Peds Endo seemed pretty sure that this test would come back negative, since she isn't a hyperactive child.
Which test do you mean? No thyroid symptom is always associated with any particular thyroid disease. If this guy is assuming any kind of test can be skipped based on a symptom or non-symptom, he's not the guy you want treating you.
I'm sure you're frustrated. I'd certainly be, too. Endos are the pits at treating thyroid disease in adults. I wouldn't expect a ped endo to be any better, really. And there are so few of them, the odds of getting a good one are pretty slim.
No, it's not me who has THR. (You mean T
esistance, right?) Has someone mentioned the possibility of that to you?
The odd thing about those labs is how varied they are.
The first set with high FT4 normally would suggest hyperT. But if her TSH wasn't low, that would be much less likely.
The second set has low FT4, which is hypothyroid - no contest. (Slightly elevated total T4 is moot. Total T4 is heavily influenced by estrogen, so women and girls close to puberty shouldn't even be wasting a blood sample on this worthless test.) Her high-normal TSH confirms that she was hypothyroid when that set of labs was done.
Then... To flip-flop again on the third set, with high FT4 (and FT3 too, if your numbers are typed accurately), would be hyperT on the face of it. But that "normal" TSH doesn't confirm that.
This kind of fluctuation is seen with cases of Hashitoxicosis, I think. (Am no expert on the condition, but our member lisa789 is. She has it.) That's why you need the antibody tests to check for autoimmune conditions that can cause wild swings like these.
Also, there's a possibility of pituitary dysfunction, since her TSH doesn't seem to reflect what the free Ts are doing, as it should be.
I wish I knew more than that. I hope it helped, at least a little.