clare1982; They are asleep! It is a miracle!
so ive been to the docs again today who has now diagnosed me with having Graves disease as well as my overactive thyroid, ive to have my bloods done tomorrow to check my thyroid levels Graves is the autoimmune hyperthyroid disease. This is where your own immune system produces TSI - thyroid stimulating immunoglobin and TRAB and antibody. These work as slave drivers to your thyroid. Even when your pituitary gland does not produce TSH (thyroid stimulating hormone). Your immune system produces the TSi to takes its place. This results in your thyroid continually spitting out T4 hormone in an effort to make this demand.
How do you fix it when your body has decided to attack itself? Well you have three main options.
1) You can use medication (anti-thyroid medication - ATDs) to slow down the production of T4 by inhibiting both TSI and TSH production. This is a slow process that requires titration just like hypothyroid patients experience. You start with dose X and have to wait for your blood chemistry to equalize. This takes about 2 weeks. It takes an additional 2-4 weeks for your symptoms to catch up to your blood chemistry. So every 4-6 weeks you should test your blood FT3 and FT4 levels and adjust meds accordingly until your are optimal in range. What does this mean? Optimal is 60-80% of normal range where your symptoms GO AWAY! Yes they can go away! Exciting huh!
2) Thyroidectomy - remove the thyroid and then titrate as above with T4 supplementation and T3 supplementation when necessary.
3) RAI Ablation - This is the gamblers treatment in my opinion. In many cases you take a large dose of RAI and it fails to kill the thyroid completely, but damages it irrepairibly. In these cases you have erratic out put and hypoT medication becomes difficult. Then there is the case where too little RAI is used. This tends to **** the thyroid off in my experience. THis happened to family members twice. The end result was thyroid storms and more. Solution - thyroidectomy.
As a family we prefer to try the ATDs first. If this doesn't work we go for the thyroidectomy. RAI has given us nothing but trouble and an increase in issues like thyroid eye disease.
Ive just felt utterly horried and down in the heart feeling as tho this will never get better im so fed up now im 4 weeks in and my doc says that it could take anything up to 2 yrs for my thyroid levels to adjust back to normal he also went on to saying that my Goitre is swallen and they wont really do anything other than make my thyroid go underactive cause im still young and may want more kids!! ive got flippin 3 already This confuses me. It is like your MD is saying that they plan on making you hypoT and keeping you that way. That they are incapable of treating you optimally. If you get a thyroidectomy are the so incompetent that they can not treat someone with a dead thyroid or removed thyroid. Heck I got pregnant and had a beautiful baby girl with a dead thyroid. True I had to test my thyroid levels every TWO weeks my first trimester and I was bumping my dosage every two weeks to compensate. But I was at an optimal thyroid supplement level by the middle of my 2nd trimester. Note to your MD, you do not want to be pregnant in a hypoT state. If you are then there is a chance that you will cause mental retardation and more to your developing fetus.
As to treating the goiter, when your thyroid is calmed it will be less inflammed thus less swollen. Right now the thyroid tissue is overworked and inflammed due to over use. Think of it as how your muscles feel after hours of working out. They burn and get tight. Well what happens when you over work muscles? Well you can tear muscles and get muscle strain. This is what is going on with your thyroid it has gland strain because it is being made to work out and then work out more. If you can give it a break the swelling will go down.
I really dont know what to do any more, this is driving me around the bend!
I would see if you can get an ENT consult for the thyroid goiter. Maybe you can get better treatment through a secondary route. Also insist on ATD treatment first and REGULAR blood work checks. Every time you get blood work drawn insist on a copy for your records. Then SHARE! We will give you our 2 cents.
I feel as tho the doc doesnt know what he is saying or i dont know which directon im going Given your side of the story I question this guys competency. It can take two years to reach an optimal treatment state. There is no quick fix when it comes to artificially regulating one of your most complex endocrine systems. This maybe what your MD was trying to say, I wasn't their. But I concur on the no RAI. Go for the reversible treatment first. ATDs. If those do not work.. well if you are going to kill the thyroid why not remove it to ensure that it does not come back to bite you in the proverbial backside.
Hope this helps. With out copies of your lab work results and ranges I can not give any truly specific advice.