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Old 06-13-2011, 05:39 AM   #1
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Nightime Breathing and Thyroid

Ok guys, recently the pharmacy screwed up and accidentily cut my Levothyroxine in half. Note, I am only on .05 (which made me feel pretty much better). Anyways, prior to my hypo diagnosis I began noticing a tightness in my neck and also that I would wake up at night gasping for air, this would scare the living hell out of me. Anyways, when my levels started to level out (high end of my TSH range) this issue began to go away.

Anywho, when the pharmacy cut my dose in half all the usual symptoms returned. Rundown tired feeling, bloated, needing tons more sleep than a 26 yr old should need, just feeling out of whack. Also, the tightness in my neck came back along with the waking up gasping for air. It seems that this time the symptoms came back worse then when I wasn even on levothryoxine.

My question is, is the neck/gasping at night issue common. Also is it common that once on levothyroxine, if you dosage is lowered, do you symptoms come back worse.

PS: I called my doc and am currently back on .05 I was off my needed dose for roughly 3.5-4 weeks (started feeling sysmptoms return after first week.)

 
Old 06-13-2011, 07:08 AM   #2
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Re: Nightime Breathing and Thyroid

Tightness in the neck/gasping for air (called "air hunger") are common symptoms of low thyroid.

And, if the lowered levo dose resulted in your thyroid levels being too low for you, most definitely, symptoms can come back.....sometimes worse than before and sometimes new symptoms.

SO happy for you that you're back on your much-needed dose....hope you feel back-to-normal sooner rather than later.

Just for the record, it isn't optimal to look at TSH for dosing purposes. TSH is a pituitary hormone and, once a person is taking thyroid hormone replacement meds, the hypothalamic-pituitary-thyroid feedback loop is interrupted. This makes TSH levels not too useful.

It would be much better for you to watch your actual thyroid hormone levels:

FreeT4 (T4 or thyroxine, free, direct)
FreeT3 (tri-iodothyronine, free, serum)

Most people (especially younger men) need both levels at least in the top half of the range, if not the upper third of the range.
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Old 06-13-2011, 07:13 AM   #3
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scottyg354 HB User
Re: Nightime Breathing and Thyroid

Quote:
Originally Posted by sammy64 View Post
Tightness in the neck/gasping for air (called "air hunger") are common symptoms of low thyroid.

And, if the lowered levo dose resulted in your thyroid levels being too low for you, most definitely, symptoms can come back.....sometimes worse than before and sometimes new symptoms.

SO happy for you that you're back on your much-needed dose....hope you feel back-to-normal sooner rather than later.

Just for the record, it isn't optimal to look at TSH for dosing purposes. TSH is a pituitary hormone and, once a person is taking thyroid hormone replacement meds, the hypothalamic-pituitary-thyroid feedback loop is interrupted. This makes TSH levels not too useful.

It would be much better for you to watch your actual thyroid hormone levels:

FreeT4 (T4 or thyroxine, free, direct)
FreeT3 (tri-iodothyronine, free, serum)

Most people (especially younger men) need both levels at least in the top half of the range, if not the upper third of the range.
All I know is that this thyroid ordeal has been the biggest disaster of my life. I thought I was dieing initially.

 
Old 06-13-2011, 07:23 AM   #4
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Re: Nightime Breathing and Thyroid

Believe me, I can relate. And, you are too young to have to be dealing with thyroid disease - so sorry you have this burden.

All I can tell you is, your battle will be much easier if you are proactive with your care.

Check your meds each time you get them filled - make sure the dosage is right and also be sure to get the same manufacturer each time (if you take generic). Different manufacturers use different fillers that can affect absorption. Different absorption rates mean different levels of effectiveness.

Also, be sure to get the right labs every 6-8 wks. after any dose adjustment....and keep getting dose adjustments and labs until you no longer have symptoms (and probably FreeT4/T3 levels in the upper third of the range - if not higher.)

Continue to get labs at least every 8-12 wks. after you've stabilized on a dose (or sooner if you develop symptoms).

I've been hypo since March 2010 and found that I need labs every 4 weeks to stay on top of things since no dose has "lasted" more than 8 wks. for me - I invariably needed a dose increase.
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