Post total thyroidectomy TSH level question.
I had a total thyroidectomy 9/12/11. My surgeon likes to wait about 6 weeks to get my first TSH. He has me on Levoxyl 137 mcg post op. I have had ongoing frustration with my PCP office re: this whole thyroid thing. However, my surgeon assured me that even a new grad from med school can figure out how to manage my TSH post op. I called the PCP office last Monday to let them know I needed my TSH checked. It took until Wednesday to hear back from them and the message was that they had received nothing from the surgeon and wouldnt manage my medication until they heard from him how he wants me managed. I didnt get the lab slip in the mail until Saturday. Had the lab drawn yesterday (Tuesday) and then had to follow up with them today. Again, I had to leave a message and the return message I got was that they still didnt have anything from the surgeon's office but they will call and request it today (I thought they did that last week) and that my TSH was fine at 2.359 so they wouldnt adjust anything. Well, two things...first I called the surgeon's office and they were (and have always been) very accomodating and said they would fax it out right away-this makes me think the PCP office never requested it last week. Also, I feel like ****. I have no energy, I have had my period for a week at a time three times in the past month, my hair is still falling out and Im freezing cold when nobody else is. I have had issues with this office listening to me in the past, infact if I had listened to them and not referred myself to Brigham & Women's in Boston I would still have my thyroid. Has anyone else had this much frustration? How about my TSH, is that normal for post op thyroidectomy? Does anyone's MD treat the symptoms instead of the lab? My thyroid function was "normal" pre op yet, I had a FNA that showed Hurthle cells in a nodule so I was referred to my surgeon. When he opened me up he said I was a mess. Thyroid was massively inflammed, dark (hypothyroid) and adhered to tissue, muscle and the right side wrapped around my esophagus. Sorry so longwinded here. I am beyond frustrated with this though. I was so hopeful that I would be feeling better post op but it just isnt happening.