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Old 06-11-2012, 12:35 PM   #1
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Post Help with Graves Disease

I was diagnosed with Graves disease and hashimotos 3 years ago with hyperT. I have been on methazole for 3 years except for a short 3 months I was in remission about a year ago. I have not been happy with the specialist I was seeing so I went to see another endo and he would like to kill my thyroid with radioactive ablation and my other doctor I see would like to surgically remove it. Any advice would be much appreciated also still looking for a better doctor. Very confused rite now.

 
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Old 06-11-2012, 03:25 PM   #2
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Re: Help with Graves Disease

If you do indeed have Graves' then, RAI (radioactive ablation) is contraindicated. Doctors might tell you otherwise but, RAI can cause or exacerbate TED (Thyroid Eye Disease), pretibial myxdema and acropachy.

In addition, a large study showed an increased risk of cardiac and cancer mortality in post-RAI patients.

Some patients opt for surgery and it is, of course, a personal choice.

If you are doing well with methimazole, there's no reason you couldn't continue taking it.

If you are having any issues, there's a chance you're not being medicated properly. Mismanagement of all types of thyroid disease is rampant.

I will tell you this much - it's vital for you to confirm that your doctor knows how to medicate properly before opting for surgery.

Interpreting your labs and evaluating any symptoms will help you know whether or not your doctor is dosing you appropriately. If he/she isn't, it's a logical conclusion that he/she won't medicate you properly after surgery.

A doctor that doesn't know how to medicate for Graves' will prescribe a too-high dose of anti-thyroid drugs and keep the patient hypo. That same doctor won't prescribe enough thyroid hormone replacement that is necessary post-surgery and the patient will be kept hypo.

You are welcome to post some lab history here if you'd like help with interpretation.
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Old 06-13-2012, 06:25 AM   #3
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Re: Help with Graves Disease

Thanks for the information I get my labs done again July 1st and will post them I also am getting a sonagram of my thryoid done today so we will see how that goes. I already have the graves disease in my eyes and problems with heart palpatations thats why I am considering opting for surgery over the RAI because the RAI sounds to me like it will put my eyes and heart in too much of a risk for my comfort. Both endo I have seen dont want to leave me on the methazole because they say it is too harmful for you health long term so I'm not sure what to beleive I am making an appointment with a different endo after I get my sonogram results.

 
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Old 06-13-2012, 06:37 AM   #4
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Re: Help with Graves Disease

I don't know why some doctors say patients can't take anti-thyroid drugs long-term if the patient isn't having any issues with them. It's not like doctors tell diabetics they can't take their meds and should instead remove their pancreas.

The endo-author of "Thyroid for Dummies" confirms what studies have shown: anti-thyroid drugs can be safely taken for life, if necessary.

It would be good if you had some recent labs to post. You really shouldn't be dealing with any thyroid symptoms if you are being medicated properly. If you aren't being medicated properly, don't you think it's better to find out now rather than wait until your next labs?
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Last edited by sammy64; 06-13-2012 at 06:44 AM.

 
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graves disease, hashimotos, radioactive iodine, throidectomy



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