I was diagnosised with hypothryoidism several years ago and i'm taking levoxyl for this. It seems things are fine until summertime. Once it's hot, i have symptoms that flare, muscle twitches and spasms, aching muscles, headache, brain fog and shaky. I've missed out on my last few summers and feel sad and lost. My physician doesn't think it's related to my thyroid. I've had blood test last year and TSH level was normal. I've been doing research on the net wondering where to turn. Could it be another hormone? Has anyone else had these symptoms and if so what have you done about it. it seems to be the heat and the sun on my skin, but i don't know and i don't want to have to miss out on the fun again this summer.
Welcome, t-searching. Those symptoms sound like hypothyroidism all right, but can also be adrenal fatigue. Did your doctor test anything besides your TSH (such as Free T3 or Free T4)?
Personally, my headaches flare-up when the weather shifts to more humidity in the summer, and again when it becomes drier in the fall. The other symptoms ebb and flow for me throughout the year, and I attribute them to my Hashimoto's antibodies.
Have you been tested for antibodies? Sometimes they make us have hypo and/or hyper symptoms (sometimes both) even without changing our TSH or other hormone levels -- at least initially.
Selenium (200 mcg/day) is supposed to be good to help fight, and maybe even eliminate, the antibodies. Also Maca can be helpful to balance your endocrine and adrenal systems.
There are some helpful posts in the Information Archive (on Page 2) that discuss both of these as well as adrenal fatigue.
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Thanks for your support. I went to the doctor today. Had a blood test done last week. I insisted. He said my TSH came back normal. He thinks it anxiety. Needless to say i wasn't happy with that answer. I told he do you know what it's like to be talking and all of a sudden your mind blanks and i can't remember a simple word. i told him that things are fine until the heat and my symptoms flare. I gave him a list of my symptoms. I also told him if he couldn't help me send me to and endochronoligist (sp). He said he would listen to my symptoms and check me over to see if there was anything physical he could find and run some tests. He would also do some research. But, i should keep an open mind because it maybe anxiety related. I told the doctor that Thyroid has an effect on the nervous system. I'm waiting on results and will get back next week. He did blood culture for several things. T3 thank goodness. I also asked for RT3. What's frustrating is that i question myself because of what the doctor says and i sometimes feel like i'm going crazy. I didn't go away from the appointment feeling better. In fact, i got teary eyed in the office. Things at work are very stressful which doesn't help. Finding this web sight has been a real blessing. I'm empowering myself. Gathering information. And getting support from other people who understand. Yeah.
The "mind fog" and emotions close to the surface are also symptoms of hypothyroidism. As is feeling agitated. Anxiety is typically attributed to hyperthyroidism. And both hypo and hyperthyroidism can be exacerbated by stress. But so many doctors just consider these symptoms to be part of being female...
Here's an article on why that's not a good approach:
<A HREF="http://thyroid.about.com/library/weekly/aa090500a.htm" TARGET=_blank>http://thyroid.about.com/library/weekly/aa090500a.htm</A>
At any rate, I'm glad to hear that your doc is taking more blood tests. Be aware that if you have thyroid antibodies (such as Hashimoto's thyroiditis), you may have symptoms of hypothyroidism, hyperthyroidism, or a combination of both BEFORE your thyroid blood levels become abnormal. It's a progressive attack on the thyroid receptors, so the symptoms precede the actual proof. Some of us fluctuate with our symptoms between hypo and hyper. That's why I recommended the Selenium and Maca.
Printouts from the Information Archive may be helpful for your next doctor's visit. There are symptoms lists, a Q&A to use with Endocrinologists, and articles and links about adrenal fatigue, supplements, thyroiditis, antibodies, etc.
Other excellent sources of information include:
<A HREF="http://www.endocrineweb.com" TARGET=_blank>http://www.endocrineweb.com</A> <A HREF="http://thyroid.about.com" TARGET=_blank>http://thyroid.about.com</A>
t-searching, are you a female? I will assume you are. If not ignore this post...K...
Did you get hormone levels checked
too? All of them. The Adrenal things sounds about right I read some info. on the a few yrs ago, I didn't look up the info. in the archives yet though.
I wrote a couple things on the Open Topics to William Green. It would be something you could try ~~~ at least until you find out what the heck it is your battling.
Also did you ever hear of the symtoms for heat stroke, or diabetes? Kinda similar with those too ,like the heat with the thyroid.
For some reason I'm thinking mostly a type of hormone though. You may be interested in a book on natural progeserone by: Dr. Lee. There might be some information of the internet too.
You may have to do some snooping to find out what's wrong <IMG SRC="http://www.healthboards.com/ubb/bang.gif">but don't give up <IMG SRC="http://www.healthboards.com/ubb/bang.gif"> It's good to be really serious about feeling better <IMG SRC="http://www.healthboards.com/ubb/bang.gif">
Get the balance in your system up and running better thats a givin.
My thyroid is messed up too on Med's., I had Graves Disease and they have to shut my thyroid off completely. So I'm battling the symtoms of too much thyroid med's. And that's not fun. But everthing I'm doing right now is working real well.
Also had a total hysterectomy so I've been though hormone hell <IMG SRC="http://www.healthboards.com/ubb/blob_fire.gif"> I fixed that up with a recipe I found in Dr.Lee's book Nat. Prog.
Did the watercure diet which I reply'd to on william greens post, (open topics) Very easy, that's one for the organs, glands, muscles, you name it. It's like the most maximum hydration you'll ever feel, totally hydrated.
Do you have dry skin at all or just sometimes? See what I'm thinking is somehow your homones or the GLANDS in your body are sometimes shutting down. You need water in every portion in your body. 85% just for the brain is made up of water.
People say " I drink alot of water and ya I feel better, but it's just not doing anything for me " Well it isn't just water, check out the reply to william. The older one and the newer ones. I can't hurt to try <IMG SRC="http://www.healthboards.com/ubb/bang.gif">
Listen I know exactly how you feel, and for the first summer I did't get that icky feeling in hot weather. Good luck to you.
That's if your Female <IMG SRC="http://www.healthboards.com/ubb/smile.gif"> Diana
Thanks to all of you for your answers and support. Went to my regular physician and he doesn't have any answers for me. He said all my results look fine. He decided to increase my meds slightly. What is causing my symptoms? I asked that he send me to an endochrinologist. He said he would. However, there are only three in the system due to PPO. D is not seeing any patients. L said he wouldn't see me since i saw B. B i saw 7 years ago and i didn't like her then. Other people have told me not to go to her because she is not any good. I'm trying to make other arrangements. i don't understand this political crap with the doctors. I also found out i can't get in for 5 months. Anyway, getting discouraged, but not giving up. i also realized that my regular doctor is not right for me. I need a partnership with my doctor. a doctor who is willing to work with me and listen. I bought a book Living well with Hypothyroidism. It's written by a patient and it's very informative. I just started reading it. Thanks everyone for your support. It's appreciated.
Heat problems boy do I know what you are talking about. I can only tolerate the heat for as little as 30 min t 1 hr. That is if I am lucky. as for doing anything in the yard or garden forget it. If I am out in the heat or it gets to hot in the house I feel like someone has used a vaccume and taken out all of the enegery from my body and I get headaches, and feel just down right bad. I want to sleep all the time in the heat. as for a Dr what state do you live in? There are some great one's in the state I am in. Will wait to here from you bye for now
Stay Happy and Healthy
Prayers to all
Good to hear from you. I live in Missouri. My regular doctor increased my meds. Bad mistake, listeing to that man. It's thrown me way into Hyperthyroidism. I called his office and he said to stay on the increase it would take several weeks to adjust. I ended up in Urgent care clinic my TSH was .o4. Man, i feel lousy, my body hurts so much, my headaches feels worse than a bad case of the flu. I am on my way to feeling better doing what a good doctor and nurse recommended. I'm flushing my system with lots of water. Also recommended to eat complex carbohydrates. I realize now. How sensitive i am to wheather changes. I do have hypothyroidism and the heat does affect me. I also notice problems going from outside to air conditioning any severe temperature change. The part of my body that seems most affected is my muscles also i get exhausted too after being outside. I am so grateful for support. My doctor is clueless. I'm definitely switching. Hey, does anyone know of a good diet or foods to help support the thyroid?
For all kinds of self-help info, get The Thyroid Solultion by Dr. Arem.
Check this thread out:
Information Archive <A HREF="http://www.healthboards.com/ubb/Forum118/HTML/000005.html" TARGET=_blank>http://www.healthboards.com/ubb/Forum118/HTML/000005.html</A>
Also, take lots of B complex vitamins, at least 50 mg a day. It is not an instant fix, but it feeds the nerves to promote healing.
I know the discouragement with most doctors. They are just human, and like us, don't listen to or relate to everyone.
We need someone that can listen to us that we can relate to.
After many years of non-and wrong diagnosis, I finally have a great doc that really listens, and we find things we both agree on, and try things together. I wish you well in that search!
Tree Frog, Thanks for your info. i feel so very sad and alone, scared too. Been pushing to get into a endocrinologist. My appt is for August 6th. i can't figure out what happens when i'm out in the hot sun - headaches, muscles twitch and spasm, insist fatigue where all i want to do is sleep - then muscle tighten up. I wish i didn't have a thyroid problem. it's frustrating. My regular doctor thinks it's all anxiety and he won't do anything to help except prescribe nerve pills. Definitely getting a new primary care physician. I was told if i do before i see the specialist i may lose my referral. It's not anxiety. Yes, the problem is creating anxiety. I've been searching for answers. Discouraged. I won't give up though. I've been praying for guidance. I didn't know how many women go have problems with the diagnosis, being heard, getting the right dosage. Is there an online chatroom that you know of for women with Thyroid conditions? I'm grateful for the boards here. Thanks for listening.
I realy know how you feel im terified because i still have no answers ,its been hard.
At least my doctor thinks i have a thyroid problem.
Probably only because i have inflamation there!
They havent sent me to an encronologist yet,but i'm having an RAIU in August.Till then i'm suffering
on my own! I will still probably have to wait months to see an encronologist!!!!
Eanyway if you need to vent your frustraion im always here (I suffer alone at home every day with my kids)and i check the posts regularly.
Hope things get better for you soon.
I have been reading about heat exhaustion and heat stroke...you may just be more sensitive to heat now as part of the aging changes.
Our hormone levels do fluctuate.
Be sure you never drink distilled water, which is depleted of important minerals. I perspire very easily in heat. If we don't have enough water intake, we get dehydrated quickly and the body needs adequate water to regulate body temperature. We need the different salts in natural water to have temp. balance, too.
I began eating a little of salted food, like peanuts in extreme heat and I feel lots better. If you take female hormones or birth control pills or eat a lot of soy products (look at all labels, there is soy in nearly all processed foods), then the estrogens in these can make one sensitive to heat.
Prescription estrogen print-outs say to avoid high temps and exposure to the sun.
I have even eaten a pinch of salt and instantly felt way better.
If you get muscle spasms, try taking potassium, in a low dose, and be sure you are getting enough magnesium.
<B>I was diagnosised with hypothryoidism several years ago and i'm taking levoxyl for this. It seems things are fine until summertime. Once it's hot, i have symptoms that flare, muscle twitches and spasms, aching muscles, headache, brain fog and shaky. I've missed out on my last few summers and feel sad and lost. My physician doesn't think it's related to my thyroid. I've had blood test last year and TSH level was normal. I've been doing research on the net wondering where to turn. Could it be another hormone? Has anyone else had these symptoms and if so what have you done about it. it seems to be the heat and the sun on my skin, but i don't know and i don't want to have to miss out on the fun again this summer.</B>[/QUOTE]
Tree Frog is right about the salt, I take a mineral sea/salt and am on synthroid. It's really helped on the heat sensitivities. 1/4 teas. mixed in a small amount of water for every quart of water, suppose to drink 1/2 your body weight in ounces daily, and if you eat any foods with caffine, like chocolate you'll need more water so watch that. Just 6 ounces of caffine or alcohol will take up to 12 ounces of water out of the system.
Also Artful D posted earlier on maca I am going to try this instead of the progesterone cream I'm using. There is a post where someone ask"Tell me more about MACA" read that!!! Sounds like a good thing to take.
Also the B-vit Complex for the nerves, and Calcium/magnesium Citrate, and getting some potassium(not too much potasium though) daily. This combination of things should help alot!!! I will restore the electrolytes (very important) that you are flushing out of your system with the water. You must replace your minerals. Are you doing anything other than water and complex carbs right now. If you don't try anything you'll never know for sure if it helps. Take care. Diana
tsearching, how did your other test come out? Did you find out anything yet? Did you read the post in this forum called:Tell me more about MACA!!!... What do you think about it? Write back soon. Diana <IMG SRC="http://www.healthboards.com/ubb/wave.gif">
Dr. Tree frog, Spungy, ect. Thanks to all of you for your replies. I am still waiting to see a specialist, but also searching for answers on my own. I went to a lecture given by a endochrinologist on Thyroid diseases and treatments. I went to find solutions to better help myself. ie. supplements, foods to try, what other people have found that works for them - postive solutions. i found it very discouraging. this doctor seemed to have photos and info. from old case studies when he first became a doctor. It scared me. these were very severe cases. (thank goodness this is not the specialist i'm scheduled to see) I asked if there was anywhere to get more information. He said to beware of things you find on net.(he seem to be from the old school of thinking.) I also asked about a support group in town. There are none. After leaving the lecture, i spoke with some women and they all seemed sad and discouraged also looking for answers. Who knows, i may start a group here. I know there is a need. I know that doctors don't have my answers; however, they can help me find my answers. I will keep searching for a good doctor who is willing to work with me. One of the lady's i met at the lecture has a seven year old daughter who is low thyroid. She has gathered lots of info. keeps a log. Gets all her daughters tests ect. She said going in with information, some doctors don't like that. She keeps pushing. Good for her. I sometimes get discouraged, but not giving up hope. I bought a poster tonight. It's by Flavia.
A song of Hope. (here is part of it) Rainbows remind us that life is an endless journey of new beginnings, of miracles, of wonder and dreams. .... Hope is a gift we give ourselves.... And although it may seem difficult to find sometimes, it is always there for us, somewhere in the heart...
t-searching, if you need a support group, you can probably find one by doing an online search. Type the words "thyroid support group missouri" into a search engine like Google.com and see what you can find.
Also, if you are still in need of a specialist, our Information Archive includes a link for patient-recommended Top Doctors. I don't know what part of Missouri you're in, but here are the results state-wide: