I have been missing from the boards for awhile. I have been feeling very sick since my Thyroidectomy (6/13/12). Please help me, if you can, with what to say to my ENDO on Wednesday. I am so sick that I think that death would feel MUCH better. I told my husband tonight that I can not live like this. I can't even drive right now.
Achy knees and wrists, muscles in bottom of feet hurt, dizzy, feel CRAZY, moody, feel angry, tired, can't sleep, vomiting (if I eat), gained 7 pounds over the past 2 weeks, no appetite, hair falling out in handfuls, hands,arms,legs feel like they have not enough blood in them...I can barely make it up the stairs, VERY DEPRESSED, headaches, dizziness starts about an hour after synthroid.
2 Tums x 3 day
50,000 Vitamin D x1 week
Called ENDO last Friday and she told me to go to the ER. I went to ER and they did NOTHING for me. They told me that my TSH is high and I needed to see my ENDO. I see her Wednesday and need to know what to say to her. My ENDO told me on the phone on Saturday that my TSH 5.53 (0.27-4.20) is NOT HIGH ENOUGH TO MAKE ME FEEL BADLY. I started to get sick around 7/10/12. I had a thyroidectomy 6/13/2012. My ENDO increased my Synthroid to 112mcg on Saturday. I started my new dose on Monday. I feel no different...I think that I feel worse. The hospital did check my T4 but the results were not ready before my release. They told me to come back on Monday (today) to pick them up.
Is the Synthroid dose increase enough to bring my TSH down to around 1??? My sister can not tolerate synthroid. Should I ask her to change me to Armour??? Is it possible that I am allergic to Synthroid or is my dose just too low??? Will you please arm me with the correct information to discuss with my ENDO. I really appreciate your help.
Keep in mind, that synthroid dose changes aren't going to make you feel better or worse for 3-6 weeks. You are probably dosed too low. It takes several weeks to build in your system. The only temporary option until you get there to a better level of hormone (or a permanent one) is to get you some cytomel, that could work faster, because it's faster acting, if it is the low thyroid levels that are making you feel so ill. A better option than synthroid might be tirosent, it's a t4 med that is very easy to process, and may take less time for you to build in your system.
Did you have parathyroid damage? Is that why you are taking so much vitamin D? It's a hormone too---my regular doctor is not into high levels of vitamin d unless you are deficient, because it can stress the kidneys.
You want your tsh suppressed for thyroid cancer prevention---below 1, more like .05 for a few years---you never know what dose will bring you there.
Some of the problem may be still being hypothyroid, but I would ask to have your calcium/phosphorus level in blood checked. Sometimes during thyroid removal the parathyroids can be injured and calcium imbalance (low) can make you feel terribly weak and sick.
first of all hugs and no matter how hard it is, please do keep in mind things will get better.
As others mentioned above, it's important to have the parathyroid status checked.
At this point it's trying to find a proper dosage of thyroid meds which works for you, obviously you're not there yet. I would not worry too much about the endo thinking that TSH 5 cannot cause you to feel bad (I can guarantee you it sure can), as long as she realizes she needs to increase the thyroid dosage with those results.
As you might know it's important to dose based on free levels (most need there free levels, FT4 and FT3 at least midrange or 60-80% of the ranges in order to feel well).
If you have your labresults please feel free to post them including the reference ranges.
hang in there and keep in mind things will get better.
I am so sorry for your troubles! I breezed through my surgery for the most part and am healing well(right lobectomy 7/6/12) but getting my levels right for my body has been pure hell....and I'm still not back to normal.
I see someone mentioned having your other levels checked...really have nothing else to add other than I am praying you feel better soon. Best of luck tomorrow!
Thanks for all of the feedback. I got even more sick and just started feeling better. I had a severe allergic reaction to synthroid. I fired my ENDO and have a wonderful new pcp who treats thyroid diseases. She sees my mom, grandma, sister, cousins.....all which have thyroid problems.
My Parathyroid is functioning but not well. I have now developed a kidney stone because of all of the Tums. My calcium has been cut back and I can now see the light at the end of the tunnel. I have been switched to Armour. I am still suffering from hypo symptoms and I am on 120mg of Armour. I see my pcp again in a few weeks.