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Old 03-14-2011, 12:37 AM   #1
Join Date: Sep 2004
Location: Alabama
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Sandy373 HB User
Unhappy 9 days without synthroid/total thyroidectomy

At my last check up, my doctor informs me he is leaving the practice to spend more time with his family and I will not be able to get any refills from their office. I called to get into a new doctor that was accepting new patients but it was weeks before I got a letter to be accepted as a new patient. Then took a few more weeks to get into him for an appointment. I asked if they could get me a refill and they said no. I called the pharmacy and got no answers from them either. Anyways to make a long story short, I had a total thyroidectomy and have been taking synthroid 100mcg (was just dropped down from 112mcg). I ended up having to go 9 days without it. I'm concerned how serious this could effect me. I have already started feeling symptoms.

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Old 03-14-2011, 02:20 AM   #2
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RUFUS100 HB UserRUFUS100 HB UserRUFUS100 HB UserRUFUS100 HB User
Re: 9 days without synthroid/total thyroidectomy

could you contact your surgeon maybe? I would think you might need meds before long. Just a suggestion to contact the surgeon. There is always an er or quick care facility but that can be expensive. I wish you the best of luck. Hang in there.

Last edited by RUFUS100; 03-14-2011 at 02:20 AM.

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Sandy373 (03-14-2011)
Old 03-14-2011, 04:54 AM   #3
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Re: 9 days without synthroid/total thyroidectomy

I agree, call the surgeon, or try to get to see an endocrinologist (try a waiting list or something), or call and leave a message for the new doctor to call back, and say "I had my thyroid removed x weeks ago, please have the doctor call me and tell me if it's okay that I have no renewal for my medication.....please ask him to call me..."

I find often it's not the doctors that prevent you from getting what you need but the staff.

In the meantime, I was without meds for 6 weeks after my surgery for cancer treatment/rai prep, and I'll tell you by week 4 it hit me. Of course, you will survive if you don't have it for a few weeks, but it's not pleasant.

I think you should keep trying, also, I think a visit with an endo. is helpful after a thyroidectomy, the regular doctor can manage after.

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Sandy373 (03-14-2011)
Old 03-14-2011, 06:54 AM   #4
Join Date: Sep 2004
Location: Alabama
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Sandy373 HB User
Re: 9 days without synthroid/total thyroidectomy

I have my synthroid now, thankfully. It's been about 5 years since I've had the thyroidectomy. The surgeon retired a few years ago. I weighed in going to an emergicare but money has been tight and insurance was an issue too. I didn't think it'd be a problem to get a refill but it turned out to be much more difficult than I had imagined. I know it takes a while before you feel the effects of being off it and it takes a while to get back on track. I just wasn't sure if I should be concerned and didn't know what to expect. It's the first time I've ever missed more than one or two doses. Thank you everyone for your responses. I wasn't able to find anything online about what happens if you miss that many doses and my new doctor wasn't helpful either. Does anyone know how long you can go without it without dying?

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