thank you dear midwest1
i will follow with this endo and i am having a divorce now , only because i took him without his father's approval !
when i get the kids with me , i will take all the tests i need , and finally get to know what my son really has
i pray to God all the time that no harm had happened to his IQ, i know it is a very big possibility and almost always happening in such cases, but i do have hope and stick to it , because his t4 was always, ALWAYS in the upper third, and only once in the upper half, and i know the t4 is the one that has the most powerful effect
dear all , please pray for my boy's wellness
i had these new results for my boy , now 6 yrs old , he is on Levothyroxine, one day on 50 microgram, and the other day on 25 microgram
free thyroxine 4 16.4 pmol/L NR (9.1-23.8)
thyroid stimulating hormone 2.900 MU/ml NR (0.35-5.010),
he has been on this dose since 3 months now, his eyes swelling got better, but not fully perfect , and he looks more active, but still struggles to wake up in the morning, still got that stuttering and little talking thing.
can any one advise me about these numbers, please , is the dose enough?
i will be grateful to get any reply !
Last edited by nisreen1811; 05-05-2012 at 11:01 PM.
The following user gives a hug of support to nisreen1811: bee01 (05-06-2012)
Hi Nisreen- it would be my guess that he needs a dose increase, maybe just a small increase to start. His levels could be a bit higher and it sounds as though he still has some symptoms. I am so sorry for what you are going through, I can't imagine how helpless you must be feeling through all of this. xxx
The Following User Says Thank You to bee01 For This Useful Post: nisreen1811 (05-06-2012)
the doctors wont approve raising the dose, but i have strong thoughts i should raise it on my own, and keep tests well tracked, does that make any harm or threaten, please advise, i dont want to make things worse !
is there a possibility that my son is having a reversed T3 RT3?
i dont have a clue, can any one help me in this point?
does my son need a raise in his dose of levothyroxine ?
or does he need to check the RT3
is cortisol involved here?
and what supports more my fears, is that his FT3 is higher than the normal range but his pediatric endo said that this reading is of no value, and no more tests of FT3 required, what matters is the FT4 only , and the TSH ! that are shown above !
i am in deep need of any help , please .
his sleepy eyes keeps screaming in my mind (mom i cant wake up), this breaks my heart
Last edited by nisreen1811; 06-25-2012 at 07:41 AM.
The following user gives a hug of support to nisreen1811: bee01 (06-26-2012)
Nisreen, your son's lab readings and symptoms are very puzzling. Two things come to mind (though I am by no means knowledgeable in this area).
The first is that he could have thyroid hormone resistance, which could explain his elevated TSH and thyroid hormones. The second is that there could be a pituitary problem, which would necessitate an MRI.
I do think that you need a second opinion. Where do you live? Are you seeing a pediatric endocrinologist?
Hi Nisreen- I've just read through your entire post- I joined the conversation late. I see you are in Jordan. Is it possible to take your son to a pediatric endocrinologist in London? Would your ex-husband allow you to take him out of the country if he thought you were going on a vacation? Has he had an MRI yet? I think this is necessary. If the problem is thyroid hormone resistance (which I suspect more so than a pituitary problem), then his dose will have to be raised so that his TSH is closer to 1.8 (average TSH for his age) and his thyroid hormones may have to go over range. Please ask these questions of his doctor, if you haven't already and let us know what she says. Best of luck.
The Following User Says Thank You to bee01 For This Useful Post: nisreen1811 (06-26-2012)
i just got the new results for my boy they are not good,
FT4 16.8 pmol/L NR(9.1-23.0 )
TSH 4.1 MU/ml NR (0.350-5.010)
they did not check his FT3, can anyone please give me advise, he is still with lots of hypo symptoms? i read it could be due to low iron or low cortisol , please advise what to do