Hello all. I wanted to introduce myself and was really hoping some of you could give me some insight as to what is wrong with me? First of all my name is Robin
I have been feeling horrible for atleast a year now, general ill feeling and major fatigue. Back in March of this year, i noticed a swollen subclavical gland on my left side and low grade fevers, shortness of breath, and extreme fatigue . This has gone on now for 6 mo's. I have been in and out of the doctors having a zillion tests done to find out what is going on. Since then I have had several more swollen nodes in my neck and my symptoms have progressed to the following.
neck pain near clavicle area
Pain in my thyroid
extreme fatigue and loss of energy
loss of appetite
pain and burning in my arms and wrists
tingling nerve feeling in my right foot
major bags and dark circles on my eyes
sensitivity to light
extreme hot flashes and sweaty hands and feet
sleeping for 8-10 hrs and feeling like i need another 10 more
just an overall sick feeling in my body
dizziness and feeling like i'm in a fog all the time inside my head
thin finger nails to where I can scrape off the top layer of my nail with my teeth (gross i know)
itching all over my body like little stings everywhere that itch
I'm sure there are more just can't think of them
had low Vit D last year but after several summer months retested and they were fine, but i'm thinking that they may be low again.
sorry for the huge list. lol
Anyhow, i had a FNA done on one of my nodes as they suspected possible lymphoma and that was normal. So my dr referred me to an Infectious disease dr to check for many other things such as RA, lupus, etc.. So far all those have turned out normal as well. I was ordered a bone scan and Gallium scan which i am still awaiting results on that was done last week. I also had an ultrasound of my thyroid with came back as abnormal, with the impression of:
Heterogeneous hyperemic thyroid gland consistent with diffuse thyroid disease.
Bilateral cervical lymph nodes that demonstrate lack of a normal fatty hilum.
These may be reactive or neoplastic.
My doctor decided since it had been a yr since my thyroid levels were checked she decided to order some thyroid blood work and these were my results:
TPO AB 101 range (<35)
Thyroglobulin Auto AB 29 (<20)
TSH 2.40 (0.34-4.82)
Free T3 2.89 (2.3-4.2)
Free T4 1.14 (0.8-1.80)
I got an email the other day with my TPO Ab and Thyroglobulin Auto AB results and a note from her saying:
So your thyroid antibodies are definitely high. This goes along with your thyroid ultrasound, but is good news because the picture is coming together, looking like thyroid definitely. So on reviewing your labs after your thyroid antibodies today came back high, it seems we haven't checked a TSH or T3, T4 for a year. Let's check those your next lab draw to see if your TSH is high or low. If so, it would support a diagnosis of thyroiditis. I will order and you can do anytime (nonfasting)
Well... it looks as though my hormones are normal so now I don't know what to think? I really thought I finally figured out what the heck was wrong with me after all this time and now, i'm not sure. Everything I'm reading says that i could still have Hashi's since I have the antibodies but my antibody's aren't as high as everyone else's (i.e. in the high hundreds or thousands). I would just love to hear what everyone else thinks and any recommendations would be great. As of right now, I have an appt tomorrow to meet with her to see what she has to say about my labs and my condition. I'm afraid she is going to say that It's not my thyroid now since my TSH and other hormones were normal
Is there anything else this can be? Thyroid cancer? still worried about lymphoma as well. Oh i forgot to mention that I also had an uptake scan done a couple months ago as well and that was all normal too.
Thank you soo much for reading all of this and any help or advice you could give me would be soo greatly appreciated.