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TMJ Disorder -TemporoMandibular Joint Message Board
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Old 05-22-2003, 11:33 AM   #1
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DianeTMJ HB User
Unhappy I'm exhausted

I have been waiting and waitng for my orthoic splint to come in. I have been successful in keeping off much of the pain by using a tens unit designed specifically for TMJ/TMD. I got my splint yesterday and I am just heart broken. I am so sad. I just want all of this to go away, I just want to hide under my bed and just cry. I hurt so bad, the splint even though it moves my jaw forward, due to missing teeth, the "clasps" that hold it in place cause my lower back teeth to hurt, it easily moves in my mouth and pops around when I try to eat with it.
I guess I was just looking for my miracle. I am just so tired. So very tired of the pain.
I usually more up beat then this, I am just so tired of pain, just so tired of handing out our money like it grows on trees.
I know I am just venting right now. I am having a friend drive me back up to the dentist to get an adjustment. THey are 1 1/2 hours away and with my vertigo I simply can not trust myself to drive.
I hope this thing works.
Sorry, I just needed to talk with out saying a words, I am just so tired.
Thanks
Diane

[This message has been edited by DianeTMJ (edited 08-04-2003).]

 
Old 05-22-2003, 11:59 AM   #2
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Hang in there, better days are coming soon!!!
When I first got my splint it hurts until your jaw moves into the correct position, Usually my jaw will hurt for a few days after an adjustment, then gradually subsides.
Are you taking anything to ease the pain?

 
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Old 05-22-2003, 01:03 PM   #3
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Hi-
I am taking advil for pain and at bedtime I take 1/2 of a 2mg valium. It really loops me out so I need to be careful with the valum. I am sorry for sounding so discouraged, it took me two years and $8,000 before I even got the word that I had TMJ. THen the splint cost me $4,600.00. I just need to be patient. I know it will get better. It also panics me as now that I have the splint, I found out my dentist is going to be gone for two weeks. Sream. I am going in for an adjustment this afternoon and I am sure that will help. I was silly in thinking that he would pop it in my mouth and all of the pain would go away. Thank you for your kind words, I will get on line after I get my adjustment and let you know how things went.
Have a good day
Diane

 
Old 05-22-2003, 01:20 PM   #4
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CherylLynn24 HB UserCherylLynn24 HB UserCherylLynn24 HB User
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Diane,

Better days do lie ahead. You probably just need an adjustment. Go and get that done and see how it goes. My son said that with every new splint, he hurts for a few days, (not a horrendous hurt, just a 'sore' hurt) maybe just getting used to it, I guess. I'm sure that you'll see some difference over the weekend, so try not to get so discouraged yet. (I know it's hard not to) Hang in there!
Cheryl

 
Old 05-22-2003, 01:27 PM   #5
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exactly Cheryl,

I get the same kind of achy feeling.
I know when I need an adjustment because Im in pain and
after the adjustment it hurts for a few days and then subsides.

 
Old 05-22-2003, 01:29 PM   #6
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My tmj specialist says it hurts because the jaw is repositioning itself

 
Old 05-22-2003, 07:02 PM   #7
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Hello everyone -
I can not thank you enough for your encouraging words. I spent 2 hours in the dentist chair this afternoon, trying to get the correct adjustment. He realized that some of his readings were off, because of my muscles on the right side of my face are atrophy. We decided that it would be best until he returns from a trip to not use the splint, he wants to do all new readings, I start seeing a chiro tomorrow. He pointed out to my friend (she drove me up to the dentist) that my head is sitting funny, even though I think it is straight. He said I am an extreme case, that it took me years to get like this and will take time to get me balanced. http://www.healthboards.com/ubb/tired.gif
So I am on the tens unit until June 3rd. It truly puts me out of pain. It was a godawful time in the chair. My body is so screwed up. It will be interesting to see how the chiro appt goes tomorrow.
Thank you everyone, I hope you all have a great night, a pain free night and a nice memorial day weekend
Hugs
Diane

 
Old 05-22-2003, 08:11 PM   #8
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Hi Diane,
I sure hope all goes well tomorrow...and wish you good luck on this new splint. Hopefully when your doctor gets back from vacation he will make the proper adjustments - and you will do well from there on.

I wondred if you could tell me more about this tens unit you are using for the tmj. Is it a specific make/model/manufacturer. How does it help...by relieving muscle spasm - maybe?? Sounds grand that you have a way to escape the pain..even though a permanant fix would be even better.

Be well.. Robyn

 
Old 05-22-2003, 09:16 PM   #9
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Hi Robyn-
Oh I have no idea where I would be without this tens unit, it truly relieves pain. Of course by days end, after much talking I need the unit, but my pain is nothing like it was before the tens unit. It has 3 leads on it, one for the back of the neck, right below the hair line, then one for each side of the face, on your upper cheek. It provides a very gentle shock every 1 1/2 second. It helps to move the muscle, oxygenate the area and remove the toxins.
When my dentist told me today that he said on was an extreme case of TMJ, very complex, my heart just sank, but I also know he is determined. I think it is called a myotronic, however you need to get a Dr. or Dentist to get it for you, you can not purchase it straight from the company. I have not had no eye pain for two weeks, since using this tens unit, the headache are almost gone, I had "ghost" pain in my upper back teeth and it is all gone. Ringing in the ear gone.
My dentist felt so bad, but he and I agreed that it would be best to just wait until his return and get the correct fit. He is a nueromusculer dentist and feel very lucky to have found him, he is the only one in the state. I just wish I could be fixed overnite .... hahaha!
You have a good nite, I am tired, I took my little 1mg of valium and my eyes are very sleepy... my typing is awful!
Later
Diane


 
Old 05-23-2003, 05:56 AM   #10
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Hi Diane..
Thanks so much for the info on the tens unit. I've tried tens before for my spine problems with no luck...but your story sounds so encouraging I will defintitely look into it again - specifically the myotronic. Maybe there is something unique about the way it works on the tmj.

Hang in there...it sounds like you've got a dedicated dentist who is going to give your case his all. Better to wait till he is back and rested to make the adjustments for your splint. Hopefully he will focus better from all the r&r!!

I have a feeling my case is going to be a bit complex as well. For me the joint is very unstable...I feel it moving all over the place (clunking all the way).
Do you have hypermobility in the joint..or more limitted movement? My muscles are always in spasm - probably cause they can't hold the joint in place.

Thanks again.. Robyn
ps: Valium.... I need at 5+ mg to get any benefit (and I'm 5 ft tall 108 lbs). I guess it's not a good habit...but sometimes it's just necessary for its muscle relaxant properties!! Hope you slept well.

 
Old 05-23-2003, 07:55 AM   #11
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Good morning Robyn
Well, my husband convinced me to take a full 2mg valium last night so I could get a good night of sleep. I slept until 8 this morning, I never do that. Of course, I am pretty wacked out this morning but I least I got some sleep.
I can not begin to tell you how that that tens unit helps. I have used tens units in the past for sports injuries and this tens unit it completely different. Someone was really thinking about TMJ sufferers when they designed this unit.
When I had my first appt with my nueromuscular dentist, he and his asistant were asking me all of the questions and when they got to the 1-10 pain level and I told them I was at 12 for pain, they stopped what they were doing, put me on this unit and two hours later, the ringing in the ears had stop, the burning in my face had stopped and I could actually feel like there was future for me again.
Okay, my mobility - I can open my mouth real wide, how ever I have no mobility to the right or the left. I also, can no longer suck through a straw. What got my attention to that was last week when my husband and a friend were at a hamburger joint and we were being silly. My husband had sucked his cheeks together and was pretending he was a fish. THen my friend did it, then I tried to do it and couldn't suck my lips in, only able to get about a quarter of the way there. I was shocked! I had given up months earlier trying to suck through a straw with this hamburger joints milkshakes, thinking it was just because they were so thick.

Robyn, what symptoms do you have, and what have been your treatments so for?
Diane

[This message has been edited by DianeTMJ (edited 10-30-2003).]

 
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