It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 02-19-2011, 04:39 AM   #16
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

We're all in this together.

I can understand the meltdown - an "out-of-whack" thyroid can do that to a person.

Learning about your disease should definitely help you feel better. While thyroid disease can be a pain to deal with, it's a long way from being deadly unless someone doesn't get diagnosed or is GROSSLY mismanaged with their medication.

For most of us, we can feel pretty good if we are proactive with our health and work with our doctors.

So, no worries please - definitely give yourself some assurance through acquisition of knowledge....most doctors just don't have the time or inclination to explain everything to us.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

Last edited by cd37; 02-19-2011 at 04:40 AM. Reason: typos

 
Old 02-19-2011, 03:33 PM   #17
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

cd37!

I'm reading today already...

 
Sponsors Lightbulb
   
Old 03-04-2011, 03:31 PM   #18
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Unhappy Re: UPDATE: my results after I flipped to hyper from hypo

Hey everyone. You've been so helpful and I've tried to help myself recently too, by reading some books on Depression and Hypothyroidism - the link.

It would appear that my depression is hypo related all the way. I've been treated for depression for 14 years, following a stressful life event, and only for hypo for a couple of years - and my family doc NEVER made a connection to the two.

I have symptoms of they kind of hypo that is related to depression and vise versa. I will be going into the office next week with that knowledge - and some dissapointment at how poorly I have been managed there.

I have never been offered T3 meds - only T4 meds. Although my numbers seemed to get better, my health did not and certainly not my weight or energy level. I probably should have been prescribed T3 along with my antidepressants years ago, perhaps my thyroid would have normalized.

Now, as you can see from my previous posts, I have flipped to hyper, and they think there are nodes (which I'm getting an ultrasound done this sunday to verify) and that I may need RAI. I don't want that.

I'm still confused about whether I have hypo but with hyper symptoms - like Graves I guess - or what. The doc said hashimotos is unlikely for some reason.

In short, I am ****** off. I can't help it. All along I was told to exercise and sleep well to get the depression to get better and my thyroid was never evaluated more to see if I was simply best at a TSH other than norm, and whether that was the reason for my depression.

I have suffered for years - it has ruined the quality of my life in so many ways I just want to cry telling you about it. I can only work retail, 3 days a week, though I am a business college grad with impeccable marks. I can't concentrate on most things, though I am an artist, and that brings me very little joy - though everyone predicted that I'd be "known" by now due to my "talents". I am a shell of myself and have been for my entire 20's and now half into my 30's. I am pessimistic that there will be an endo who is not 80 years old in my city, or one that is up on the new treatments, etc. All the good docs leave my city for better things.

How do you ever get better, with this kind of history?

 
Old 03-04-2011, 03:44 PM   #19
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: UPDATE: my results after I flipped to hyper from hypo

Unfortunately, your story is all-too-common.

I have read SO many stories of people presenting with symptoms and going from specialist to specialist...being treated for diseases they didn't have....or diseases caused by their hypothyroidism or hyperthyroidism (that later resolved after proper thyroid treatment).

The doctors these people saw never thought to check the thyroid or, those that did often misinterpreted the results.

If doctors even check the thyroid, they often only check TSH. Well, TSH can take YEARS to rise out-of-range while the actual thyroid hormone levels indicate hypothyroidism much sooner.

Lack of diagnosis/improper care is a universal problem and it seems to be much worse for hypothyroidism.

I think the only thing you can do at this point is to try not to look back - there is nothing you can do about it.

Moving forward, it would be to your benefit to learn as much as possible about your condition and be proactive with your care.

A great book about thyroid disease, including its psychological implications is "The Thyroid Solution" by endo Dr. Ridha Arem.

If you want to feel well while having thyroid disease, you're going to need to keep track of your labs and symptoms.

You'll need to work to identify your setpoints - the "place" within the FT4/FT3 ranges of normal at which you feel best. Then, you'll need to work with your doctor to get the proper care.

If your doctor isn't cooperative, start looking for another one. I'm on #5 for thyroid care...the first 3 endos I saw were clueless and I'm now being treated by an internist.

When you get the labs we suggested to you, please post them here and we'll help you sort through them.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

Last edited by cd37; 03-04-2011 at 03:46 PM. Reason: typos

 
Old 03-04-2011, 03:50 PM   #20
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: UPDATE: my results after I flipped to hyper from hypo

By the way, you do not have to see an endo for thyroid care. Endos are in short supply and mostly treat the ever-increasing population of diabetics.

You just need to find a "with-it" doctor. You can ask around.....you could call your pharmacist for contact info for doctors that Rx Armour or Cytomel (T3 med) - very often, doctors that Rx these meds are more knowledgeable about thyroid disease.

Most of all, you can take charge of your health now - let the frustration you have over "lost time" become motivation to change the things you can change......the power is in your hands.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

 
Old 03-04-2011, 04:01 PM   #21
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

cd37 - again you've come to my aid.

You told me earlier that my anti-tpo test of 349 only shows that I have an inflamed thyroid, but the doc said that those are antibodies - but you're saying it isn't?

I will ask the doc for all the info in my file related to thyroid since I started going there, maybe a printout, and I'm going to start a file on my computer with everything in it.

I will ask for the extra tests - the TRAb, like you suggested - and I've already asked to be referred to an endo - but I just feel pessimistic that there is even a good one in my city - Winnipeg. But, I'll do research there too.

It is very difficult finding a new doctor here, especially one that is good - so I don't know what to do about changing fam docs at this point. He seems willing to do most tests, just not that forthcoming with information I guess - plus, it's a teaching clinic - you mostly see residents who then report to the doc.

Oh, and he's off for 2 weeks now - and I must see a resident nurse to discuss the results of my ultrasound! Nice, eh?

I'm sorry for my anger - it is simply the result of looking back at so much loss of joy and vitality...honestly, I'm not sure I'll know what feels right when it comes - I haven't felt healthy since I was a teenager.

I will post my ultrasound results and see what the nurse tells me the next step is. Thank you.

 
Old 03-04-2011, 04:16 PM   #22
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

I'm happy to help - thyroid forum members helped me SO much during the earlier days of my Graves' journey and I still seek their help at times of "transition" (like when I started Cytomel)....nothing beats the voices of experience....especially with thyroid disease.

Yes, the anti-TPO test is an antibody test but, even people without autoimmune thyroid disease develop these antibodies as they age. The anti-TPO results indicate how much, if any, thyroid inflammation there might be. Levels in the thousands are associated with Hashi's but do not definitively indicate Hashi's. There is no true test for Hashi's.

If the ultrasound shows that you have nodules, there is a chance one or more of them is hyper-functioning....as in, randomly throwing off thyroid hormones - this can cause hyper symptoms in a hypothyroid person.

Not much to be done about that except to treat the hypothyroidism and "grin and bear" the hyper moments...or remove the thyroid.

To me, in a situation such as this, surgery is preferable over RAI. With surgery, the thyroid is gone once it's removed so work can begin on finding the optimal thyroid hormone replacement meds dose. With RAI, the thyroid slowly dies off, throwing off hormones in the process. This seems like it would prolong the agony and definitely makes it difficult to regulate thyroid levels with meds. Plus, a very large study showed an increase in cancer and cardiac mortality in post-RAI patients.

Now, if a person has thyroid cancer, surgery is recommended with RAI following....that is a different story. One has to make the best of what they have.

Believe me, I understand your anger. My first two endos overmedicated me with anti-thyroid drugs (when I was hyper from Graves'). This causes a person to become hypothyroid. Well, being hypo causes an increase in antibody production. Antibody production is what got me sick in the first place.

Now, a different type of Graves' antibody has made me hypo - I do wonder if my increased antibody levels ala endos #1 and 2 are responsible for my current state.

All water under the bridge...at least I learned what I needed to know to feel well while having thyroid disease and I partnered with a knowledgeable doctor that works with me.

I am aware of many Canadian thyroid forum members that have had success in finding an appropriate doctor. Maybe, if you learn enough about your condition, you can work with your family doctor and move towards healing.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

Last edited by cd37; 03-04-2011 at 04:22 PM. Reason: typos

 
The Following User Says Thank You to cd37 For This Useful Post:
mmandar (03-04-2011)
Old 03-04-2011, 04:32 PM   #23
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

I don't know, maybe I'll try the old "charm" method - you know - he's a younger doc, maybe it'll work

Would/could I be given T3 at this point for the depression or is that a no-no because I'm already hyper and have a free T3 of 11ish?

You'd think at least the depression would lessen with hyper - but no, because your body is affected in other, bad ways - so it doesn't help.

I have to tell you I'm praying at this point. I know that I could have it much worse, but it's the length of this ordeal and the damage it's already done that is the worst.

 
Old 03-04-2011, 04:39 PM   #24
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

Now that I'm hypo, I've read even more books about the thyroid - of course, mostly books about hypothyroidism.

Whenever I'm trying to convince my doctor about something, I'll tell her "it's my understanding......" and I'll quote something from one of the books I've read and let her know "who said it"

Charm is always good

Your labs are now 6 wks. old. I'd be inclined to get new labs, see what's what and then work from there.

I get thyroid labs every 4 wks. Some might consider that overkill *but* I've never had a dose "last" more than 8 wks. Since it takes SO much longer for symptoms to resolve after a thyroid hormone replacement meds dose adjustment, my goal is to "catch things" (aka change in levels away from my setpoints) before I develop symptoms.

It took me a long while to identify my setpoints 'cuz my levels were mid-range when I first started replacement and you have to titrate up slowly with doses. I wound up needing my levels at the very top of the range. I've had to convince my doctor to work towards keeping both my FT4/FT3 levels "up there".

I cannot emphasize enough just how great it feels to have thyroid hormone levels at MY best place within the range. Any deviation will bring upon symptoms - just as you have discovered.

It's taken work to get where I'm at now but it was worth every effort.

You've taken the first step....and I do believe prayer helps.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

Last edited by cd37; 03-04-2011 at 04:42 PM. Reason: typos

 
Old 03-04-2011, 05:02 PM   #25
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

I look forward to that day, and I hope it can be soon, or at least some steps towards resolution and not this constant side-stepping and going backwards.

Maybe he'll take me more seriously now that my numbers are so out of whack - he can see that there is an actual problem and not just me complaining about my feeling tired all the time, and thinking I'm just lazy and not wanting to exercise to feel better...

I think that my norm is lower than the norm - meaning, closer to 1. whatever, rather than 3.0 TSH, because I think I felt better this summer - which is when I started to flip to hyper, and I was around 1.3 TSH.

I am wondering how he'll respond to my questions about why I wasn't given T3 - I'm sure he'll site some literature out there. I will tell him that I want it if I go hypo again - period, and see what he says.

Now, if we assume that my depression started due to hypo - that was 14 years ago - is that a normal time period for graves to suddenly flip after - I thought it was more often than that? Mind you, I've only taken Levothyroxine for a couple of years - and then the flip....

Crap, I wish this was an easy-answer thing. But it sure gives me more understanding why I feel like I do, rather then just thinking the depression is doing all of this!

 
Old 03-05-2011, 05:13 AM   #26
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

Please, please, please do not use TSH to judge your thyroid status. It is a pituitary hormone, affected by antibodies and tells us NOTHING about thyroid function. The invention of the TSH test in the 1970's was truly the undoing of things for thyroid patients.

You need to look only at the actual thyroid hormone levels - FreeT4 and FreeT3.

I don't know if I'd start questioning the doctor - most doctors seem to have fragile egos. You could share your knowledge about T3 with him and ask if he thought it was appropriate for you. You could also share "The Thyroid Solution" and "What Your Doctor May Not Tell You About Hypothyroidism" with him. Both books were written by endos and they both see extensive merit in T3.

I have read that there can be a hypothyroid period with Graves' before hyperthyroidism sets in. Some thyroid forum members think they were hypo for years before developing Graves'. I think I was hypo for about a year before.

Hindsight can be 20/20.

The answers should come easier once you get some new bloodwork and an ultrasound.....then, you can come up with an action plan.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

 
Old 03-07-2011, 06:21 PM   #27
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

Okay - have my ultrasound results,

I have a multi-nodular goiter. My doc is referring me to a female endo in the city who is supposed to be very good, though very busy bc she works in a hospital.

They've already contacted her and (over the phone with the doc) she prescribed me anti-thyroid meds as well as a low dose of beta-blocker because I have some tremors.

I'm guessing everyone has the same stuff - it's TAPAZOLE - 5mg as well as ATENOLOL - 25mg. I'm a little worried, because on the info sheet for Tapazole it lists Atenolol as a conflict... so why would I get them together?

Also worried, because if there is a side-effect to be had I am guaranteed to have it, and Tapazole shows tons of crazy and bad side effects. I'm not too concerned with a little this or that, but what if I get a bad reaction - it seems people can seriously get ill on this stuff?

I know I'm ill right now anyways, but at least I can function. Would they give me another drug if I have a reaction - or is that all that's out there?

Thank you guys for your support.

 
Old 03-07-2011, 07:15 PM   #28
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

reactions to Tapazole are mostly dose-related. I took 10mg and lower for 27 months and had no problems. I know a thyroid forum member who has taken 12mg on average for over 30 years. It's the people who are over-dosed that have the allergic reactions and the liver enzyme issues.

5mg is a low dose - best to divide it into two/day to keep your thyroid hormone levels more stable.

You should take the Atenolol two hours apart from the Tapazole - many thyroid forum members have taken this combination of meds with no problems.

If by some freak chance you have a negative reaction to Tapazole, there's always PTU.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

 
Old 03-07-2011, 08:45 PM   #29
Member
(female)
 
Join Date: Jan 2011
Location: canada
Posts: 73
mmandar HB User
Re: Hi all, my results after I flipped to hyper from hypo...

cd37 - you're so great!

That info is super-helpful - all I've been able to find is really scary info on it.

I hope you are well also. In being helped we sometimes forget to ask how the helper is doing...

How are YOU cd37?

 
Old 03-08-2011, 04:19 AM   #30
Veteran
(female)
 
Join Date: Oct 2009
Posts: 364
cd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB Usercd37 HB User
Re: Hi all, my results after I flipped to hyper from hypo...

mmander - you are just so sweet - thanks

I have found that, with thyroid disease, it's those of us slightly farther "down the road" that are able to offer that wonderful 20/20 hindsight.

I have engaged in ongoing research since my Graves' disease Dx back in June 2007 (yikes - almost 4 years)....am very happy to share. Plus, after participating on thyroid forums for just as long, I remember many stories . We're all in this together.

Thanks for asking about me - I am feeling fabulous!

Now that I've identified my setpoints ("place" within the ranges of FT4/FT3 normal at which I feel/function best), I will continue to lab every 4 weeks in the hopes that I can "catch things" - in other words, if my levels start to move away from my setpoints, I can adjust my meds dose(s) and get those levels back where they need to be before I develop symptoms.

Only time will tell.....that's how it is with thyroid disease. But I do think I'm onto something .

Please keep posting here and sharing your labs - we can help you stay on track.
__________________
Dx'd Graves' June 2007..used ATD's, achieved remission Nov '09....went hypo Mar '10

Last edited by cd37; 03-08-2011 at 04:20 AM. Reason: typos

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
I am confused by my anti-body and thyroid results.. Please help clarify. mkgbrook Thyroid Disorders 4 08-07-2007 12:31 PM
Hypo symptoms Hyper results lemondrop26 Thyroid Disorders 7 06-28-2007 10:19 PM
Got my big list of thyroid lab results back... SadFreek Thyroid Disorders 18 08-11-2005 04:10 PM
Am I hyper ? or still hypo ? lab results mintchocolate Thyroid Disorders 7 01-27-2004 08:14 AM
MY LONG list of both MY Hypo/Hyper Symptoms and results say "normal" huh? Thyroid Disorders 5 01-11-2004 10:28 AM

Tags
flipping, graves disease, hyper, hypo



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:03 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!