It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Thyroid Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-19-2011, 11:00 AM   #1
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Hashimoto's Thyroiditis and Swollen Lymph Nodes

Hello everyone,
I have had swollen lymph nodes in my neck for 4 weeks. I went for an ultrasound and the radiologist said in his report that my thyroid is suggestive of Hashimoto's thyroiditis. There were no focal nodules on the thyroid but lots of nodes in the area of symptomology. I have now been referred to a specialist but I still don't even have an appointment (Canadian health care can take time). Could Hashimoto's thyroiditis cause the swollen lymph nodes or should I be worried about something else (like lymphoma). I can't find anything online that suggests Hashimoto's could cause swollen lymph nodes. I really want to have a biopsy done but my doctor personally called the doctor that does biopsies last week and I don't even have an appointment yet. I don't have any signs of lymphoma and my blood work is fine. Any other time in my life I would be more calm but right now I have to make some important decisions. I am planning to move from Canada to the United States in just 2 months to marry an American. I won't have medical insurance right away when I move and we're considering postponing the move if this is something seriously wrong with me. The visa situation is very strict and complicated for US immigration and I need to make important decisions now or else I will risk losing a lot of money and having to start the visa process over. We've already waited 2 years for this visa and I will be devastated if I can't move this fall. Any advice would be greatly appreciated. Thank you!

 
Sponsors Lightbulb
   
Old 07-19-2011, 11:17 AM   #2
Senior Veteran
(female)
 
Join Date: Mar 2011
Location: USA
Posts: 3,484
sammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

So sorry you are in such a tough spot.

Swollen lymph nodes can be caused by so many things.

I do know they can be associated with hypothyroidism.

When you say your blood work is fine.....what blood work are you specifically referring to?

If it's thyroid blood work, "fine" often means the results are in the normal range. Yet, they could very well not be YOUR normal.

If you'd like to share your lab results(with reference ranges since they vary), we can help you determine whether or not your thyroid is really fine.
__________________
Graves' 2007...remission 2009....hypo 2010

 
The Following User Says Thank You to sammy64 For This Useful Post:
dantez11 (07-19-2011)
Old 07-19-2011, 11:21 AM   #3
Senior Veteran
(female)
 
Join Date: Mar 2011
Location: USA
Posts: 3,484
sammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

Just so you know, I'm not suggesting that possible hypothyroidism is definitely the cause of your swollen lymph nodes - I'm just trying to help you identify one possible cause.

Is is possible for you to seek private care to expedite the evaluation?
__________________
Graves' 2007...remission 2009....hypo 2010

 
Old 07-19-2011, 11:24 AM   #4
Member
(female)
 
Join Date: Jun 2011
Location: CA
Posts: 75
sillygal HB Usersillygal HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

Hello, I'm not sure about swollen lymph nodes being related to thyroid problems. However, I myself have had lymphoma (and now am having thyroid problems as a late side effect to treatment...). I was "lucky" and had a highly treatable/curable kind (Hodgkin's). However, you said your blood tests were normal which is actually a very good sign. I'm not sure if this is true for all lymphoma survivors, but before I was treated my blood tests were absolutely insane. My white blood cell count was through the roof, I mean really really high. So if blood tests have anything to say about it, you should be fine. Also, in regards to the lymph nodes, lymphoma tends to present as painless swollen lymphs, so if you're having pain with the swelling this is actually a good thing. Best of luck to you.

 
The Following User Says Thank You to sillygal For This Useful Post:
dantez11 (07-19-2011)
Old 07-19-2011, 11:49 AM   #5
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

Thank you so much for your reply Sammy. I meant my CBC blood work was fine. I will be getting the results of the thyroid blood work on Friday. My family doctor said since my CBC was fine and I don't have any other symptoms besides swollen lymph nodes, lymphoma was unlikely to be the cause of my swollen lymph nodes. She thinks the Hashimoto's could cause swollen lymph nodes. However, I haven't really found any examples of people having swollen lymph nodes from Hashimoto's (or other thyroid problem) but I have heard many examples of people getting lymphoma with no symptoms except swollen nodes and perfect CBC. There are also other types of cancers that can cause swollen lymph nodes or spread to the lymph nodes.

Below is what my ultrasound report stated...

"right lobe of thyroid measures 4.1cm by 1.5cm by 1.5cm while the left lobe measures 3.6cm, 1.2cm by 1.3cm. The isthmus measures 3mm. The entire thyroid gland demonstrates doffusely inhomogeneous echotexture although no focal nodules are identified. However, the thyroid demonstrates diffusely increase vascularity and the appearance are suggestive of Hashimoto's thyroiditis. The submandibular glands appear normal bilaterally. The parotid glands are unremarkable allowing for the presence of a few small nodes on both sides. In addition in the area of clinical symptomatology in the lateral posterior neck region a number of nodes are identified bilaterally."

To me it sounds like the swollen lymph nodes are related to my thyroid problem. However, I have my interview for my visa in Montreal in just 3 weeks and it is very unlikely I will get a biopsy before then. Once issued the visa, I have a limited amount of time to enter the US otherwise I have to start the process all over again (and it is a long and expensive process). I currently have the option of postponing the visa interview but the next interview available is in December which is right before my fiance deploys again. It also means we have to cancel our wedding which is planned for October 9th. I really don't want to delay if I don't have to. Therefore, I was hoping to hear if it is common for people to get swollen lymph nodes for extended periods of time with Hashimoto's or other thyroid problems.

There is no private care in Canada. The fact that my doctor personally called rather than just sending a referral is the best way to get things moving. I live in the wonderful land of "free" health care but it has it's major disadvantages in terms of wait times.

 
Old 07-19-2011, 12:12 PM   #6
Senior Veteran
(female)
 
Join Date: May 2005
Location: NY
Posts: 3,655
Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

I hope you don't change any of your life plans. I hope you can take care of your health, while still going forward with them.

If the lymph nodes are over a certain measurement, I thought the protocol was to first wait and re-evaluate in something like 6 weeks, and then if they are over a certain measurement, then take a chest x-ray, and perhaps biopsy them with a needle---that's what they were going to do for my son, but thankfully after six weeks they went down, and then away.

There is also a rubbery vs. a hard feeling to the worrisome lymph nodes.

I don't know if they are from the hashis or not, I don't think that's the kind of thing that can be determined---I think you can rule out other things, but never know the cause if it's not one of the things you have ruled out---if that makes any sense? In terms of mine, I had enlarged lymph nodes (no hashis) along with my thyroid cancer, but my surgeon took some out, and determined they were benign (even though my nodule was cancer). So he was pretty sure it was just a coincidence.

 
Old 07-19-2011, 01:00 PM   #7
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

Thank you all for your replies. Unfortunately, I can't continue with my life plans until this is resolved. I have until the end of the month before I have to make a decision about my October 9th wedding. We don't want to have people books expensive flights only to find out I can't be there. If I need treatment for something I have to stay here to get it. With the US visa I can't cross back into Canada for a year or so. Since I probably won't have an answer by the end of the month, I'm almost positive my wedding is cancelled. That's pretty devastating to a 24 year old woman who has been looking forward to this for almost 2 years. However, all that really matter to me is that I get to move and be with my fiance. A wedding is only one day.
My doctor doesn't think I have cancer because there are no focal nodes on the thyroid itself. However, I can't go off of what a GP says when there is so much at stake here. I just wish I could see a specialist or get a biopsy. I can't believe I don't even have an appointment yet. So frustrating!!! I am very grateful for free health care in Canada and overall I have been very happy with it but the wait to see a specialist are ridiculous!

 
Old 07-19-2011, 01:47 PM   #8
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

By the way, did anyone have any idea what my ultrasound results mean? I posted them earlier in this thread. Thanks!

 
Old 07-19-2011, 03:47 PM   #9
Senior Veteran
(female)
 
Join Date: May 2005
Location: NY
Posts: 3,655
Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

Your ultrasound it seems, to indicate hashis, so that's okay. You can also go thru. old posts here to see others that have had enlarged lymph nodes. You can also go to the lymphoma board here----but your normal blood work may really exclude that.

Your GP doesn't seem that alarmed---have you had these lymph nodes for many months? Are they over whatever cm is suspect? Are they hard, or are they rubbery?

I have been through thyroid cancer (which based upon your ultrasound is not an issue for you) and my mom has stage 4 breast cancer, and I know you have your worries, but based upon my experiences, I would never delay a wedding----(my mother traveled to europe for a family wedding with stage 4 and was very happy) things often turn out much better and differently than you expect even in worse case scenarios----besides----your blood work is too normal, you don't seem to have symptoms such as night sweats or other cancer symptoms, I really wish you health---and a wonderful wedding!

 
The Following User Says Thank You to Reece For This Useful Post:
RUFUS100 (07-20-2011)
Old 07-19-2011, 04:06 PM   #10
Senior Veteran
(female)
 
Join Date: Mar 2011
Location: USA
Posts: 3,484
sammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

For whatever it's worth, not only are swollen lymph nodes mentioned in conjunction with Hashi's on threads here but, if you search hypothyroid symptoms and look at the lists compiled from patients' experiences, you'll find them on some of the lists.

Since your ultrasound indicates Hashi's, how about asking your GP to run some thyroid tests for you? You'll want:

FreeT4 (T4 or thyroxine, free, direct)
FreeT3 (tri-iodothyronine, free, serum)
TSH (thyroid stimulating hormone)

If either/both your FreeT4 and FreeT3 thyroid hormone levels are below mid-range, that's a sign you have hypothyroidism....and this could be a cause of the swollen lymph nodes.
__________________
Graves' 2007...remission 2009....hypo 2010

 
Old 07-19-2011, 04:18 PM   #11
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

My doctor ordered thyroid blood tests yesterday and I get the results on Friday. I know everyone thinks I should continue with the wedding plans but if there is something serious going on, I have to stay in Canada. With my visa, I can't go to the wedding then return to Canada because once I cross the border, I can't come back for about a year. I'm not really comfortable continuing with the wedding plans until I get a biopsy or see a specialist.
Thank you so much for all the information. I'm hoping the swollen lymph nodes are related to Hashimoto's thyroiditis and nothing more.

 
The following 2 users give hugs of support to: dantez11
RUFUS100 (07-20-2011), sammy64 (07-20-2011)
Old 07-21-2011, 02:36 PM   #12
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

I am very anxious as I await my test results tomorrow. I know something is not right in my neck based on the ultrasound and the many swollen lymph nodes all over my neck (which seem to be getting larger and more numerous daily). I'm very worried that it's something worse than Hashitmoto's (like cancer) since I have absolutely none of the symptoms associated with Hashimoto's thyroiditis. In fact, I have lost weight for no apparent reason over the past 2 months and I am now less than 100lbs. Does anyone know of anything else besides Hashitmoto's that could cause the results of my ultrasound to be what they were? I still can't even get an appointment scheduled to see a specialist right now! Is it possible to have no symptoms of Hashimoto's yet have a bad enough case that my lymph nodes are out of control? Thank you so much for the support. I feel like I am going crazy waiting.

 
Old 07-21-2011, 04:13 PM   #13
Senior Veteran
(female)
 
Join Date: Mar 2011
Location: USA
Posts: 3,484
sammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB Usersammy64 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

I completely understand your concerns....and, you have way too many of them to deal with at the same time - it's not fair.

I'm sorry but, I don't have any answers for you.

I don't know how much weight you've lost over the past 2 months but, people with undiagnosed/improperly treated Hashi's do report weight loss.

And, maybe it's possible that you were busy with all your plans and the stress of it wore on your body, causing the weight loss.

Unfortunately, we don't always get the answers we want/need fast enough....with many things in life.

While I do not deny that I am concerned for you, I will keep thinking positive thoughts. You have lots of living to do and I'm going with the thought that you have Hashi's.

Please keep us posted
__________________
Graves' 2007...remission 2009....hypo 2010

Last edited by sammy64; 07-21-2011 at 04:14 PM.

 
Old 07-21-2011, 04:58 PM   #14
Senior Veteran
(female)
 
Join Date: May 2005
Location: NY
Posts: 3,655
Reece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB UserReece HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

I don't know, but your report says "small nodes" --- does your report also say "need biopsy or further study"??? Did your doctor say these were large enough to biopsy? There are protocols---they may be too small to biopsy?

This board has lots of people complaining of everything from weight loss to weight gain, to lymph nodes, and so many things, you can search posts on here to find other experiences.

Did you try the lymphoma board here? They may have better info. on lymph nodes for you.

I hope you can ease your fears and anxiety soon.

 
Old 07-21-2011, 06:56 PM   #15
Junior Member
(female)
 
Join Date: Jul 2011
Location: Canada
Posts: 30
dantez11 HB User
Re: Hashimoto's Thyroiditis and Swollen Lymph Nodes

I really truly appreciate the support. Sammy and Reece the information you have provided is invaluable to me! Everyone I know just keeps telling me not to worry and everything will be fine but I can't stop worrying about this. I'm really hoping to find something out tomorrow!

The report didn't say anything about needing a biopsy but my family doctor referred me to a doctor to get a biopsy done. Since I live in Canada I still haven't heard back from the specialist even just to schedule an appointment.

I did try the lymphoma board but I didn't get any replies despite many views.

I'll let you know what I find out tomorrow. I'm sure I'll need help understanding the lab reports. Thanks again!

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
Going on 7 months of persistently swollen lymph nodes CW1984 Thyroid Disorders 8 02-16-2012 04:52 PM
Hashimoto's, complex nodule - swollen lymph nodes in neck? Lugrita Thyroid Disorders 8 12-28-2011 09:15 AM
lymph node pain after RAI JENDAUGHERTY Thyroid Disorders 3 07-23-2011 12:21 AM
Chickenpox, anemia, now thyroiditis??? 71rivers Thyroid Disorders 0 04-07-2011 09:26 AM
Hashimoto's thyroid pain, but no goiter? ac130 Thyroid Disorders 8 06-26-2010 11:09 PM

Tags
hashitmoto's, lymph nodes, thyroiditis, us immigration



Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Armour
Cytomel
Levothroid
Levoxyl
Potassium
  Synthroid
Tapazole
Unithroid
Xanax
Zoloft




TOP THANKED CONTRIBUTORS



sammy64 (666), midwest1 (618), FinnMaid (302), Reece (220), lisa789 (196), Tree Frog (80), mkgbrook (72), cd37 (56), Bran'sNana (44), ladybud (41)

Site Wide Totals

teteri66 (1136), MSJayhawk (941), Apollo123 (857), janewhite1 (823), Titchou (773), Gabriel (743), ladybud (667), sammy64 (666), midwest1 (655), BlueSkies14 (610)



All times are GMT -7. The time now is 04:54 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!