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Old 05-07-2003, 03:43 PM   #1
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Post doctor visit..

Hey all! I just got back from the doctor.. this isn't a tmj specialist.. just my reg doctor. He switched my muscle relaxers to soma which he said should help with sleeping at night. (thanks to all of you who helped me with finding soma!)

I asked for an mri. He suggested a catscan instead. He said that he's concerned about my sinuses and says that this will help show both. Is this correct? Will the catscan show if it's muscle or joint related tmjd problems?

He's keeping me on the nasal steriods. He said that sometimes it takes 4-6 weeks before they will totally clear everything out. I expressed concern for taking the steroids so long but he said that there wasn't anything bad with it. Anyone know of any long term affects with taking steriods?

Anyways.. just thought I'd update everyone. The CT takes place monday. I'll let you know what we find afterwards. I dont have a tmj doctor so I dunno if we will be able to see anything heh.

p

 
Old 05-07-2003, 04:01 PM   #2
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Hey There P,

Glad to hear that you're getting some help from your doc. Now, my son had a CT scan a few months back and his doc said that you couldn't see the joints very well with this, they were looking at his sinus area, too. The doc said that he needed an actual MRI of the joints themselves. Since he's had an MRI of the joints and it came out normal, the tmj doc seems sure that it's muscle-related.

As for nasal steroids, I've taken them before, but my doc said, no longer than 10-14 days. Apparently, we start to rely on them for congestion, and if they're taken too long, you'll end up with worse sinus congestion than you started out with.(that's what the doc told me, at least)

Glad you got your soma-hope that helps you sleep better!
Cheryl

[This message has been edited by CherylLynn24 (edited 10-30-2003).]

 
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Old 05-07-2003, 04:18 PM   #3
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Howdy,
Well this gut seems to think he is on the right track. I can see why you hesitate though. When I had a catscan they just looked at my brain (ironically they say I am normal). I don't think it will give you any definite answers on your tmj, but it might pin point on all your fluid. Who knows anymore I am so discouraged myself over here. My pt now wants me to go see a neck and spine orthopedic to see if I have any damage. I think that sounds like a good idea. Oh I have not told you the latest- It looks like that "Specialist" really screwed me all up. Since he never sent my doctor the notes of what type of splint I needed- my dentist gave me the basic night guard. I thought my dentist received the notes (whole story under frustrated). lol I have the WRONG SPLINT!!!!!!!!!!
I have a question- how are we suppose to get better- and stop clenching and locking when we have these types of "humans" calling the shots.
I am sorry to just go off like this- but I am sooooo mad! I am about ready to crawl in my closet and not come out. I guess you can say that I kind of have already started doing that. I have gave myself a project to do. I am stenciling my WHOLE HOUSE!!!! I have never done it before and it has been kind of fun. I am making butterflies fly around my house. This is bringing the outside in so I don't have to go out. I am also going to redo my bathroom sink. We have a black sink that is chipping a lot. My whole house has a light green, white, and a creamy color- the very black sink does not match.
P, I hope they are able to give you answers that you need to get better.

 
Old 05-07-2003, 06:39 PM   #4
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Heya Heather! I know you must be discouraged.. getting that kind of news from your doctor that you got the wrong splint can be frustrating as heck... but the good news is that even when the 'humans' are getting it wrong.. the big guy upstairs is looking out for you. You didn't wear the splint for too long and it didn't make you worse. *says thankful prayer*

I'm so glad you've found something creative and fun to do. That must help lift your spirits some. My sister painted butterflies in our gameroom years ago. They were so beautiful. I think if I ever own a house I'll do some stenciling too. hehe. I know it can take a long time tho!

I am a bit hesitant about the ct instead of mri, but I guess I'm glad in a way. My sinuses have been bothering me (which they never do) and I didn't know where all that fit in with the tmj. He did say that if we can't see anything with the catscan that he would order an mri. And man those soma are powerful. I took a half.. then went to make dinner and I was just laughing in there all by myself. My boyfriend came in there to check on me and he just laughed when he saw me. I feel much more relaxed tonight than I did on the other ones. Jaw doesn't hurt as much so maybe these will do me more good.

Anyways.. good luck with your paint project. Wish I could come over to help but I'm on the other side of the country hehe. Hope you have a great evening!

p

 
Old 05-07-2003, 06:42 PM   #5
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Hi Cheryl! Thanks so much for the info. That is what I was looking for. I'm going to do a check on the internet if I can find more about the nasal steroids. I just don't want to take them too long as I'd heard they might be bad long term. I didn't know if that applied only to the pills or the nasal stuff too.

So how's Mike tonight? Are you doing okay? I think it's great that you have him out exercising. I think getting out of the house and doing projects is so healthy as it keeps our minds off the pain and worry.

p

 
Old 05-07-2003, 07:13 PM   #6
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Hey P,

Ugh!!! What a bad night. My son got up this morning with his jaw hurting some, and you know by evening, it gets worse. He was crying on my shoulder so hard. He said that he's never going to get better. This breaks my heart. He's been wearing the new splint for a week now, and had a teeny bit of improvement, until today. I don't know whether to get him out of this doctor's care and into another or what. The doctor is supposed to be a good one in our area. I gave him a flexeril tonight, at least it'll knock him out so that he can sleep well...I feel like I'm going to lose it.....
Cheryl

[This message has been edited by CherylLynn24 (edited 10-30-2003).]

 
Old 05-07-2003, 08:11 PM   #7
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awWWWWWW Cheryl I'm soOO sorry to hear about Mike's pain. I know this much be so painful for you to watch as well. *hug* Just be strong for him. He'll know that you are on his side and keep fighting. As for the splint.. I dunno. Some of the people on here have had such bad problems with splints. I don't know if I would abandon your doctor just yet. I definately think you should call him tomorrow and let him know what is going on. I dont think the splint should be this painful for him. Is there any other doctor you could call to double check the fitting of the splint.. or see if its even the right kind?

Hang in there supermom! We are all here for you! It's encouraging that he did show some signs this week! Hang on to that and know that he will get better with time. Just have to find the right formula for him!

p

 
Old 05-07-2003, 08:22 PM   #8
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Hey P,

I told him that tommorrow will be a better day. (I hope) I'm not going to send him to school tommorrow, it seems as though the last time I gave him a Flexeril (it knocked him out) he slept for about 12 hours, at least-he woke up feeling better. We'll see. He's got a masso. appt. tommorrow, too, so she can work on him. He hasn't been hurting more coming out of there lately, since I told her to massage him alittle easier instead of all that deep tissue stuff.

As for splints, I have no idea which are the right kinds. If I do abandon this doc, the one I'd go to is at least 2 hours away....life is never easy, is it?
Cheryl

 
Old 05-07-2003, 09:43 PM   #9
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hey cheryl! I feel so bad for you and Mike. I'm not sure that you should abandon this doc yet. You need to call him and tell him what's going on though! You pose a good question though. I wonder what splints work for what symptoms with tmjd. Like Heather who got the wrong kind of splint. I personally don't have a splint so I don't know anything in that area. I have heard on here that some of them might get a bad fit.. which might be Mike's problem. It might need some readjustments or something.

I hope you and him can get some sleep tonight. I'm glad the massages are working out for you. I can tell you that they feel awesome at the time so I'm sure that is one thing he will enjoy tomorrow.

p

 
Old 05-07-2003, 09:55 PM   #10
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Heya P,

It's so nice talking to you. Gives me alittle oomph to keep going! Anytime I ask this doc if this splint needs adjusted he makes me feel like sort of an idiot. He says it's fine. I read something that Heather wrote earlier, and it sounds like she's disgusted, too.

Hey-P, I thought you took that Soma tonight? You should be out like a light by now! I meant to tell you before-push your doc for an MRI.
Cheryl

 
Old 05-07-2003, 11:49 PM   #11
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Heya cheryl.. I'm so glad I can be of some comfort. You do the same for me though. Your drive and fantastic energy to find a cure inspires me to keep trying instead of settling for painful existence.

I'm sorry that the doctor tries to make you feel like that. Sometimes with doctors they get so set in their beliefs that it astounds them when someone questions their authority. I've run into this myself before.. but the simple fact is that the new pain Mike is feeling might be from something being wrong with the splint. You know that.. I know that.. and tons of people here know it too. Maybe you could find some research on the web about bad adjustments and send them to him. If nothing else, if he eventually won't treat yall, maybe he might become a little more aware of the situation. I know it's not our job to teach them, but it might help the next person from suffering the same fate as your son. I'm not altogether though positive that something is wrong with the splint. I mean it sounds like it to me, but I'm not a doctor or an expert.

But I still say before abandoning this doctor altogether.. I think you should muster up the strength to tell him how you feel. He might actually back down a bit and listen to you. You're so passionate here on the net.. it's so surprising that the doctors don't reach out to you and try to help you as best as they can.

I guess if he won't listen.. maybe find someone who can look at the splint. Let them give a second opinion. Maybe one of the previous doctors that you've seen before that know things about tmjd. Just tell them that you aren't there for anything else but to just test the splint. (a dentist, oral surgeon, etc)

Yes I too figured that I'd be asleep. The soma has kicked in somewhat, but my boyfriend is.. well not so nice sometimes. He upset me and went to bed. I'm the type of person that can't sleep if something is wrong with someone that I care about. Silly eh? So I started crying... which made the fluid kick up in my head... now the pain is driving me nuts. *tear* Some days are really hard eh?

I think I will push for the mri, but I think I'll do the catscan first. I'm very curious as to what the sinus part of it will say. Since this started with a cold/ear infection.. and my sinuses have been hurting lately... *sigh* I guess the scariest thing is that I'll lose my good insurance in the next couple of months when I move. Hopefully I'll find some as good as what I have now.

Sleep well Cheryl. We've both had it rough tonight. Tomorrow we fight more.

p

 
Old 05-08-2003, 12:25 AM   #12
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P,

Some days are truly hard. You're a truly compassionate person, P, you're going to make a great mother one day! *hugs*

Cheryl

 
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