Join Date: Jan 2013
| | End of my rope- need help PLEASE
I am a 38 yr old female. I have been suffering from a myriad of symptoms for over 6 years. These include extreme fatigue, chronic headaches, muscle and joint pain, memory problems, brain fog, dizziness, weakness, IBS, cold hands/feet, insomnia, NO sex drive (I have to force myself- not fair to the boyfriend).
I have run the gamut of western and eastern doctors. I have been diagnosed with everything from gluten sensitivity, low zinc, "damp heat", and countless others. I have tried more supplements than I could even list.
I have a history of anxiety and depression, this all of my symptoms are chalked up to these. It's a stigma I can't escape from. I know something is physically not right.
I have had countless lab tests and have trended them over the years. I recently took a blood and saliva endocrine test. The following are my results-
Salivary cortisol 4 times per day normal 2007, 2010, and 2013.
B12 normal 2007, 2010.
TSH 1.66, 1.3, 1.1, 1.12, 1.04, 1.48, 0.5 (2007-2013) various labs
*2009 1.1 and 2013 0.5 ref range 0.5-3.0
T4 7, 9, 8.9, 7.3, 6.3 (2007-2010) various ref labs and ranges
T3 138, 103, 101, 93 (2007-2010) various labs
Free T4 2, 0.9, 0.8, 1, 2.3, 2 0, 0.9 (2007-2013) various labs
*2009 0.8 and 2013 0.9 with ref range 0.7-2.5
Free T3 2.2, 3, 2.5, 2.2 (2007-2013) various labs
*2009 2.2 and 2013 2.2 with ref range 2.5-6.5
T3 uptake always normal
Thyroid Ab always negative
Reverse T3 224 ref range 90-350
TPO 29 ref range 0-150
Vitamin D low at 25 ref range 32-100
ESR sed rate normal, ANA neg, rheumatoid factor normal
Positive for Ebatein Barr virus IgG at 2.81 (<1.1 norm) 2007
Positive for cytomegalovirus IgG/IgM 4.16/1.59 (<1.1 norm) 2007
So, I know I have low vitamin D so I have supplemented.
My doctors haven't been concerned with my thyroid.
My labs don't seem to make sense since my free T3 is low and my free T4 is borderline low, my TSH is also borderline low. This is concerning for a pituitary tumor, but I have had both an MRI (thinking I had temporal lobe epilepsy causing symptoms) and a CT for sinus issues. No tumors found, however no contrast ever used.
My quality of life has suffered so much. I've lost so much time and feel so much regret. It amazes me that doctors are more than comfortable handing out any number of psychotropic meds, but won't try hormones.
I have an appointment with a new doctor this Monday and really don't know where to go from here.
I thank anyone who chimes in for their help, support, and advice.