It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 08-29-2001, 08:42 PM   #1
Junior Member
 
Join Date: Jun 2001
Location: san antonio TX
Posts: 14
Miller93 HB User
What to do when meds aren't working...

I wanted to know what the signs are that thyroid med isn't working. I am taking .075 levoxyl as I was dx'd hypo in June. My initial TSH was 8.3 and one month later in July was 4.9-so it is coming down. I just want to know when the symptoms will go away, or at least lighten up some. Symptoms like tiredness, RAGE, insomnia, weight gain, etc. What are the signs that your body needs something more than levoxyl? And what are the signs it isn't working? Thanks.
<p>[This message has been edited by Miller93 (edited 08-29-2001).]

 
Old 08-30-2001, 10:38 AM   #2
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Hello, Miller.
I think that the fact your tsh # has gone down is a good sign. The medicine is helping. You and your doctor may decide to up the dosage if your tsh does not continue to go down. 2-3 months is not a long timewith respect to this stuff - even though it seems like an entirety to us. It is too soon to tell if levoxyl will or will not do the trick. Your body needs time to heal and then your symptoms will start to lessen. When do you get re-tested again?
Best wishes.
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">

<p>[This message has been edited by ENUFISENUF (edited 08-30-2001).]

 
Sponsors Lightbulb
   
Old 08-30-2001, 12:16 PM   #3
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

ENUF is right it takes a little time. I was diagnosed as hypo after childbirth. Dr. said my problem was easy to treat and it was except I hate to tell you that it took 3 years for everything to feel right again. I went thru many dosage changes and different thyroid formulas to get it right. Maybe you'll be for furtunate than I but 3 mos. is really not enough time for all the issues to resolve.

 
Old 08-31-2001, 05:46 PM   #4
Junior Member
 
Join Date: Jun 2001
Location: san antonio TX
Posts: 14
Miller93 HB User
Re: What to do when meds aren't working...

Thanks for your input. I am scheduled to be tested again in October (2 months after dose increased). At least there is light at end of tunnel-maybe I CAN start to feel better. Which I actually did when I first started meds. But it seems like I'm slipping again. Stress has alot to do with it with new baby and all. Adjusting to everything. I have stopped gaining weight, but not losing. I need to find energy to exercise so that I can exercise to get energy. HA!

Once again, thanks!

 
Old 08-31-2001, 10:59 PM   #5
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Good luck, Miller.
Just wanted to tell you that I have experienced that too ... I seem to feel better initially on a new dose and then I don't seem to feel so great. I think our bodies must get acclimated to the increased dosage so the initial burst of energy isn't too noticeable after a while. (Real scientific, hey?! It's just how it seems to me.) Also, I've lost weight the first week or so on a new dosage but only to regain it. I had hyper symptoms initially but then they go away pretty quickly and I'm still hypo.
Good luck with everything.
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">

 
Old 09-01-2001, 05:26 PM   #6
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

ENUF: It's spooky to read your experience with new thyroid dosages because I could have written it myself. I felt exactly the same way whereby my doctor would adjust my dosage and for a little while it seemed like the perfect answer only to feel screwed up again in a short time. This went on for 3 years or so and finally I was no longer all over the place. It's very hard to go through that and for me it was emotionally stressful because I just couldn't get it right and feared that scenario would go on for the rest of my life. Very depressing!! How long have you been treated for hypothyroidism if you don't mind me asking?

 
Old 09-02-2001, 07:32 AM   #7
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Hi, Blondegal.
That's a good question! LOL. It's been about 5 years I think. I know exactly what you mean! It is very stressful b/c each time I think the dosage is right and I get excited and then boom I'm not doing so great. (All within a real short time period.) Was there something that you think helped you get 'evened out'? I don't remember what med. you're on (?).
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">
<p>[This message has been edited by ENUFISENUF (edited 09-02-2001).]

 
Old 09-02-2001, 10:58 AM   #8
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

Hi ENUF: I'm on Levoxyl .137 now and have been for about 6 years or so. It's by far the best med I've tried and much more stable than any of the others - especially synthroid which just gave me fits (ups and downs and hair loss worries etc.) In the beginning when it was so unstable my doctor said part of that was that it just takes time!! There's no doubt about it but I also believe that we hypo patients just have to use the process of elimination to find the best med. and the best dosage. I also tried very hard to avoid stress and just go on about my life and let the medication do it's work. I found that when I quit worrying so much about it that I felt better (easier said than done sometimes when the symptoms are overwhelming and they were at times for me.) Have you tried Levoxyl?

 
Old 09-02-2001, 07:46 PM   #9
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Hi, again <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
No - I haven't tried Levoxyl. I was on Synthroid for a few years and now I've been on Thyrolar for a few months. Were you losing hair or just concerned about losing hair? I'm still losing mine! It's making me a little batty the past couple of days. I try not to think about it alot b/c I think the new med will help but WHEN!??! UGH!! (sorry - I needed to let that out - this is scary.) Unfortunately, I'm going through another stressful period. I was doing a lot better but sh*t happens in life that is beyond one's control. Not feeling or looking like myself from being hypo does not help matters. Oh well. This will pass.
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">


[This message has been edited by ENUFISENUF (edited 09-02-2001).]<p>[This message has been edited by ENUFISENUF (edited 09-02-2001).]

 
Old 09-02-2001, 08:42 PM   #10
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

ENUF: I was on Synthroid and that is when I started seeing handfuls of hair when I'd shampoo and this was very worrisome. I have noticed that happening (but never lasted very long) when I would change dosage with other thyroid formulas through the years. On Synthroid my hair got very thin and I have thick hair so it was evident that something was going on. It grew back and is not a problem on Levoxyl but I was very scared. Synthroid is notorious for hair loss. Why don't you ask your doc about Levoxyl - it works like a dream compared to the others, at least for me. I would not want to inform you incorrectly so it would be best to ask your doc if it would work for you. I was not doing well on Thyrolar either - irregular periods or none at all and emotionally a basket case. I can sympathize with the tough times - been there. Wish you the best.

 
Old 09-03-2001, 09:40 AM   #11
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Thanks, Blondegal. I appreciate you sharing your story with me. I totally need it b/c this is not something I normally discuss.
So, did the hair loss stop when you were on the Thyrolar? My periods have been getting back to normal so I think it's doing some positive things for me. But, it has been months now so I just don't know yet. My hair used to be so thick I'd get headaches sometimes from how heavy it was! (Pre-Synthroid days.) Now, well - nevermind! (LOL.) (But, I've still got handfuls when I shampoo.) Levoxyl is just T4, right? I'm not sure what the doctor will say but I should be going in about another month or so. We will have to have a long, long talk then even if I have to trap him in the exam room !! <IMG SRC="http://www.healthboards.com/ubb/smile.gif">
If you don't mind me asking, how long were you on the Synthroid? And how long did it take for your hair to come back on the Levoxyl? Thanks for listening. Otherwise, I just keep all these anxieties built up inside.
Hope you're having a good labor day weekend.
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">

 
Old 09-03-2001, 10:03 AM   #12
Senior Veteran
(female)
 
Tree Frog's Avatar
 
Join Date: Oct 2000
Location: USA
Posts: 887
Tree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB UserTree Frog HB User
Re: What to do when meds aren't working...

Hi ENUFISENUF and Blondegal,

My story is so much like yours in regard to hair loss...I too had hair so thick it gave me headaches if it were too long. Thank goodness it was thick, due to the hair loss!
The loss became worse when I was put on Synthroid <IMG SRC="http://www.healthboards.com/ubb/eek.gif"> , though that is supposed to be a temporary side-effect.
I don't know if it was temporary, because I was not on it very long. I went on Thyrolar for a short time, but my doctor did not know how to prescribe it and I was on a very low dose...I kept losing hair until I was put on Levoxyl.
It took awhile for the hair that was going to fall out to stop, and longer for the new hair to become noticeable. But my hair did grow back in.

I hope it would be the same for you! TF

 
Old 09-03-2001, 12:22 PM   #13
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

ENUF and TR: Your input is so valuable - Thanx.

I've been treated for hypothyroidism for so long it's difficult to remember exactly but I do remember that I was on Thyrolar first - my very first dosage initiated to treat my underactive thyroid problem. I felt like the formula was circulating in the bloodstream but not being used by my body. Believe me I'm no rocket scientist when it comes to treating thyroid disease so I cannot say what the problem actually was but I felt very nervous and jiggery and my eyes were constantly red and itchy in addition to no resolution to all my other symptoms (menstrual irregularities, fatigue, bloating, depression, etc.) I was on it about a year, then I was switched to Synthroid and started the hair loss business much to my distress. This never stopped while I was on Synthroid and that's when my hair got very thin. I have a very take charge doc and for some reason he completely took me off Synthroid because maybe he thought the same as I did - it was not right for me. He's the type of guy who always wants to be in the driver's seat so I dutifully switched to Levothroid, then to Levoxyl. Not at all sure why he took me of Levothroid; I sometimes have to practically wring information out of him. It was after going off Synthroid that my hair began to regrow and I haven't had the problem again to any magnitude. I was on Synthroid for less than a year so I cannot say with any authority that it was a temporary side effect.

This summer I had bloodwork done and here's what it revealed: Result
FREE T3: 3.3 (normal 2.3 - 4.2)
TSH: 1.08 (normal 0.32 - 5.00)
FREE T4: 1.88 (normal 0.71 - 1.85)

Although my T4 was a tad higher than the normal range, my doc didn't change my dosage as I told him I felt good. I feel even better by watching out for anti-thyroid foods as I have mentioned in some of my posts (namely Soy.) It's seems I'm stable for the time being and keeping my fingers crossed that something doesn't go balistic like tomorrow. LOL

XOXO Girls - you're the best!!

 
Old 09-03-2001, 07:37 PM   #14
Junior Member
 
Join Date: May 2001
Posts: 40
ENUFISENUF HB User
Re: What to do when meds aren't working...

Thanks so much, Blondegal and Tree Frog!
I am so frustrated but I'm so glad that I've had the chance to talk with you guys. I've been patient (aside from a few little fits that Tree Frog talked me down from-LOL) with this med change I think. I've tried not to think about it too much. But, now, I feel like it might be time to re-evaluate. It's been about 5 months and teh hair loss is the same if not WORSE. But, I think it's ever so slightly less dry/brittle. I'm so confused! It's like one minute I think it's getting better and my nails are growing and then the next I think it's not and my nails are breaking/peeling. My skin's a little drier but I can handle that <IMG SRC="http://www.healthboards.com/ubb/smile.gif"> I think I'm going to research Levoxyl a little in the meantime. It sounds promising which is cool b/c I thought Thyrolar was the last hope for me.
Thanks again.
ENUF <IMG SRC="http://www.healthboards.com/ubb/wave.gif">
ps I still have this large lump in my neck. It is undoubtedly larger. I'm not sure why it's uncomfortable. Maybe it's pushing on something?
<p>[This message has been edited by ENUFISENUF (edited 09-03-2001).]

 
Old 09-03-2001, 10:45 PM   #15
Senior Member
(female)
 
Join Date: Jun 2001
Posts: 104
blondegal HB User
Re: What to do when meds aren't working...

ENUF: Have you had your doc feel that lump in your neck? If so what does he/she say about it? Can you feel it or do you just have the sensation of a lump in your throat?

I went through a plethora of bad hair days with dry brittle hair. Do you drink lots and lots of water? That helped me some I think. But to this day I have coarse, thick hair. It is nothing like the glossy, bouncy hair I once had. Oh well, that's the least of my worries as long as everything else doesn't turn on me. Hang tight ENUF

BG

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
What is the deal with Methadone? dani808 Pain Management 12 01-15-2011 04:02 PM
neurologist won't help what do I do tns2436 Neurology 13 12-14-2007 09:05 AM
Have you been told you have "chronic Pain Syndrome" and what works for ya? Backinthesaddle Chronic Pain 9 11-30-2007 07:47 AM
Need My Wife To Know What To Expect lnhguy Addiction & Recovery 10 11-19-2007 01:07 PM
I am so sad....pain is worst and I don't know what to do anymore! memorize Back Problems 7 07-05-2006 05:42 PM




« Yeast? | upset »
Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Armour
Cytomel
Levothroid
Levoxyl
Potassium
  Synthroid
Tapazole
Unithroid
Xanax
Zoloft




TOP THANKED CONTRIBUTORS



sammy64 (666), midwest1 (618), FinnMaid (302), Reece (220), lisa789 (196), Tree Frog (80), mkgbrook (72), cd37 (56), Bran'sNana (44), ladybud (41)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (856), janewhite1 (823), Titchou (770), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 06:52 AM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!