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Old 11-14-2012, 09:36 PM   #1
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Unhappy Can someone Please Help with some answers

I have hashimotto's.

I am now on 100mg of Thyroxine!

Prior to going on that my T4 and T3 are in the lowest range of normal (infact 1 over normal)

TSH is at 4 now.

They tell me to come back in 12 months? with nodules on one side that take up my whole side of my neck and the other side they say if hyper still?

I am beginning to believe that it is easier for the Doctors not to treat and then they cant get in to trouble.

I have spent the last 6 weeks so tired I can hardly stay awake during the day let alone wake up in the morning.

Can anyone help me what should be happening or not - I know T3 and T4 should not be that low - My pharmacist said to me today that he thinks that (i cant remember) my t3 or t4 is blockeing the other and causing major issues.

My marriage is nearly destroyed - I cant even speak nicely to my family!!!!

None of the symptoms are menopause - well and truly over that, according to the blood tests>

 
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Old 11-15-2012, 07:14 AM   #2
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Re: Can someone Please Help wiht some answers

Hi, TSH at 4 sounds far too high given you are on 100mcg doesn't it. I found on thyroxine it brought down my TSH really well but my frees didn't change. Not only is your TSH high but your frees are low, you don't give the ranges so not sure how low.

When my thyroxine was increased I became even more tired with huge brain fog. I eventually found a doc. Who did further tests and I had adrenal fatigue which affects absorption but I also had a high Reverse T3 because I was not converting, do you think that is what your pharmacist was saying?

I think maybe you could look into the RT3 and natural thyroid which has T3 in it, I have just reached that point so not sure how long it takes to work! But going back in 12mths seems far too long to wait!!,

Last edited by Administrator; 11-15-2012 at 10:53 PM.

 
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Old 11-15-2012, 03:05 PM   #3
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Thumbs up Re: Can someone Please Help wiht some answers

Thanks for responding. I am having a real battle at the moment, I cant seem to get any answers or direction to help turn the tables.

Yes you are right the 4 on TSH is far to high but Au Doc's (as you would know) because it is still in range is OK??

T4 13.4 - Range is 11.0-21.0
T3 4.8 - Range is 3.1-6.1

When I first got diagnosed with Hashi's - both Antibodies were >600 should have been 0 they did all the tests - the ACTH was normal and the cortisol was just over into High range>

As I said earlier my pharmicist said I should be on something other than Thryroxine and you are right in the converting!! not sure which way - I do have brain fog terrible...

Maybe I should have the hormone tests done again?

Thanks Again





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Originally Posted by Surfing4answers View Post
Hi namirep, TSH at 4 sounds far too high given you are on 100mcg doesn't it. I found on thyroxine it brought down my TSH really well but my frees didn't change. Not only is your TSH high but your frees are low, you don't give the ranges so not sure how low.

When my thyroxine was increased I became even more tired with huge brain fog. I eventually found a doc. Who did further tests and I had adrenal fatigue which affects absorption but I also had a high Reverse T3 because I was not converting, do you think that is what your pharmacist was saying?

Dr. Martin hill and the Monee health clinic in vic. Seem to prescribe natural thyroid, I know nothing about them I just spent a while googling. I think maybe you could look into the RT3 and natural thyroid which has T3 in it, I have just reached that point so not sure how long it takes to work! But going back in 12mths seems far too long to wait!!,

 
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Old 11-15-2012, 04:00 PM   #4
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Re: Can someone Please Help wiht some answers

Hi again, I just wanted to update you on what I hope is not a temp. Situation but I was started on natural thyroid (T4/T3) almost 2 weeks ago and told to reduce my thyroxine to .50mcg, then a week later to .25mcg (from what I have read the T4 in the combo is equiv. to .75mcg per half grain but I may have that wrong) anyway, it seemed like a lot of T4 and I was afraid it would also become reverse.
First week was awful, body of lead, totally wiped out BUT and it is only the last 2 days so fingers crossed, I feel "lighter" less tired, and my brain doesn't feel as groggy, maybe it is too early to tell but reducing the Thyroxine appears to have helped bearing in mind I still have T4 in the combo.
I am also on a very small amount of DHEA as my cortisol was quite low as was DHEA so adrenal fatigue was my issue for not converting probably.
Anyway, your frees are definitely low and your TSH is high...it might be worth exploring the natural thyroid, you may find more places/docs who prescribe it, I really just found the two in my check but waiting 12 mths is far too long with your continuing symptoms I think!

 
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Old 11-15-2012, 04:40 PM   #5
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Unhappy Re: Can someone Please Help wiht some answers

Hi Surfing

I had to PUSH to get so treatment i.e. Thyroxine, I have one side of my thyroid that is ammassed with nodules, onle large, but has been FNA and all cleared. I have been on 50mcg, down to 25mcg now up to 100mcg? at least with the 100mcg the sweats have slowed dramatically.

No one seems to want to address the T3 or T4.

I think I do have adrenal fatigue, but no one seems to want to address that either - I don't know if you live in Brisbane now or are back in Melbourne but trying to find someone who specialises in Thyroid and the glands in Melbourne is driving me mad as I can't function properly and most Endo's treat Diabetes patients, to the the extent the other day when I tried to find another specialist they asked first was it Diabetes or thyroid related - As it was Thyroid related they would take me - I heard more about Chadstone Shopping Centre than I did about my condition and what they were going to do. The Doctor was over the moon at my presentation of the medical stuff I had and thought if I gave him enough info first we could get to the point and treatment.

Everything is struggling?

Last edited by Administrator; 11-15-2012 at 10:55 PM.

 
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Old 11-15-2012, 05:04 PM   #6
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Re: Can someone Please Help wiht some answers

I am in Brisbane and it took months to find someone and get into them! I basically got there by googling until I hit on those who use natural thyroid as it seems they have a better pic of the whole T4/T3 importance for those who do not respond well to just T4, though a lot of people work well on this alone I believe.
.25 is apparently a "nothing" dose, .50 is a starter dose as per info available here. Did you go straight to .100 or ease into it and how long have you been on that, I am guessing a while as in the 6 weeks and your retest is what you showed in your bloods?

I take adrenotone which is a doc. Prescribed adrenal support supplement via metagenics in oz but there are OTC ones as well along with calcium, zinc, magnesium and selenium all of which support the thyroid and supposedly help at cellular level BUT I have had these recommended by the doc as my bloods showed a need for them, especially zinc and magn. And I have recently learned that using Brazil nuts for selenium instead of a supp. Can cause side effects due to not knowing how much you are actually getting so I only take what I am advised to take by the doc. Perhaps a naturopath or holistic person could guide you on that side of things if you get no response from your doc.
The docs name Martin hill who uses natural hormones is in Melbourne I think, perhaps look it up and see if you can get in without referral, or even with referral from your own doc. We are all entitled to a second opinion, even in Australia!

 
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Old 11-15-2012, 06:07 PM   #7
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Angry Re: Can someone Please Help wiht some answers

Hi

I started on 50mcg then was dropped to 25mcd because my TSH went down to .61.

Following from that I continued to see my GP but I was so tired and exhausted and had shocking pains and aches that she increased the dose to 100mcg - slowly - now been on it for about 6 weeks.

I take beta blockers as I have paplations and tremors (which i thought we hyper symptoms) but they 0bviously cross over.

I have one side of my neck that is getting bigger by the week with the nodules so I assume that the nodules are spewing toxins into my system>

I feel like stayiong in bed every day? - this is going from someone who built there own house with their own hands with my husband? I struggle past 8.00 now?

U thing the natural/holistic approach is the way to go but did you go to that other doctor you noted.

I found one in Sydney (GP) that specialises in Thyroid and I was going to fly up to see her i am so desperate.

Quote:
Originally Posted by Surfing4answers View Post
I am in Brisbane and it took months to find someone and get into them! I basically got there by googling until I hit on those who use natural thyroid as it seems they have a better pic of the whole T4/T3 importance for those who do not respond well to just T4, though a lot of people work well on this alone I believe.
.25 is apparently a "nothing" dose, .50 is a starter dose as per info available here. Did you go straight to .100 or ease into it and how long have you been on that, I am guessing a while as in the 6 weeks and your retest is what you showed in your bloods?

I take adrenotone which is a doc. Prescribed adrenal support supplement via metagenics in oz but there are OTC ones as well along with calcium, zinc, magnesium and selenium all of which support the thyroid and supposedly help at cellular level BUT I have had these recommended by the doc as my bloods showed a need for them, especially zinc and magn. And I have recently learned that using Brazil nuts for selenium instead of a supp. Can cause side effects due to not knowing how much you are actually getting so I only take what I am advised to take by the doc. Perhaps a naturopath or holistic person could guide you on that side of things if you get no response from your doc.
The docs name Martin hill who uses natural hormones is in Melbourne I think, perhaps look it up and see if you can get in without referral, or even with referral from your own doc. We are all entitled to a second opinion, even in Australia!

 
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Old 11-15-2012, 07:02 PM   #8
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Re: Can someone Please Help wiht some answers

Hi nami,

It seems like you are getting more hypo with the increase in thyroxine which happened to me and it is only my own experience I can base this on, so it could be that you really are just not converting. My frees did not move at all BUT my TSH did keep going down nicely.
Didn't help the symptoms much but got some relief.

I am not trying to say you should go holistic only or rely on this for treatment, only that I do this and feel it compliments my treatment with conventional medicine, I wouldn't play around with stuff like that without knowing what I was doing, and I really don't! As I said I followed instructions they were from the assistant I saw belonging to the new doc. That does the natural thyroid. She tested me for darn near everything and I was low in so much, iron, ferritin, calcium and the others I mentioned. It is only because I was low that I started the supplement routine. I am just mentioning that perhaps optimising your health in that area may then help you and assist with the proper conventional care. (When you eventually get the proper one that is

The guy I am now seeing is alan hadley, have seen him only once and do not go back till jan as not only is he now away but his books are now closed and there is a wait list, there must be someone in Melbourne that does natural, did you check into the info I gave you, flying to Sydney would be a lot on you if there is someone closer to hand.

Way to go building your own house

P.s. dr. Martin Hill and Dr. Pamela Dagley appear to be more progressive and use natural thyroid which means they probably test for conversion issues, they are both in Melbourne and might be worth giving them a go before flying to Sydney?

Last edited by Administrator; 11-15-2012 at 10:57 PM.

 
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Old 11-15-2012, 07:17 PM   #9
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Smile Re: Can someone Please Help wiht some answers

Thanks on my way to go Building the house, as you know in Melbourne it is either do it yourself or you have to rent for a long time?

I think I am REALLY low, and have a long way to go to get them up to the 60-70% levels.

I am at a loss on the conversions - is it dangerous? It seems to me that everything is going the wrong way> TSH going to High and the T4 and T3 going too lows......

I, like you work with my GP and she welcomes the natural side of medicine, she is a great believer in their is a place for Western and Natural medicine but she has never seen numbers (TSH, T4 and T3) do what they are doing in mine. I know that it is not normal, nothing ever in my family ever is normal, it takes a lot of questioning and hassling to get to the bottom of the problem.

You help is immeasureable.

Last edited by Administrator; 11-15-2012 at 10:58 PM.

 
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Old 11-15-2012, 07:39 PM   #10
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Re: Can someone Please Help wiht some answers

All I can do is suggest finding out your RT3 no. \sounds like your doc is open to suggestions which is good but arm yourself with valid reasons for trying to adjust your numbers.

Last edited by Administrator; 11-15-2012 at 10:58 PM.

 
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Old 11-15-2012, 09:02 PM   #11
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Smile Re: Can someone Please Help with some answers

Thank you for your reply.


When is comes to this sort of thing unless we have been involved before we have no way of knowing.

Your help has been invaluable and I mean it from the bottom of my heart.

I have tried to get some answers recently and no one replied and through your assistance I now feel armed with some positive forward moving treatment.
You have HELPED ME no end.

Thank you.

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Old 03-18-2014, 04:48 AM   #12
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Re: Can someone Please Help with some answers

Hi there, I was just wondering how you two were doing with hashi's & adrenal problems? Did the armour & adrenaltone end up making a difference? I have hashi's and adrenal fatigue and have just been prescribed natural thyroid extract and adrenaltone after a rollercoaster 10 years on synthroid (since 18). I'm really hoping it makes a difference. I found a doctor in Brisbane willing to prescribe natural thyroid extract but I really don't like him- do you have any recommendations? Thank you

 
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Old 03-18-2014, 07:35 AM   #13
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Re: Can someone Please Help with some answers

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Originally Posted by Nahlarose View Post
Hi there, I was just wondering how you two were doing with hashi's & adrenal problems? Did the armour & adrenaltone end up making a difference? I have hashi's and adrenal fatigue and have just been prescribed natural thyroid extract and adrenaltone after a rollercoaster 10 years on synthroid (since 18). I'm really hoping it makes a difference. I found a doctor in Brisbane willing to prescribe natural thyroid extract but I really don't like him- do you have any recommendations? Thank you
Hi Nahlarose, welcome…sorry to hear you are still struggling. yes, I have got good relief switching to NDT and using supplements but i also had iron injections every week, then every 2 weeks etc and it is not dropping the way it used to now so didnt need one at last visit.

I no longer take adrenotone and have increased NDT to 2 1/2 grains along with adding in .25mcg of thyroxine. it has taken a long time to tweak and it has really only been the last 4 months I have been feeling a lot more normal. though this is because my T4 and T3 are at the very high end but in range, this is where it is working for me but everyone has their own level. I am exercising which i think is pushing up my cortisol as well as the better thyroid levels, which I badly needed as I really was being over cautious on taking hydrocortisone and tried various things to push it up.
I am not sure who you are seeing, I still see Dr. Hadley but his books are closed and he is waiting to retire. there is a new doc at his clinic (in park rd milton) who I believe is like minded but I am not sure as I have not attended him.
hope that helps a bit! good luck

 
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Old 03-20-2014, 12:16 AM   #14
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Re: Can someone Please Help with some answers

Hi Surfing4Answers, thanks so much for your reply. That's great you've had a good relief since last time you posted. What's NDT?

I would love to see Dr Hadley as have heard good things about him... I actually see Dr Hadley's protege Dr Patel but my experience with him has been very disappointing and disheartening. The second time I saw him I had a 20+ list of problems- including heart palpitations, kidney pain, extreme fatigue, pain when breathing in, sudden depression, digestive problems and arthritis (all of which began in the past month) and all he did was check my blood pressure. He only ordered a test for Lupus after I requested one, and was very insistent on getting me out the door after a short time. I was in tears at the end.. I just want to find a doctor that hears me and can help me.

As a positive though, he did prescribe natural thyroid extract (97.2mg/day), adrenotone (240mg) and iron supplements at our first consultation which seem to be helping. I've since began taking selenium, zinc, B vitamins, C, St John's Wort, fiber, probiotics and have cut out gluten, soy, egg, and dairy after a consult with a naturopath. One good resources you might be interested in is the book "Hashimoto's Thyroiditis: Lifestyles Interventions for Finding and Treating the Root Cause" (from the library). The book has helped me understand things a bit more.

Thanks again for posting your experiences! And I hope things continue to improve for you

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