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Old 10-10-2012, 05:46 PM   #1
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Antithyroidglobulin test results.

Hello,

I've had hypothryroid since my early 20's. It's been stable until about a year or two ago. I had a fairly nasty bout with my thyroid freaking out about fhree years ago, but they adjusted it and it was fine for another year. Then it began to happen more often, about every six months.

This last year, my cbc's, my vitamin levels (B12 and D) and especially my thyroid, has been off the charts, one way or another and I've also been anemic.

The last six months, I've been feeling quite ill. I thought it was just me and I deal with other issues such as fibromyalgia and pretty nasty cervical (spinal) stenosis, cord flattening and osteoarthritis and DDD beginning in lower lumbar. So i understand pain. I get it. I get being sick, or uncomfortable, but this has been HORRIBLE. In the past when my thyroid was bad, I get sick. My hair falls out, very tired, losing weight, nauseated..fixed with med adjustment.

This last six months, nope. my thyroid has aggravated every other stinking issue I have. I'm exhausted. I found out through someone on this forum, to ask for certain tests to be run (THANK YOU, LISA!) and they did run them.

My T3 and T4 free levels were normal. My antithyroidglobulin was at over 3000. I can't recall what my TSH level was, but it was high. i have been swinging from hypo to hyper in the extreme for months. I'm being sent to an endocrinologist now to deal with this cuz my doctor does not want to mess with it anymore.

Am I out of my mind or what? I'm going to be reading more here to get an idea as to each of your experiences, but have you felt that your thyroid has been literally driving you crazy? That some of the symptoms are literally crazy making because they are either subtle (or not) but you can't "pinpoint" it, like you tell yourself you're fine, it's just in your head, but your body is telling you in MULTIPLE little and big ways that it's not?

I have been nauseated, vertigo, off balance, and a newer symptom of being EXTREMELY sensitive to light, like your heart isnt beating fast enough, palpitations, EXHAUSTION, headaches, constipation or diarrhea, uncoordinated, fevers out of nowhere, DEPRESSION in that no matter how positive you try to be, you can't cheer up? I mean a foreboding type depression that doesnt feel like something to where you're just feeling "down"? does your body ache (if you have fibro) worse than it normally would? Your feel unsteady on your feet? INSOMNIA? ANXIETY?

I could go on, but this is a short list.

What does the three thousand number on the antithyroid mean? Is it a big deal? I was told normal was 1-49. How can I have a number that high if my T 3-4 levels are normal?

There is so much I need to learn about this. My doctor says it's Hashi's. From what I've read about Hashi's it doesn't seem like that big of a deal, that it's just hypothyroid.

If that's true, why do I feel SO crappy and why can't they get my thyroid straight?

thank you so much ahead of time, and Lisa, wherever you are. thank you again. I am very grateful for your suggestions as to specific testing.

 
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Old 10-11-2012, 01:29 AM   #2
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Re: Antithyroidglobulin test results.

Many people with Hashi's have other autoimmune diseases. I would ask for a test for lupus, as some of your symptoms are suggestive of that and not thyroid. 3000 is quite high on the thyroid antibody scale. If your TSH was high, you are hypothyroid, which is what you'd expect. The medication dosage can be tricky, as very small increments of change can throw you the other direction if you are very sensitive. The light sensitivity, fevers, headache, depression and palpitations can occur in lupus, as well as anemia, B12 and Vit D deficiency. The screening test for lupus is an ANA but there are other tests that can be helpful as well, sed rate, CRP, urine, CBC, chemistry panel, and other antibodies if ANA positive.

 
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Old 10-11-2012, 08:21 AM   #3
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Re: Antithyroidglobulin test results.

Quote:
Originally Posted by ladybud View Post
Many people with Hashi's have other autoimmune diseases. I would ask for a test for lupus, as some of your symptoms are suggestive of that and not thyroid. 3000 is quite high on the thyroid antibody scale. If your TSH was high, you are hypothyroid, which is what you'd expect. The medication dosage can be tricky, as very small increments of change can throw you the other direction if you are very sensitive. The light sensitivity, fevers, headache, depression and palpitations can occur in lupus, as well as anemia, B12 and Vit D deficiency. The screening test for lupus is an ANA but there are other tests that can be helpful as well, sed rate, CRP, urine, CBC, chemistry panel, and other antibodies if ANA positive.

Lady lol! I must be a very informed patient! I've had all of those tests. i had an ANA last year that came back negative.

I take prescription Vitamin D. I take B-12. I have been anemic than not anemic. I have had so many cbc's it's unreal. The last most recent once a week ago and my white cell count was rather high.

I"ve had a CRP and sed rate, both normal.

 
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Old 10-11-2012, 08:30 AM   #4
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Re: Antithyroidglobulin test results.

The ANA is worth repeating every 6 mos to year if symptoms of it persist, as sometimes the symptoms precede the test becoming positive, and levels can fluctuate and rise over time. So I would get it redone now while you are symptomatic.

 
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Old 10-11-2012, 09:46 AM   #5
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Re: Antithyroidglobulin test results.

Quote:
Originally Posted by ladybud View Post
The ANA is worth repeating every 6 mos to year if symptoms of it persist, as sometimes the symptoms precede the test becoming positive, and levels can fluctuate and rise over time. So I would get it redone now while you are symptomatic.
Lady,

I asked for another recently and they wouldn't repeat it. I'm guessing it's about cost. She said "you were negative so I doubt that will change, as it's basically for arthritis and you don't have RH".

I knew better, but I wasn't going to argue. I see a specialist in a week or so. I'm still symptomatic and I imagine that won't change given that it hasn't now for months. I'll as the endo to have the test done.

 
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