesium every night. Magnesium imbalance can make similar symptoms like being hypothyroid, too, as can other things.

It is imperative that your doc follow his conscience, and keep you safe, as he understands it. If he allows you to stay on a dose that overworks your heart it can give you a heart attack.

Now, something is clearly out of balance, and all we can do is keep on looking, and you can try things.
It is imperative that you get out of bed, though, right now, and walk all you can every day...the more you lay in bed the lower your metabolism will go, and the more muscle tone you will lose, and the more achey you will feel! When we hurt we want to lay low, the worse thing we can do.

Now girl, please tell me you will walk...just for five minutes at a time if that is all you can do, then add more time...ignore the pain, it is worth it. your muscles HAVE to be worked.

The information archive has a magnesium website listed...it has all kinds of very good articles.

 
Old 12-08-2001, 03:34 PM   #5
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Re: Need some advice about tsh levels

Hi, Little, I am sorry your doctor doesn't agree with you. For the record, I felt awful and was still hypo even with a TSH <.01 until BOTH my Free T3 and Free T4 were brought up above the middle of thei lab ranges. Even then it has taken some time to fell my best (STILL not there, bit getting closer than I have been in years.) Artful has good advice for you, but I thought I would add a few things:

Selenium is VITAL to help your body convert the T4 you are taking into the T3 that you need. You can buy it as a supplement (take no more than 200mcg a day) or you can eat a few (one or two should suffice) Brazil nuts a day to get you there.

Soy is EVIL. If you are eating soy in any form that is not fermented, you are not going to be able to properly metabolize the thyroid hormones you are taking. Soy increases the amount of Thyroid Binding Globulin in your blood, causing the thyroid hormones to be bound to proteins and therefore unavailable for your body to utilize it. The bound T4 would STILL show up on a Total T4 test, and your TSH could be normal, but you feel awful.

Since Estrogen also causes the same thing to happen, excess amounts of estrogen can cause you to have symptoms like that. If you are taking any birth control or Hormone replacement that has estrogen in it, this could be worth looking in to.

Just food for thought. I hope you get this figured out soon!

 
Old 12-09-2001, 06:17 PM   #6
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Re: Need some advice about tsh levels

*big smiles* <IMG SRC="http://www.healthboards.com/ubb/biggrin.gif">
THANKYOU ALL SO MUCH !!!!!!!
I will do everything u all say right away !
THANKS AGAIN FOR TRYING TO HELP!
I will try and walk TF, i promise.
The thing is...i dont ache at all !!! The probelm has been INCREDIBLE EXHAUSTION....worse since i started the medication 6 months ago. This is what has struck me down - weakness - to the point where i cant climb the stairs in my own home !

anyway i'm going to TRY to go and get all the supplements you have all suggested.
You have no idea how much your advice means to me.......you r the ONLY ones who try and help me and for that i call u all my *angels* <IMG SRC="http://www.healthboards.com/ubb/smile.gif">God Bless You
be well
little !

 
Old 12-12-2001, 01:27 AM   #7
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Re: Need some advice about tsh levels

Hi again !
A friend of mine just came home with some selenium..its "nutritional yeast"....do any of u know if its gluten free?? I will call and enquire, but somehow i relate yeast with wheat and gluten and i have celiac disease.
just curious..i wanted to start taking it tonight but better to b safe than sorry !
cheers
little

 
Old 12-12-2001, 01:00 PM   #8
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Re: Need some advice about tsh levels

Nutritional yeast (AKA Brewer's yeast here in the states) is derived from beet or cane or other types of molasses:

<B>Nutritional Yeast</B>
<I>This can come in flakes or powder. It is most commonly bright yellow, but sometimes it is a dull yellow-brown in color. It is used as a flavoring agent in many vegan dishes to simulate a cheesy flavor. It is grown from molasses and is high in many nutrients, include many B vitamins. It is an inactive yeast having no fermenting power, as do the live yeasts used in baking and brewing. It can be used in gravies, casseroles, and tastes great on popcorn. </I>

I can't find anything saying thar molasses would have an impact to celiac disease. By the way, I just discovered celiac.com has a long list of gluten-free products (including yeast) if you're interested.

If you're ordering the Royal Organic Maca, I believe it has selenium listed on its Nutrional Info box. But I don't know if it's added to the root or naturally present in all brands of maca.

 
Old 12-12-2001, 02:34 PM   #9
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Re: Need some advice about tsh levels

Hi little,
Good for you about doing some walking...it is just that muscles have to be used or they atrophy and you will become weaker! I would hate for you to have that further complication!

Now I may have broken my foot in another fall...this time not due to my imbalance, but a drop in the blacktop that was impossible to be seen in the dark.
I have blood settled internally along the side of my foot, clear around my toes.
Does anyone know if that means a break or not?

I have another appointment today...after previously asking for an X-ray and being sent home without it, just in case it wasn't so serious... <IMG SRC="http://www.healthboards.com/ubb/mad.gif">

I have not been on the board much, staying off my feet.

 
Old 12-12-2001, 04:15 PM   #10
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Re: Need some advice about tsh levels

Oh no Tree Frog!!! Im so sorry to hear about your foot! That sounds to me like it could be a break but I really dont know. <IMG SRC="http://www.healthboards.com/ubb/frown.gif"> Take it easy.
Love,
Lori

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Old 12-12-2001, 04:18 PM   #11
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Re: Need some advice about tsh levels

Little,
How are you doing?
Lori

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Old 12-12-2001, 04:43 PM   #12
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Re: Need some advice about tsh levels

Thanx artful i will look into it !
TF SO SORRY TO HEAR ABOUT THE FOOT !! thats all u need ! oh and i said i would TRY to walk...i still havent, i seriously just cant !
HI Lori !
i replied to the u in the previous message i posted, i'm still not doing well at all - still very much bed/house bound. i might b seeing a dr today about trying armour. I just dont know what to do actually. I'm going to try some maca and selenium and see how that goes. Every time i increase my dose i just get so sick for weeks - i dont want to do that anymore ! <IMG SRC="http://www.healthboards.com/ubb/frown.gif">

HOW ARE U? any better ? What dose and medication are u on ? When are your next blood tests ?
take care all!

 
Old 12-12-2001, 05:49 PM   #13
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Re: Need some advice about tsh levels

Hi,
The foot is not broken, and no ligament torn, so that is really good news. The tissue damage has to be causing the interal bleeding. No standing or walking on it for a few weeks...right!
Like you, little, I WILL TRY to take care of it!
(I know you are doing the best you can!)

Little, if you are actually on too much thyroid med, it will make you exhausted, too. So, you may need to back off the thyroid some.
And it may be something else causing your exhaustion, too.

I am so tired from all of this stuff going on...and I have a dinner party this Saturday! I may let my guests make their own food! <IMG SRC="http://www.healthboards.com/ubb/yawn.gif">
See you all later. TF<p>[This message has been edited by Tree Frog (edited 12-12-2001).]

 
Old 12-15-2001, 12:12 AM   #14
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Re: Need some advice about tsh levels

Hi Little! <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
Im so sorry to hear that you are feeling so bad!! <IMG SRC="http://www.healthboards.com/ubb/frown.gif"> What did your doctor say about trying the armour? And is the Maca and Selenium working?
Keep at it, Little, you will get through this (keep your head up) we are all here for you.
Lori

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