KMX

Hi Cymy Sue,
The only reason I haven't posted the doctors name is because I know he prefers a low profile despite his important position in the field of TMJ. I'm concerned that he wouldn't appreciate my posting his name on this site and as much as I want to help as many people as I can, I have to be honest and tell you I don't want to upset my doctor in any way that would jeopordize my son's and my treatment. I actually have 2 sons being treated by him, along with myself because my younger son had 2 consultations with the orthodontist that hurt us and his jaw was injured during these consults. I want to help each and every one of you and that's why I am giving you as much information as I can to help. In the information I have given I have directed you towards the doctor who is treating us so that if you find him yourself then I wasn't the one advertising his name on the internet. I would give it to you personally if there was a way but I am extremely reluctant to just post it on line. Please understand that I am not being selfish but rather am trying to help everyone while still respecting his privacy. He is very well known in the dental community but not to the general public. I don't know if you've read the articles recommended in some of the messages I've posted but if you do it will help.
If you have any suggestions for my concerns please let me know because I am still committed to helping all those suffering. I should tell you that those who have had surgery are in the worst case catagory, I am one below you in terms of severity. I know recovering is more complicated for those who have had surgery and I might be wrong about recovery in you case, if so I'm sorry, I'm no doctor as I've said but I do know that the key to recovery is proper jaw positioning that positions the condyles properly within the socket. Because I haven't had surgery, which is almost always a mistake since it rarely makes the patient better and more often makes them worse, I don't know much about it.
I assure you I plan to do everything I can to inform as many people as I can about what I've learned. I have spoken to a newspaper reporter and I'm planning legal action for what was done to my son's and I to get it on the books to help others and to send a strong message to practitioners, as well as working on writing to magazines about publishing our story to try and inform and help as many people as I can.
I want to do as much as I can to help because I know how devastating this condition is, I came very, very close to ending my life not so long ago because I couldn't take it anymore. It it weren't for my sons I wouldnt have lasted very long. The medical and dental community is not doing enought to inform people of this condition and to help them get well and I am committed to doing all I can to change that.
Kelly