need help raising T3 only dose!
Right now i'm taking 100 mcg cytomel only, after trying t4 and t4/t3 combo neither of which worked for me. I had a really easy time raising the t3 gradually to get to this dose, but I am not better by far and any time I go above 100 mcg (25 mcg 4 x's a day) I get really bad anxiety and a little shaky etc. I have been taking iron in the form of Slow FE for the past 4 mos and notice that it does really help with being able to tolerate the t3.. when I went off iron i got VERY SHAKY so I need the iron. I've had low iron for about 10 years and any time I have tried to go off iron supplements I feel horrible even before thyroid meds. From what I am reading hypothyroidism makes it difficult to get your iron level up. Anyway, I didn't notice any changes in my hypo symptoms until I got to 85 mcg per day, and even now at 100 that dose it seems like half the day I feel a little bit awake and the other half of the day I feel like I can barely stay awake. About half of my days it is really difficult to even get anything done... cooking, cleaning, etc.. I have to take naps just to get energy to do things like shower, cook, go to the store... I was just reading about how low iron can cause t3 pooling?? Is it possible that even with the slow FE my iron is too low and after I get to 100 mcg the t3 is just kinda floating around in my blood making me shaky but not getting into the cells?
The other thing I am wondering about is adrenals, I thought mine were ok because I was able to raise the t3 pretty steadily with no problems..is it possible that your adrenals can be ok to tolerate a certain amount of t3 but not the amount that you need to make all your symptoms go away? Has anyone gotten to a pretty high amount of t3 and still feel like they have a really long way to go but can't tolerate more?? I thought my adrenals were doing better because the hypoglycemia I had for years is completely gone and the chemical sensitivities I had are also gone since going on thyroid meds.
I know the best thing to do is get my iron tested and do the adrenal test but I am worried that if my iron is already low and I get more blood taken then it will be even lower and make me even more intolerant to the medication and set me back even further to where I have difficulty getting simple things done during the day.. and I also have concerns about taking cortisol and then being stuck taking it forever, or getting better and stopping the cortisol and then being back to feeling terrible again.
I am interested to hear if anyone has had anything like this happen or can help.. i am starting to wonder if taking any thyroid medicine at all has just been a complete waste of time and its so depressing to have gotten my hopes up that I would get better yet at such a high dose I am still having such a hard time just getting thru the day.