Hello ~ I have done SO much research since I found out I have a very overactive thyroid.
5 month history:
I noticed extreme muscle weakness inmy legs and hand tremors around March. I basically blew it off until I had to go to my Dr. for a sinus infection on July 1st. First thing she said was "you have an enlarged thyroid." Surely, not. I said. I have very large tonsils (lol) She gave me antibiotics and sent me for blood draw.
2 weeks later, I have to call and ask about the results. All she tells me is that I'm "very, very, very, very, very (ye, she said it 5 times) hyperthyroid and to see an endo ASAP, whom which she gave me name & number, etc, and said she'd forward my labs.
So, I immediately call and only opening is exactly a month away. fine. I scheduled it, and it will be next Friday the 12th.
A couple of weeks go by and my body starts freaking out. I'll spare the details because they were standard... I went to Urgent Care because I felt I may have been going through thyroid storm. fatigue, confusion, 145 bpm heartrate.
My attending calls for my labwork and is appalled I wasn't told the #'s and that I wasn't put on temporary beta blockers.
MY Free T3 was 24.7
Free T4 was 6.68
TSH was 0.010
I just got these results last week. 1 month later. He puts me on 20mg Propranolol and says to be careful my BP doesn't drop too low. I tell this to my manager and now I can't return to work without proper restrictions from the Dr. *sigh* I call, no one returns my call. I went back to Urgent Care Tuesday, and they decide to admit me again...
So, I tell them, I want new labs and I want to be checked for hemochromatosis, and gimme a work release/restriction. blah blah blah I just got my results this evening in the mail.
negative for hemochromatosis, but now my
Free T3 is 27.75
Free T4 is 7.69
this is all within a month. I've lost 10 lbs. nothing fits me anymore. While this may seem a nice side effect, I'm completely insomniac, can barely eat. my eyes fill heavy, & I'm starting to get dark circles.
Monday I am going to see an acupuncture/accupressure Doctor of Eastern Medicine, and then my Endo on Friday if I'm not dead by then.
is there anything I should be doing? How high can free T3 get before I'm in a crisis situation? I have missed almost 2 weeks of work because first I could not get up. I was shaky, and nervous, and would sleep for 14 hours. Now, I can't fall asleep until 7am and sleep until 4pm.
I'm covered under FMLA, but it doesn't pay. Short term disability next if I have to go through various follow-ups and feeling terrible from meds...
Does anyone have a similar story? what should I expect for my first endo appointment? Am I going to have to fight or argue for tests, alternative treatments, etc?
If you read all this, thank you from the bottom of my heart!!