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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 05-01-2003, 12:25 PM   #1
Al4 Al4 is offline
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Post Do you believe them?

The TMJ docs I have seen or talked to say they helped the majority of their TMJ patients. What do you think? Do the majority of TMJ patients get better and never post in forums? From what you know or have heard about others, what is your guess as to the percentage of those who get better with conservative approaches? Thanks.

Alex

 
Old 05-01-2003, 08:43 PM   #2
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Marlene HB UserMarlene HB UserMarlene HB UserMarlene HB User
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Hi Alex,

You pose some very thought provoking questions. I think that probably a great number of TMJ docs say that they've helped the majority of their TMJ patients. Only a rare few will want to talk about the ones they haven't been able to help - perhaps "ego" prevents them from doing so? I feel that the dedicated ones will tell you what percentage their success rate is (mine told me up front that his success rate was 85%), and will offer a list of former patients that can attest to it.
Unfortunately, I think you're right that the majority of TMJ patients who get better never post in forums. I think they should post in forums, if nothing more than to share their experiences with what treatments worked for them, and to offer hope to those who are still suffering. That's why I choose to continue to post here. As to the percentage of those who get better with conservative approaches - provided it's the *right* conservative approach - I would "guess" it's 70 - 75%.

Just my opinion,
Marlene

 
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Old 05-02-2003, 03:13 AM   #3
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I agree with Marlene. I would have never looked for TMJD information, if I had been well. In researching some kind of "New Treatments" or another type of surgery (I was desperate), I found this Forum.

When I first read the posts, I wondered, (in my stupidity) why "Marlene" continued to post "The Resident Success Story", when everyone else was sick and looking for help.

I thank her from the bottom of my heart for doing so. Her story and answers to my many questions lead me to ask about Splint Therapy, when I had been totally convinced for years this would not help.

I am not a "Success Story" (yet), but I am so much better. My condition is very different from hers. I am getting better after many years of surgical disasters and inappropriate treatment.

I hope by posting my progess, it will encourage others to never give up, don't take one Doctor's opinion and believe there is no hope.

I believe "Surgery" is needed in a small percentage of cases. I believe (now) Splint Therapy, Orthodontics (if needed) and many other non-surgical treatments can cure or at the least, relieve most of the TMJD symtoms we have.

I also think very few people would get involved in a Forum such as this, if they are well.

It would help so many people, if the "Successes" would post and elaborate on treatments and the Doctors who helped them.

Those of us, who are now being helped, can report it is possible with the right Dentist/Doctor. It seems the biggest problem for most Members is finding a Dentist/Doctor who will or can apply the techniques and theories that are working.

My prayers for all to find the "Best",

Cymy Sue

 
Old 05-02-2003, 10:50 AM   #4
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Heyas.. This a subject I have pondered often since getting tmj. I think that maybe 30-40 percent might get better with conservative approach... but I'd really be surprised if that were any higher. I mean I guess you have to look at what the doctor considers success. Does this mean that they took xrays/mri before and then after and now everything is fine or does his version of success mean that the patient never comes back for tmj so he considers them well?

I personally think a lot of people probably go from doctor to doctor like us.. and then eventually find the treatment they need. I really have a hard time believing that any doctor could cure 85 percent of their tmj patients, but maybe that is just my skepticism. From reading on the forums here.. and reading about how one treatment works for one person but not for another.. it seems that in order to have that high of a success rate he'd have to be a massage therapist, an acupunturist, a surgeon, a chiro... all rolled up into one little package. http://www.healthboards.com/ubb/rolleyes.gif

p

 
Old 05-02-2003, 02:27 PM   #5
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P-nacho, you make a very good point. My specialist has tried to convince me that my treatment has been a success because my x-rays look fine and my jaw is no longer clicking. Those are objective findings. Subjectively speaking, I still have every other symptom that led me to the specialist in the first place. I have now convinced him (I think) that I'm NOT YET a success. So together we try to find an answer.
It would be nice if more success stories were posted on this boards. I know they're out there somewhere, but like others have said, once people have been "cured" they tend to move on.

Crystal


 
Old 05-02-2003, 06:18 PM   #6
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TiffanyAnn HB User
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Cymy Sue:
I also thank Marlene for continuing to post here after her successful treatment. I also thank you for continuing to post as you improve. It gives me so much hope that I too can find help and get well. Some days are so hard to keep on trying and I thank everyone on this board for their patience and support.
Tiffany

 
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