Thank you for your reply, it's dearly appreciated.
25 mcg decrease? would not that be too much?
Another question, like this blood results are taken after 3 weeks, would it drop more or not really? I've no idea. (since most of the times it's recommended to have bloodwork done after 6 weeks).
Any improvement? yeah there is some improvement, some minor changes really. less intense then on 175 mcg. think the fact that I'm sick for that long and still not on the proper dosage ain't helping in that regard. PTU sure makes a big difference.
Sometimes I feel like becoming alive, just ain't happening yet. not sure whether that makes sense, but well a start feeling.
My symptoms:
- extremely tired
- general sick feeling
- bloated, my belly feels like a rock and looks pregnant. it's pretty painful really.
- muscles aches mainly neckregion (causing headaches too)
- sometimes miserable, strange, dizzy kinda feeling in my head
- emotional (so not me), easy irritated, get on my own nerves :-)
- dry mouth
- feverish: my head glows, but my body feels icecold, chills, feverish feeling really, miserable, also cold sweat
- itchy feet (silly but uncomfortable)
- hairloss (a lot)
- acne
- palpitations, my heart bounces very loud.
- short breathed
- heel pain
- cold yet moist hand and feet
- heavy legs
- trouble sleeping (although that has been worse already -> let's knock on wood though)
Think those are the most important ones really.
It only takes 2 weeks for your blood to equilibrate after a dose change. That is why when I was pregnant and hypoT my MDs tested me every two weeks and adjusted accordingly. To test in another 2.
Waiting 4-6 weeks between tests is to allow your symptoms to catch up to your adjusted blood levels. So no in my personal non-MD EXPERIENCE your levels will not change more.
Your symptoms are indicative of hypoT T3 and hyperT t4. I was only in that stay for a few months. The gastric distress and gloating went away when my T3 levels increased.
I think you will benefit from some T3 supplementation. To do this you need to get your T4 levels down. You can step it down by 12.5 again, but I think you will still be hypert4. But I am not an MD nor do I know your body and it's reactivity as well as I know my own or my mom and her sisters.
What did your MD think?
__________________
If we learn by our mistakes, I am working on one hell of an education.
thanks to you both again, it's dearly appreciated.
any idea how come I get better in the evening despite being hyper? (and levels are higher in the evening right?)
the opposite way around the hypervalues kept increasing till the 6th week, maybe it does not work the same the other way around? (it dropping sooner than building up).
I don't know, 125 my labs were 0.8, on 175 they were 1.54 (or something in that corner), maybe 150 might be somewhere in the middle, just in the toprange of the normal labs? I don't know, just guessing really.
My body and it's reactivity, well all I know is that it reacts pretty strong.
My body and it's reactivity, well all I know is that it reacts pretty strong.
I noticed that your FT4 dropped by .22 units and in my book that is quite a lot with those ranges and such a small dose decrease. Maybe it's just me but I'd rather have my levels a bit on the high side rather than on the low side (zero tolerance for hypoT )
I seem to have zero tolerance for either hypoT or hyperT well think if my body gets a proper supplementation can start to heal that might get better too, but at this point seem intolerant for all of them.
Yeah indeed it dropped quite a bit for the little dosage. so maybe 12,5 to start with might not be all that bad?
so maybe 12,5 to start with might not be all that bad?
To me it sounds like a good plan. You'll probably have your labs taken soon and you'll be able to make new adjustments then if needed (getting better towards the evening could mean you're not that hyper after all. Maybe this small tweak is all you need?)
small tweak? uhm what does that mean? (just an English thing I'm not familiar with).
I'm not sure, in the evening most of the times I'm a bit better, like my body calms down, even with the high labs yeah as far as I remember, was still better in the evening. Not good or anything, but the worst of the day is over.
thank you for the clarification.
But you agree it still will be needed, no? I doubt whether it will pop within the ranges after 6 weeks. (ow hormones, does it show?)
by the way does anybody have tips and tricks for the belly in the meantime? I already tried everything I can think of, my primary doctor already tried several meds in that regard, does not help.
By the way, like sleeping hands/feet and shocking feeling, figured that was hypoT? oh well one day...
little update: next week to the endo again so in preparation had my blood taken (still quick, 2 weeks after decrease till 150 mcg, but if not would not have them in time).
results: uhm they are pretty much the same (thank goodness I did not stay on that 175).
Anyway
TSH 0.14
FT4 1.36 (0.54-1.24)
FT3 3.28 (2.50-3.90)
So now what would be recommended? All input is more then welcome!
Thank you once again. your help is dearly appreciated, from all of you.
so you think I'll need T3? that's good to know, well to keep in mind next week at the doctors.
already time for reduction or still wait? What would be a wise move to make at this point?
what a puzzle! as a child liked puzzles, this one not really though. does that ever get balanced out?
because I already took my dosage of today? ok just being silly really.
so you don't expect it to drop a lot? I have no idea on that one, since the blood is taken like 2 weeks after the decrease which is still quick of course. but I agree, FT4 is still too high.
uhm starting to think: not sure whether I still have smaller tablets anyway. I have 150 and 25 for sure. Have to dive in my box again.
On T3 yeah might be hard to tell, but ain't it to be expected that FT3 drops even more if FT4 drops? or not really or is it still high enough? No idea on that one really.
Of course, if I don't get my hands on a prescription next week and I would need it... .
On T3 yeah might be hard to tell, but ain't it to be expected that FT3 drops even more if FT4 drops? or not really or is it still high enough?
It's supposed to drop when your FT4 drops (but we'll believe it when we see it ). Your FT3 is around midrange so it's not bad but with the (hopefully) dropping FT4...
My previous advice remains. So instead of the 25 mcg drop I recommended last time. I would drop another 12.5 mcgs see where you stand in 2 weeks and look into supplementing T3. This is just my personal NON-MD experience with tapering meds down after going hyperT. I had to do this recently post pregnancy and breast feeding.
MG
__________________
If we learn by our mistakes, I am working on one hell of an education.
but I'd rather have my levels a bit on the high side rather than on the low side 
)
and you'll be able to make new adjustments then if needed 
(getting better towards the evening could mean you're not that hyper after all. Maybe this small tweak is all you need?)
ok just being silly really.
