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Old 02-09-2012, 01:10 PM   #1
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Newly dx as Hypo, will probably have lots of ? eventually

I took my first pill of levothyroxine this morning. (50mcg) Is it weird that I was actually excited about it?

(BTW, I am 32 and from Texas, married 10 years, no children.)

I have suspected something was up with my thyroid for a long time now. Once, I even went so far as to order the kit where you ***** your finger to get a blood sample and send it to a lab to get results mailed to you.

I've been seeing my current dr. for 5-6 years probably. I started seeing her when I became too depressed/anxious/tired to come to work as often as I should. My boss suffered from depression and this was her dr. so she recommended I go see someone. So, we started out working on the depression and doing full labs with the free T3 etc. as we wanted to check the thyroid. All came back normal. (I took the ADs for 1-2 years.)

Tried various things on the sleep - added trazodone, etc. but nothing worked that well. Sent to do a sleep study to check for sleep apnea. Came back borderline so repeated with the machine. I was just at the line where insurance would cover a machine and masks. Went ahead and got those and fought with them for about 6 months before deciding they were doing more harm than good. Only good thing to come out of it was that the sleep specialist (may have been a pulmonologist) had a theory that a lot of my spontaneous arousals were due to pain. He prescribed gabapentin for me. It made a world of difference, but I would have to keep upping the dose if I took it too often. I now try to take breaks from it and only take it sparingly so that I know it will work when I need it to.

In April 2009, I was dx with PCOS based on history and blood test results. Started out on 500mg of metformin and went up to 1000mg 6 months later. Also went back on nuvaring to regulate my cycle. Blood tests and checkups every 3 months, but I don't think they were checking anything with thyroid on these. At one point in time she decided my thyroid was enlarged, so I had to have a sonogram or ultrasound done on it. Those results came back normal.

In 2010 I had my last appointment with her. My cholesterol was a little high, but not high enough for meds yet. I was supposed to come back in 3-6 months, but I couldn't make the appointment at that time because of some upcoming work things that had not been finalized yet. Well, I got busy and it slipped my mind for a while.

Since that time, my anxiety has really increased, my mood has been a bit unstable, and my libido has disappeared. Quit taking the birth control in June 2011 and my mood was better, but my periods did not return. Ran out of metformin at the end of the year and didn't have any refills left.

In January I came down with a cold that I just couldn't shake. My parents MADE me call the dr. She called in some RXs with the agreement that I make an appointment for blood work and a follow up appointment. I had my blood taken on Jan. 30 and since it had been a while, they checked a lot of stuff.

At my appointment yesterday the dr. was a bit puzzled because although I had gained 10 pounds, my cholesterol had dropped into a good range and my blood sugar and glucose were staying at the same level I had gotten them to while on met and the bc. Then she saw my thyroid numbers. And although I don't think they were that far off the range, she was able to compare them to my earlier tests and definitely see that they were worse. Combine that with the temporarily enlarged thyroid, and she thinks those were all signs that my thyroid was slowing.

I could list all the various symptoms I have had, but they are like so many of you have had, so I will only list the ones that did not emerge until the last year - anxiety - thought I might need to go back on ADs; dry hair and loosing hair - the entire texture of my hair has changed; ridges on nails have increased and are no longer strong enough to keep at any real length - they tear easy; brain fog much more common.

So, today I begin Sythoid. (Well, trying the generic first.) I go back in 8 weeks for blood work and another visit a week later. Also started back on birth control – a low dose once with a generic available since the Nuvaring costs me $80/month. Think it is called Sronyx but is $20 a month, so much easier on the pocket. I will start it Sunday to see if I can urge my period to come back. I have been spotting this week, but not a full flow yet. I have taken 2 pregnancy tests and will take one more on Sunday before starting the pill.

I think the hardest part for me will be remembering to take pills. I am terrible about it. Right now I have an alarm set at 7am to take the levothyroxine. I normally get out of the shower about 6:45 am, so plan is to take it before or after the shower, but the alarm will be there in case I forget or for on the weekends when I sleep late. I pulled out a few pills to leave at work in case I make it up here and realize I forgot to take my pill. I don’t eat breakfast and don’t drink coffee until I get to work at 8am, so the empty stomach should be easy enough to do. I guess I will need to try to remember to take the bc at night with my multivitamin. Have to find some kind of an alarm for my phone that will allow me to “snooze” it for later on those nights that we are out late, etc.

Well, thank you for listening to my introduction and thanks in advance for all the questions I am sure will follow as I get more into this. I will try to remember to get copies of my blood work at my next visit and will include those results.

 
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Old 02-09-2012, 02:31 PM   #2
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Okay, I actually already have my first question.

When I go for my next blood work, I have to stop by between 8am and 9am. If I am taking my medicine around 7am normally, should I wait until after I have my blood taken to take my pill?

Also, occasionally I get light headed during blood work and need to drink some soda or juice afterwards. If I do this, how long after my last sip should I wait before taking my pill? An hour or so?

 
Old 02-09-2012, 10:16 PM   #3
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Nice to meet you.

If you will be having a free T4 test, do not take your levothyroxine until after the blood draw. (People who take Armour or Cytomel and have their free T3 measured along with free T4 should not take their med until after the test, either.) If your doctor tests only TSH and/or total T4/T3 (which is not a good thing, BTW), it doesn't matter whether you take the med or not. It won't affect those tests results.

For just the occasional times when you need to have a sugary drink after a blood draw, it would do no harm to take your levoT with it... IMO.
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Old 02-10-2012, 06:09 AM   #4
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Thank you. I know my Dr. has requested Free T4 in the past, so to be on the safe side I will wait to take the med until after the blood draw.

Now to just figure out how to remember to take the levothyroxine... Weekdays should be pretty easy since I'll just take it when I get up or when I get out of the shower and my phone dings at 7am as a backup reminder. And then I have some pills stashed in my desk at work if I make it all the way here without taking my pill. (The reminder also shows up on my work calendar, so I have to dismiss it here as well.)

But I sleep a lot later than 7am on the weekends, so I haven't quite figured out how I am going to do this. The single ding probably won't wake me up. Almost like I need it to be an alarm instead, but I don't know if I want to use the stock alarm on my phone (android). I downloaded a pill reminder, but it's just a single ding as well, so will only work if I am awake and next to my phone when it goes off. The problem with waiting until I naturally wake up to take it is that it's normally food that inspires me to get up - either breakfast or lunch. Not really enough time to take pill and have a cushion of time before it is time to eat.

 
Old 02-10-2012, 08:26 AM   #5
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Re: Newly dx as Hypo, will probably have lots of ? eventually

If your bedtime is at least two hours after you last eat, you can take your med before you turn in. That's been recently shown in a study to be more beneficial than taking it in the a.m. anyway.

If that isn't possible, do you perhaps wake in the night to use the bathroom? You can take it then and go back to sleep.
Or... Even when I sleep late, I usually start periodically half-rousing toward dawn. If this happens with you, you can keep a glass of water and your med on the nightstand, take it during one of those rousings and then go back to sleep.

If none of those methods would work for you, I guess a genuine alarm clock may be your best bet. Hope you figure it out!
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Old 02-10-2012, 08:56 AM   #6
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Quote:
Originally Posted by aa62579 View Post
Okay, I actually already have my first question.

When I go for my next blood work, I have to stop by between 8am and 9am. If I am taking my medicine around 7am normally, should I wait until after I have my blood taken to take my pill?

Also, occasionally I get light headed during blood work and need to drink some soda or juice afterwards. If I do this, how long after my last sip should I wait before taking my pill? An hour or so?
Hi- I just wanted to add something concerning the juice. Make sure you are not taking your meds with OJ that is fortified with calcium, as it will interfere with your absorption.

 
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Old 02-10-2012, 10:19 AM   #7
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Great point, Ava. Thanks for mentioning it.
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Old 02-10-2012, 10:58 AM   #8
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Re: Newly dx as Hypo, will probably have lots of ? eventually

I was told to take it with water only on an empty stomach. I would equate drinking orange juice with eating, so hadn't planned on ever taking them together.

I will keep this in mind though for after my blood tests and stick with soda if I need a few sips of something sugary.

Quote:
Originally Posted by midwest1 View Post
If your bedtime is at least two hours after you last eat, you can take your med before you turn in. That's been recently shown in a study to be more beneficial than taking it in the a.m. anyway.

If that isn't possible, do you perhaps wake in the night to use the bathroom? You can take it then and go back to sleep.
Or... Even when I sleep late, I usually start periodically half-rousing toward dawn. If this happens with you, you can keep a glass of water and your med on the nightstand, take it during one of those rousings and then go back to sleep.

If none of those methods would work for you, I guess a genuine alarm clock may be your best bet. Hope you figure it out!
Thanks. I am going to take my bc and my vitamins at night, so I don't think it would work well to take this med at that time. I also don't want to be in the position where if we eat late, I feel like I need to stay up later to take my pill. It's not that unusual that we just get in and grab a bite to eat before it is time to go to bed.

I found an alarm clock app that just may work (Alarm Clock Xtreme). I have my AM alarm set at 7am, ascending volume, with a ringtone that sounds like an alarm clock. Snooze is set for 10 minutes and it can be dismissed ahead of time if I take my dose before it goes off.

I have another one set for 9 PM for my nightly meds with a shorter ring and 30 minute snooze time. Normally, if I am not home by 9pm, it will mean that we are out late and a 10 minute snooze would be way too much.

I'm still a week away probably from starting back on bc, but I'll practice with my vitamins and melatonin tonight. May go out, so it will be a good time to see how practical the snooze button is.

Last edited by Administrator; 03-15-2012 at 11:54 AM.

 
Old 02-10-2012, 01:14 PM   #9
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Quote:
Originally Posted by aa62579 View Post
Thanks. I am going to take my bc and my vitamins at night.
Not sure if bc is birth control? Wanted to mention (I'm sure it depends on the type of birth control) that a friend of mine who had a TSH of 7.8 lowered it to 3.5 after she stopped taking birth control pills.

Last edited by jaymee456; 02-10-2012 at 01:15 PM. Reason: typo

 
Old 02-10-2012, 02:06 PM   #10
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Yes, bc is birth control. I have not been on any in about 8 months, but since my periods have not come back, my dr wants me to go back on them. I have PCOS so have lots of problems in that area already. So, for both the first test my dr did a few years ago and this last test, I was not on any form of bc.

Last edited by Administrator; 03-15-2012 at 11:53 AM.

 
Old 02-10-2012, 02:32 PM   #11
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Re: Newly dx as Hypo, will probably have lots of ? eventually

Quote:
Originally Posted by aa62579 View Post
Yes, bc is birth control. I have not been on any in about 8 months, but since my periods have not come back, my dr wants me to go back on them. I have PCOS so have lots of problems in that area already. So, for both the first test my dr did a few years ago and this last test, I was not on any form of bc.
Are you taking metformin? I've heard that can help to normalise testosterone levels in certain instances of pcos, where there is suspicion of insulin resistance. I've been taking B Complex 50mg for a few months now, and I believe they have helped lengthen my cycle (increasing progesterone). In some people, it helps restore ovulation. Who knows if it's true but it can't hurt.

 
Old 02-10-2012, 02:39 PM   #12
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Re: Newly dx as Hypo, will probably have lots of ? eventually

I took metformin from April of 2009 until the end of 2011. (1000 mg) It did not restore ovulation in the 6 months that I took it after I stopped my birth control. Latest tests showed that my A1C (?) was still the same as it was on my last test and that my blood sugar was still in the normal range, so my dr. saw no reason to start me back on met unless we changed our mind about wanting to have kids someday.

Although I had an intial bit of weight loss after taking the met, I didn't see many more positive effects afterwards. I couldn't tell much difference with facial hair, etc. And, there were some gastro side effects and possibilities about reactions with alcohol. Therefore, for me, it didn't seem worth it to take it anymore if my numbers were still okay.

 
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