Re: High TSH - Normal T4 - Lot of Hypo Symptoms
Welcome to the thyroid board!
Sorry for the reason you're here but, glad you found us.
If I didn't see this happen time and time again on thyroid forums, I'd be incredulous at the thought that you haven't been started on meds a l-o-n-g time ago. So, yes, you have a glaring thyroid issue.
If your doctor knew anything about thyroid, he would know that TSH > 2.0 indicates hypothyroidism.
Then, he would look at your actual thyroid hormone levels - FreeT4 being one of them. And, if that level was below mid-range, he would start you on some thyroid hormone replacement.
I honestly don't know if an endo would be any better at seeing what is obvious to me....many endos don't recognize hypothyroidism if it slaps them in the face.
Unfortunately, once the TSH test was invented in the 70's, doctors weren't taught the clinical skills to recognize hypothyroidism.
Throw in the advent of thyroid hormone level testing and doctors focused on numbers miss even more cases.
Thyroid textbooks clearly indicate that each of us has his/her own optimal thyroid hormone levels called "setpoints". And, most healthy people have FreeT4/T3 levels in the upper half/upper third of the range.
While your weight issues are common for someone dealing with hypothyroidism, I wouldn't be inclined to focus on that with a new doctor. Unfortunately, doctors seem to think people are looking for thyroid hormone has a quick fix for weight loss.
Instead, a comprehensive symptoms list should help. You might want to review the symptoms list on the following thread just in case you are dealing with more than you realize.
You might want to read "What Your Doctor May Not Tell You About Hypothyroidism". It was written by an endo who discusses people having "normal" (aka in-range) thyroid labs while dealing with raging hypothyroidism. There's even a section with suggestions for a meaningful conversation with a potential doctor.
It does sound like you need to see another doctor. Maybe the endo will work. If not, you might want to try calling local pharmacists (including compounding pharmacists) to get contact info for doctors that Rx Armour and/or Cytomel. These are two types of meds that thyroid-savvy doctors Rx.
Don't give up until you find an appropriate doctor. It might take a few tries (I'm on doctor #5 myself and this isn't uncommon). It will be worth every effort.
Graves' 2007...remission 2009....hypo 2010