Hey everyone... and hi especially Sammy
I've missed you guys. I had to withdraw for a little and forget for a few weeks about all of this. Needed to get some mental clarity. When my biopsy results came back 8 okay (typical of goiter) 1 atypical to be redone in February, I felt I had a little breathing room. But I met again with my new guy to discuss the biopsy results, and he was STILL saying he didn't want to do antibody tests because the treatment modality would be the same. And he was STILL saying that my thyroid needed to come out regardless of the biopsy, and he was STILL saying that I needed to go on methimazole.
So I kept looking. I found one more doctor - this one listed on the best thyroid doctors website. She doesn't take insurance, so I have to file for that on my own. And she isn't cheap. But she's an integrative medical doctor, an MD and a community fellow at our best public university, and she specializes in adrenal problems.
So I sat down with her and told her the whole story. The first words out of her mouth? "Did they test you for thyroid antibodies?" When I said no, and told her why, she said, "That's stupid. If you have one autoimmune disease, you're more likely to have others. Regardless of what they wanted to do with your thyroid, that's important information to have, and if you don't treat the underlying condition that caused your Graves Disease, if you have that, then you're just going to keep hitting the same brick wall in other ways." She told me NOT to take methimazole, and she switched the Provera I was taking for PCOS every three months to Prometrium. "Provera is poison," she says. "This will be much better for you. And is that all you're taking for your PCOS?" I said yes, that they just asked me if any symptoms bothered me. She said, "What about your increased risk of diabetes, of heart disease? They don't always have symptoms."
Then she ordered the following labs:
Complete Metabolic Profile
Thyroid Perox AB
Vit D 25 Hydroxy
24 hr free cortisol (surprised not the saliva, but we'll see)
"I think it's time we started treating you and not just your symptoms," she said. "What do you think?"
I was so relieved that I almost cried.
I am not going to get my hopes too high up, but we are off to a promising start. And it's worth paying out of pocket (labs are in-network at least) and driving 1.5 hours to see her.
To all those who are fighting this god-awful fight of trying to be heard, have faith and keep fighting! I have been so tempted to give up so many times and just give in and have my thyroid removed, but it has been darkest, always, just before the dawn. My hope is renewed. That said, if she comes back after all this and says it has to come out, I'm going to do it. But at least I've found a doctor who supports the use of bio-identical hormones and treating the whole person, not just symptoms. I mean, the new patient form asked questions about my mental state... I have NEVER been asked that kind of thing by any other doctor before. And it's such a simple, important thing!