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Old 04-30-2003, 07:41 PM   #1
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totallyconfused HB User
Question What's going on?

Hi everyone,

Does anyone know what is going on? For some reason the "faq" link now replaces the "search" link on the threads-at least on my computer. Also, I posted a message to Robyn earlier asking where she was and it isn't showing up. Did something happen while I was out this afternoon?



[This message has been edited by totallyconfused (edited 07-02-2003).]

 
Old 04-30-2003, 08:08 PM   #2
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Hey you are right I have the faqs button too. I have been on the computer on and off all day. So far I didn't see any time where we could not post anything.
Heather

 
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Old 05-01-2003, 04:54 AM   #3
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Hi Heather,

I posted and it seemed to go through fine, but when I looked for it last night it wasn't there. Has anyone heard from RobynRose lately?



[This message has been edited by totallyconfused (edited 06-17-2003).]

 
Old 05-01-2003, 05:04 AM   #4
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Talking

I just got my search link back. Guess they were working on something.

Thanks

 
Old 05-17-2003, 05:38 AM   #5
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Hi Cathleen,
I wanted to let you know that I had been trying to respond to your posts for some time now. I'm so sorry I wasn't able to. Apparantly, I was in violation of the regulations here when I made reference to a dr.s website (even though I didn't give the web address). This was all at the time that Kelly was active here. In any case, I now know that directing a member to a physician's site (even if it is not with the intent of promoting - but more for informational/educational purpose) is not permitted here - as I was "banned" from posting because of all this.

Please forgive me for not responding!! Let me know how you are doing. I still have not seen Dr. Cooper, and my physiatrist has tried some trigger point injections. She's suggesting I see another dentist who she collaborates with on her tmj cases...and they work together with the splint therapy and trigger point work. I'm so confused - but want desperately to take an active role in controlling this horrible condition. We've also talked about botox as a possible therapy - in conjunction with the others.

Let me know how you've been. It's nice to be back.

Best, Robyn


 
Old 05-17-2003, 07:11 AM   #6
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Talking

Robyn,

Great to have you back!! You've been missed. I was so worried that you were in really bad shape.

I hope the trigger points help you.

Keep in touch and let me know what is going on with you.


[This message has been edited by totallyconfused (edited 06-17-2003).]

[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-17-2003, 07:12 PM   #7
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Happy Birthday Cathleen!!!
Yes - I am happy to be back too. It was frustrating because I was reading your posts and wanting to respond (even typed you various letters which never managed to get posted
Oh well... I've learned not to refer to any websites before approval by the moderators. I can understand why the rule exists - though my intentions were pretty pure.

On the lax ligaments issues... yes - this is a huge factor in my problem. I have suffered with difficuties in other joints for 10 years now- particularly spine problems. Most all of my pain issues come from the hypemobile joints due to ligamentous laxity. It's really been a tough 10 year - I'm going to be 40 this December.

In any case, I have not had the jaw looked at by mri or even xray at this point (have you?). Have been told that clinically it's clear the disc is dispacing when I open. I can feel the popping - clunking and pain every day/all day. It seems my left side is moving too much, and the right - seems frozen.

On your splint... I suppose you should give it a bit more time..but defintiely tell your dr. what is going on with the new popping on your good side. My greatest fear is doing more damage as well. We want to be proactive - and control the condition - but I think it's a fine line between doing good or doing harm here. Have you felt any relief at all from the splint - maybe decreased headache - or facial pain etc?

Thank you so much for checking on me. I'll need to go bback and re-read some of your prior posts in case I can offer anymore insight regarding the hypermobility.
In the meantime...happy birthday again. I hope it was special!

Robyn

[This message has been edited by RobynRose (edited 05-17-2003).]

 
Old 05-17-2003, 07:47 PM   #8
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Hi Robyn:
I just wanted to respond quickly.You said you were banned from the board but if you are using AOL it's possible that you were not banned from the board. I got a message several times that said that I was banned from the board. I wrote the moderator and she wrote back and told me it was not me but that if I was using AOL that AOL changes your IP address every time you connect to the internet and that sometimes I will be able to post, sometimes not. She suggested that I change to another internet service but told me that I had not broken any of the rules. So, it's possible that something similar was the problem for you.
Tiffany

 
Old 05-17-2003, 08:01 PM   #9
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Robyn,

Hi again!! I haven't felt any relief from the splint yet, but my main problems were frequent headaches, ear symptoms (which I understand take awhile), and joint noises. The facial pain just started recently and really seemed to only follow dental work or something like that. I did have more facial pain after getting the splint, but the dentist said to expect additional symptoms while I was adjusting. The thing that scares me the most is the popping in the "good" joint. I mentioned it to him in an e-mail the day after I got the splint and he said that everything was fine and to keep wearing the splint. I see him Monday and I will definitely bring it up again. I hope bringing the jaw forward for all this time isn't stretching my ligaments out even more!!

[This message has been edited by totallyconfused (edited 07-02-2003).]



[This message has been edited by totallyconfused (edited 10-29-2003).]

 
Old 05-18-2003, 04:49 PM   #10
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Hi Cathleen,
No I really haven't had a whole lot of relief - unfortunately. I'm fearful that I had better hook up with a good specialist quickly, but dread going through the process - time, energy and expense. I guess I've had my share of health issues to deal with over the past 10 years - and wish I didn't have this new one to tackle.

I know what you mean about the "good" side acting up.
Something similar occurred with my back - after the sypmotmatic side was treated (with a joint block). The "good side" then got in on the action - and it's been a seasaw ever since. Perhps for you this will just be an adjustment phase. Maybe some of the success story splint members can offer some insight here.

For me there really isn't a "good" side with my jaw. The right pops at times...but mostly the left "clunks" - and clearly deviates - as though it's tracking around the displaced disc. Do you have this obvious "deviation"?? I can actually see the entire left joint pop out of place as I open past a certain point. Also strange is this sense that I'm cutting up the inside of my cheek with teeth (with normal use of the mouth). I wonder if my bite is just so thrown off.

One thing I've experimented with is just bringing my
bottom jaw forward on my own. I do sometimes feel this feels better somehow. I have a night splint (generic) - by a company called splintek (the chiro gave it to me)... and I sometimes feel this helps some.

Like you I don't think I was a major grinder/clencher...and am constantly reminding myself to keep the lips together - teeth apart. I wouldn't be surprised though if I clench at night - especially with the chronic spine pain.

Oh...another thing I tried ... putting orajel type
product (benzocaine) - introrally on my pterygoid
muscles. Believe it or not - this took a major edge
off - but temporarily. Guess the muscles get in on the action if the ligaments/joints are dysfunctioning - regardless.

I am really hoping this neuromusclular splint therapy is effective for you. Some of the success stories are s so encouaraging...yet the faiures are very evident
too. It's hard to make good judgement calls - and we
know that all professionals are not crated equal...who
to trust??!!

Well hope your weekend went well. Let me know what your doctor says tomorrow..defintitely ask about the possibility of overstretching ligaments with the splint.

Take care, Robyn

 
Old 05-18-2003, 04:53 PM   #11
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Hi Tiffany Ann...
Thanks so much for the info on AOL. In this case I actually had both problems. I did have a 1 week ban because of referring to a physician website (won't do that again!! ).... but then after that - I continued to have problems because of the AOL thing.

It's nice to be able to participate again... though. Hope you are doing well!
Robyn

 
Old 05-18-2003, 05:04 PM   #12
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Robyn,

Hi!! To answer your question, during my examination the dentist said I had no obvious deviation (good news), but I do have lots of clunking and all that clicking when I talk. The LAST thing I want to do is mess up the BETTER side--not perfect, but apparently not nearly as bad off at present. I'll let you know what I find out. I am only supposed to be there for about 15 minutes, but I will try to get in as many questions as possible. He has started to expect this from me already and we joke about it. I'm sure he doesn't look forward to my visits all that much sometimes!! By the way, did you see my post about the surgery involving just pushing the discs forward? Had you ever heard of that before?? I thought it was strange.



[This message has been edited by totallyconfused (edited 07-02-2003).]

 
Old 05-19-2003, 10:46 AM   #13
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Robyn,

I'm back from my appt. Turns out he didn't need to adjust the splint at all--don't know if that's good or bad. The tooth contacts still lined up and he said the deep bite marks were caused because I have deep crevices in my teeth. The lines I saw on the splint are the points were the two surfaces of the splint meet--he said. I got to tell him about all my symptoms and he has given me some exercises to do. He didn't seem worried about the right side, but put me on the "listening" device anyway (just for a minute) to "put my mind at rest". Problem is, the device read more noise in both joints this time. The number that is supposed to correlate to fibrous or scar tissue was higher in both; I don't know that scar tissue could form that quickly. He didn't seem concerned when I pointed this out. Given the fact that this jaw position is supposed to be decompressing the joint I don't know what is going on. I guess I won't freak out until I see the full test again. I knew I was hearing some noise in that joint now, though.



[This message has been edited by totallyconfused (edited 06-17-2003).]

 
Old 05-19-2003, 08:31 PM   #14
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Hi Cathleen,
Glad to see your doctor was not alarmed by your new symptoms. Perhaps your bite needs to adjust - and this is just a normal part of that. Has he mentioned anything about the left side being hypermobile...and the right side being hypomobile. I'm just wondering if you are starting to get movement in the side that was less mobile..and this may account for the increase in sounds??

Let me ask you this... does he call this splint a "repostioning" device?? Or is it more about preventing clenching/grinding?? If I recall, your bit itself was very good right?? So do these dentists repostion the jaw essentially to take pressure off the joint??

I actually called this new doctor's office today (the one my physical medicine doctor referred me to). I was astounded to hear the initial consult would cost $375.00..this is before the panoramic xrays etc.
He also accepts no insurance plans... good stuff - hugh?

Are you doing ok with speaking and other functioning with your splint? I have been doing my own manipulation of my jaw (jutting it forward)...and find this does have a benefit - though only for a few minutes.

Well.. glad your appiointment went ok today. Hopefully the increased sounds is benign.

Talk soon, Robyn

 
Old 05-20-2003, 05:18 AM   #15
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Robyn,

The splint is a neuromuscular splint to reposition my jaw in order to decompress the joints and supposedly allow them to heal somewhat. The difference between it and a regular anterior repositioning splint (I think) is that they use a TENS machine to see where your muscles allow your jaw to be when they are "relaxed". This is where they build the splint. I am talking fine. Only people who are really close to me and who I talk to all the time can tell I have something in. My bottom lip looks a little pouty according to one friend.

He did mention something about since the two joints are connected moving one side would effect the other. I already knew that of course and is what I was worried about!!! I could tell he wasn't real thrilled that the test numbers were higher this time..not because he thought it was bad news, but because it would just worry me more and he couldn't really explain it. My headaches have been worse since the splint. I hope they get better soon. Of course, it could be allergies you never know.

As for the insurance. Surely your doctor would TAKE insurance payments made to him. I'm assuming that they don't participate in any plans and take reduced payments, etc. My dentist doesn't either. They DO however file the claims for me. So far my medical is paying!! Of course, I'm still paying a lot too.

Let me know what you decide to do. If this guy is too expensive and you are not sure what he can do for you, you could always try Dr. Cooper (of course I'd bet he's not cheap either). Maybe this new doctor could give you the names of some of his patients that you could speak with first.

Good Luck!! Talk to you later.



[This message has been edited by totallyconfused (edited 06-17-2003).]

 
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